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Thin Slices of Joy
I finished active treatment less than a month ago, and wow, you just don't bounce right back up. Before all this started I have had sciatica for a couple of years, and it worsened during treatment. In trying to recover from both, I've been feeling frustrated. Now, I'm tired of the pain, fatigue, and frustration. Oh, and…
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Hormone Replacement Therapy?
Hi all — I’ve been reading a recent research- esp. from the US, including the book Estrogen Matters, which questions the idea that women with breast cancer should automatically avoid Hormone Replacement Therapy (HRT), and how it can help with longevity etc. I’m planning to speak with my doctor about it, but I’m curious…
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Well here I am again…
After 10 years, here I am again. I meet with my oncologist and surgeon soon. Still waiting on HER Fish results. Will be going for an MRI soon. I figure I’m facing mastectomy as I had lumpectomy/radiation the first go round. It’s in same breast.
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Any one with Bone only Mets with ER/PR discordance?
strongly hormone positive originally 10 years( 46 years age) back IDC grade 2, stage 3A 5 years tamoxifen , 5 years Letrozole with Zolenic acid Multiple bone mets 1 year after stopping letrozole Bone biopsy came triple negative . Very concerned :(
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Recurrence after Mastectomy, then positive margins
Hello, I am hoping to connect with people who might have a similar situation to mine, although I think (?) my situation might be on the rare side. Six years ago I was diagnosed with Stage 1B IDC. I am BRCA2. I did a double mastectomy with reconstruction (implants) and was told chemo/radiation not needed since my tumor was…
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New and Confused
45yo Newly diagnosed with ILC Stage 1A and LCIS. Us found 1 tumor at 6mm. MRI biopsy found a 2nd tumor at 7mm with Lcis. Will be getting double mastectomy with reconstruction. All the waiting in between has caused so much anxiety and stress. Genetic were negative and no family x of bc. ++, her- Do you feel a sense of…
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I am not grateful to my oncologist and care team
I am facing my last treatment for triple positive breast cancer next Thursday. I had heard that ending treatment can be difficult and I have been trying to prepare myself by building other support outside my care team. However, I find that the biggest problem is the reckoning with what has happened to me. There have been 5…
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Double Mastectomy without reconstruction
Hi, I was diagnosed in July 2025 with TNBC. Stage 2a. I have gone through my 12 cycles of taxol/ carbo/ keytruda. My AC/ keytruda was stopped it landed me in hospital during Thanksgiving. I am scheduled to have a double mastectomy without reconstruction on 12/30/2025, I am a little nervous and trying not to be depressed.…
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HRT with ADH
I was diagnosed with ADH 11 years ago. Recently I have been going through perimenopause and have been having hot flashes along with other symptoms. Has anyone been put on HRT and had issues with it causing any issues with your breast health?
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tamoxifen side effects--25 years post menopausal
hi there! diagnosed in august with idc, lumpectomy and mammaoplasty (bilateral breast reduction), finished 5 fraction whole breast radiaiton on Dec 5, just started tamoxifen yesterday, 20 mg . didn't really expect side effects this soon, but… felt just generally weird both yesterday and today; sneezed a lot this morning…
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Cold Caps Users Past and Present, to Save Hair
Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair. I am on FEC100 X3 followed by Taxotere X3. My dosage unfortunately is not a guaranteed success. I am 40 days out from my first treatment and will have my third June 17. So far I have thinned but have not required a wig. I…
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Métastases cérébrales (brain metastasis)
Bonjour, J’ai eu Phesgo pendant 8 mois pour une métastase au foie. Réponse complète métabolique. J’ai fait une crise d’épilepsie début janvier 2026 et on a découvert des petites métastases cérébrales. À venir Stéréotaxie et Enhertu … je recherche des témoignages, j’étais en pleine forme , prise de sang ok …. J’ai besoin de…
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Now Enrolling: Cognitive Outcomes & Partner Engagement in Metastatic Breast Cancer Study
Enrollment for Cognitive Outcomes & Partner Engagement in Metastatic Breast Cancer Study at the University of Texas at Austin has started. Through this remote study, we hope to understand how individuals living with metastatic breast cancer, along with their partners, deal with cognitive symptoms during their everyday…
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Just had my lumpectomy today
I think it went well. Some initial pain that is manageable with Tylenol and advil. Looking forward to recovery and next steps!
