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HER2 Positive-anyone 10 years out?
Hi ladies, I was wondering if there are any women out there who are 10 years or longer with her2 positive breast cancer? When I was diagnosed in 2008, my prognosis said '80% chance of no recurrence in 10 years'. Wondered what they based this on, as I have yet to talk to anyone past 6-8 years and they seem to have had…
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Moved to annual oncologist visits today - living life differently after cancer
Heck yes!!!! Celebrate good times. The photo was my first international trip taken this year. More to come. 🤸💕🤸
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DIM for 70 year old
Hello I am caring for my mother and I was wondering if DIM is safe for a 70 year old. I know DIM is usually used to lower bad estrogen but since she is post menopausal, is it safe?
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How long on a CDK 4/6 inhibitor (Ibrance/verzenio/Kisqali)?
I’m sure this info is buried deep in the various stage iv threads, but I’m hoping people will post their experiences and success stories here. I think the median from the initial studies was about 2 years, but obviously there is more real world experience as time passes. Thank you!
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I have autoimmune diseases
I’ve just been diagnosed and have serious concerns about chem if I need it. Not sure if I’ll be able to continue those meds or not, if not then do those symptoms go hog wild. I would be sick from the chemo and sick from the Sjogrens. Then there’s the osteoporosis, will the chemo make that worse and can I continue with…
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September 2023 Surgery Support
A place for those scheduled for lumpectomy, mastectomy, reconstruction, or other surgeries to gather and support one another through treatment and recovery.
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Finish Line Scanxiety
I have an appointment with my MO on 25 September. I have to get blood work done several weeks ahead of time to make sure all the results are in for the appointment, so I’m planning to do that on 1 September. This should be my final 6 month check up and if my blood work looks good, it will mean 3 years in remission, which…
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TERRIFIED day before mammogram yet 12 years with no recurrence
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Getting overwhelmed by all the information -- lumpectomy in 2 days
Hi everyone, I'm so glad I found this site — just reading some of the posts has been helpful. I received my post-biopsy diagnosis through my online health portal (not a nice surprise first thing on a Saturday morning), so it's been a rollercoaster of emotions. My diagnosis was invasive ductal carcinoma, low grade, hormone…
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Beginning Targeted Therapy? Start here.
Please start a new post/discussion for a targeted therapy that you'd like to discuss, if you don't see it here already, so others can join in with their experiences. Note: If you are Stage IV (metastatic), there are many threads addressing these medications for Stage IV patients in the Stage IV forum you may find helpful.…
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"Roll Call" for those who've stopped Hormonal Therapy early
If you quit or reduced hormone therapy and don't mind sharing future status at least once a year, could you share concisely current cancer status (no evidence of disease, metastisis, new breast cancer) or other health facts? This will give an easy to follow thread of results of quitting. It is such a gut wrenching decision…
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Endoscopy today
Aside from the delay (1 hour late, stewing in my anxiety), the procedure went well. I was shocked they took 4 biopsies. I'm going to the ugly place. First concern is mets from lobular to throat or stomach…or would it be worse if it were a new primary gastric cancer. UGH.
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Gamma Knife Surgery for Brain Mets: What to Expect
We asked our awesome member, @illimae, to share her first-hand experience with receiving Gamma Knife surgery for brain metastases in order to help others feel more at ease with this intimidating treatment. We are grateful for Illimae's willingness to share and we hope you find this helpful! Gamma Knife for Brain Metastasis…
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Breast tethering and no answers- mass on MRI
Hi everyone, Summary- I’m 39 Found a lump in left boob earlier this year. - June- Diagnostic mammogram- report- Birads B density- nil significant seen. U/S- nothing seen July- Noted a large area of dimple- tethering on pectoral muscle contraction C shaped near nipple -approx 7cm long, 1.5cm wide and 1-2cm deep. Complete…
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Removal of other breast
I had right mastectomy in January for grade 2 ILC. 90mm. Clear nodes. I had a reduction of left breast. Histology of left breast tissue showed Classical lobular carcinoma in situ. Which I have been told is not considered as cancer. I had initially asked for DMX which was refused as NHS does not like to remove healthy…
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TNBC Survivorship plan
I was diagnosed with TNBC in July 2022. I had a lumpectomy in August, then chemo Oct-Dec. Because of the genetics results, I elected to have a bilateral mastectomy with breast reconstruction using my own abdominal fat in January 2023. I have recovered quite well. By April 2023, my med onc discharged me to family practice,…
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DIM and hot flashes
Anyone take DIM? Its helping except im experiencing hot flashes while on it. Anyone have experience? I have the headaches and body aches but didnt expect hot flashes. How do i know if it lowers estrogen too much or if it’s just an estrogen flush out effect? Thanks!