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help! vagifem no longer working :(
Forced medical menopause at age 31 (first with Lupron, then ovary removal due to cancer/BRCA1). In the beginning, using vagifem 2x/week worked amazingly. No pain or dryness. Over time, I had to go to 3x/week (highest safe frequency), and add all kinds of things the other nights: coconut oil, vit e, Replens, Revaree, KY…
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GOLDILOCKS MASTECTOMY (aka SWIM reconstruction)
anyone has experience with Goldlocks mastectomy? Please share your experience Thanks
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How can they tell the difference between osteonecrosis of the jaw & osteoradionecrosis?
I am in the early stages with a periodontist about puss in my gums. I have not had any dental issues before and get my teeth cleaned twice a year. The periodontist thinks I have osteonecrosis of the jaw from using XGEVA and have caught it early. I saw him in December and will go back in a few days for my second…
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Er+ Pr- her2- survivors?
hi. I’m really reaching out to see if there are any long term survivors of this type of bc. Online Google searches have me pretty scared. I’m 42. My oncotyoe was 21. Node negstive with stage 2A.
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Annual MRI Results - Extramammary findings?
Hello Everyone, I just turned 40 and alternate MRI and Mammogram/Ultrasound every 6 months due to family history. So far, they have been benign. This one says benign, but mentions "tiny bilateral pleural effusion". When I asked Dr. Google (I know…) about it, I saw both that this can be an indicator of really bad things,…
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fatigue
how do you deal with the fatigue and no appetite
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DCIS Stage 0 High Grade HR+
Hello to all you brave women!! I just joined this site and am making my first post. I am hoping for guidance and advice and what anyone else has done as I am feeling anxiety and some stress about what to do. I am 55 years old and was diagnosed in June at 54 years. (I just had a birthday in Oct) As in my title I was…
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Who's starting Radiation in November 2025? Let's gather here to share!
Are you scheduled to start radiation soon? Let's make a space where we can encourage each other who are traveling radiation road together — share experiences, get tips, ask questions and get answers from those who've "been there." We encourage you to share your diagnosis, any previous treatment you've had, and your…
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Post-tamoxifen and Lupron - Removing ovaries with hysterectomy or not? ER+/PR+/HER2-
I was diagnosed in 2020/age 40 with ER+, PR+, HER2- breast cancer. Unilateral mastectomy; no chemo/radiation; I finished my 5 years of Tamoxifen in September... and felt fine on it. When I stopped, I felt like I was on a crazy hormone rush with breast pain in my remaining side, which was scary. Then, I started having…
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Feeling ignored
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Anyone from Nothern Virginia
I am looking for swim reconstructions or Goldilocks . I am not finding any plastic surgeon . Can someone recommend it? Thanks
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Verzenio What has worked for you diarrhea
Hi Starting Verzenio today. Dr is starting me on 50mg 2x per day, to ease me into it. Do you have a regime that has worked for you in combatting diarrhea? I am going on vacation with my kids and I don't know how I'm going to manage it other than trying Imodium. TIA
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Has anyone decided to have a mastectomy after a lumpectomy and radiation?
I finished my radiation treatments a little over a month ago. Due to the size of my tumor I decided against radiation since it seemed as if the costs would out way the benefits. My surgeon, Onc, and Rad Onc, all said that they didn't think my chances of reoccurrences would be significantly better with a mastectomy instead…
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New Diagnosis - Recurrence less than 1 year
I had DCIS last year, had a lumpectomy with neg margins, no necrosis, 90% Er/PR positive. Tiny, so no additional testing. I did not do radiation, but i was on tamoxifen. Almost a year to the the day of my lumpectomy, I had a screening MRI. Two spots came up as “new” (I have extremely dense and “busy” breasts). Had to wait…
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Listing our BRCA mutations - maybe we can find matches
My idea is that we can use this topic to post our genetic mutation on the off chance that we can find someone else with the same mutation. I realize that this is a long shot because there are so many variations, but what the heck? I tried searching FORCE for mine with no luck. Here's my family's: BRCA2 - 2024del5
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Tamoxifen side effects
Hi, I am a 69 year old diagnosed with Stage1 HER 2 + ductal carcinoma 4 years ago. Ive been taking Tamoxifen for 3 years post lumpectomy for removal of a lump less than 1 cm. Lymph node testing was negative. I completed Radiation, but no chemo was recommended. Genetic testing negative and no family history. I have…