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Single or part of a couple? How different is the Stage IV journey?
Pure curiosity. I’m single. It seems as though the majority on here are coupled up but perhaps I’ve misread. Not a pity party, I promise. I just wonder if anyone else is going through this with friends and (adult or younger) children rather than a partner, and how they feel about it?
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Menstrual Cycle while on Anastrozole and Zoldex 1 Year
I've been on daily anastrolzole and monthly injections of Zoladex for one year and I just started a period. I'm almost 45 so I wasn't menopausal prior to starting treatment. I'm a little anxious as you can imagine, since the drugs should have me in induced menopause. Anyone else have this happen to them?
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Long Shot - DIEP experience with Drs. Cacioppo and Cohen in Indianapolis?
I am currently undergoing delayed reconstruction with tissue expanders. My first plastic surgeon left the practice and I was transferred to Dr. Jason Cacioppo in the same practice after my first two or three fills. My current PS seems to think that my 400 cc expanders are likely too small for my frame (and I tend to agree,…
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High Risk - MRI?
Dear All, I have posted 1-2 times before here and find this to be wonderful, caring and supportive community. I am high risk. Tyrer - Cuzick is 23.9 % lifetime (without co-morbidities) and 20.3% (with co-morbidities turned on). Mom had BC at 59. I have had mammos at 35, 38, 40, 41, and about to have my next one at age 42.…
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If you are not Stage IV but have questions, you may post here
This thread is for those people who are not stage IV but are having concerns or questions regarding stage IV.
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And now for something unusual and a bit scary
Other than living with stage IV for 12 years, my bc life is something I keep low key, even on bco. However after 12 years on an AI (I’ve tried them all) the cumulative side effects have worn me down.None of my se’s were truly debilitating and I managed to cope but I have been struggling with chronic low level pain that…
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Any young BC patients/survivors who haven't had kids?
I decided to have kids a bit later because of my career and education, and I got diagnosed with breast cancer right before I was ready to have kids. Now I'm 32, and it's getting difficult to find people like me. I'd love to connect with any young breast cancer patients who are single, in relationship or married without…
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Bonded by Breast Cancer Weekly Virtual (Zoom) Meetups!
Hi All, We are now offering TWO moderated Bonded by Breast Cancer Virtual (Zoom) Meetups each week! Join with others you've created a connection with at Breastcancer.org, after active treatment is over. • Mondays, 8 pm ET (NEW! begins July 24, 2023). Register in advance! Monday Meetup Registration • Fridays, 1 pm ET…
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Struggling to accept HT for Stage 1 with low likelihood of recurrence
Hello, I'm 57 and was recently diagnosed and treated for Stage 1a, had a lumpectomy, and my lymph nodes are negative. Official diagnosis: grade I, Right breast IDC, cT1bN0, pT1aN0M0, ER+/PR+/Her2, Stage IA They removed a .4 mm tumor and I need to move forward with treatment. While I can accept the need of targeted…
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Worry about IBC
Hello everyone! My name is Alexandra I'm 25 years old. I'm from Eastern Europe, from a country called Romania, I'm absolutely terrified. Last month I discovered something that looked like a pimple on my right breast. I squeezed it and it got infected. I went to a gynecologist who told me that my breasts looked normal. I…
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Mammograms! I hate going for Mammograms.
I dont think there is anything that freaks me out more than my yearly mammogram. The fear is overwhelming even though I have had 11 years of normal mammograms after my stage 1 breast cancer. It is incredible how something so life saving can simply cause immense stress and anxiety for me.Chalk up the shortage of mammogram…
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Wishes Fulfilled, and a Legacy
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being a recipient of so many…
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Questions regarding testing
To make it short. My daughter unfortunately had BC dx in her 20's, and passed away years later. My other 2 daughters, now in their early 30's have been doing Mamos/Sono and 6 months later MRI. We were all checked for mutations but they showed all negative. Including my other daughter. Now my daughters are getting anxious…