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Slnb recovery
Seem to have recovered from the smx, no problems, scar is ok and not painful but the armpit area seems to be a bit swollen amd very achy by night time , is this normal ? Have been exercising and doing light activities but the area is so sensitive, bras irritate it and the pain seems to radiate down my arm at times
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Penn SURMOUNT & ABBY clinical trials
Hi there, I'm curious if anyone here is enrolling or planning to enroll in either of these clinical trials. https://clinicaltrials.gov/study/NCT02732171 https://clinicaltrials.gov/study/NCT04523857 I sent them some questions just to be sure I know what I might be committing to. Looking to connect with others may be…
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mastectomy and possible reconstruction
I had lumpectomy a couple of months ago. A week or so later surgeon called and told me she didn't get it all. So I had a single mastectomy about ten days ago with the intention of having an implant and a lift on the other side. The plastic surgeon wasn't able to put the expander in during the mastectomy so I'm left with a…
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KISQALI
I have completed one cycle and am on week off in 4 days I’m supposed to be back on My blood numbers tanked like worse than in chemotherapy My white blood cell count is 1.8 platelets 130 Will they pull me off medicine? I was in getting my fulvestrant shot not at same clinic as my onocologist so nurses were unable to answer…
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🌟Starting radiation in January 2026? You don’t have to walk this road alone.🌟
This is a space for all of us traveling the radiation road together—to connect, encourage one another, and lean on shared experience. Whether you’re just getting your start date or already a few sessions in, we invite you to jump in and share: Your diagnosis and any treatments you’ve already had Your radiation start date…
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Post lumpectomy hematoma
I had a lumpectomy with sentinel node removal on 12/29. Clean margins and node and DNA analysis shows no need for chemo. 4 days after surgery my breast was swollen and developed a hematoma. I ham still wearing a compression bra 24/7. I have seen the surgeon 3 times for follow-up and waiting for the widespread bruising and…
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Cording/Mondors
Hi All. New here and hoping someone can see this and talk me off the ledge. I have been having pain in my ribs. At first I thought it was a broken rib again (had it 6 months ago post radiation for no reason). But the I saw the cord and now two cords from my breast to rib. I am freaked out because my surgery was over a year…
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Breast Cancer
I am 69, just diagnosed this month. I would love to talk to any survivor (s) around my age or older? I was there with my mom when she went through chemo, now I am much older than she was.😐️
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Knowledge is power. Tell me all things IDC related.
Hi all, I am new to this group and newly diagnosed. I am a 43yr old female that had IDC Grade 3, Estrogen Progesterone Positive, Her negative cancer. So far, we believe my cancer is contained to one tumor appx 2cm in size, no lymph node involvement shown on MRI. My mother recently passed from breast cancer. However she was…
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Vegan Heathy diet cookbook available!
yellow breast cancer survivors I became a dedicated vegan in 2012 after experiencing a brain tumor which was a met from breast cancer. I have been well ever since I had Traditional Brain surgery and a novel type of radiation stereotactic.. I began collecting all my recipes and I’ve written the vegan healthy diet cookbook..…
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just finished my four chemotherapy treatments
i am just realizing the journey may soon be over. even though i need another transfusion. I am feeling aware. My Dr listed all the side effects and provided medication. I am feeling blessed next step to confer with Radiation oncologist , it has been a journey!! My son has gone to every appointment and rearranged his job…
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Radiation Questions
I’m a seasoned 71-year-old 2X survivor who is going for #3 & #4!!! Each cancer has been new. Except for the 1st, they were all small. I was notified today that 2 recent biopsies of the same breast indicate cancer. I have questions while waiting for the referral to a surgeon. Has anyone had the full course of daily…
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Poll: What's the one piece of advice you'd give to someone newly diagnosed with breast cancer?
Getting diagnosed with breast cancer can be scary. If you had a chance to share with a newbie one piece of advice to get them through, what would it be? Choose from the options below or add your own in the discussion to give new folks a sense of calm and understanding.
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Any new info on ATM VUS?
I’m positive for ATM p.N31K, which is classified as a Variant of Unknown Significance (VUS). Does anyone know if science is any closer to being able to determine if this VUS is Likely Benign or Likely Pathogenic? I had bilateral mastectomy with sentinel lobe biopsy about six weeks ago for grade 3 DCIS with comedo necrosis…
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Chest Wall Recurrence worry after Mastectomy for grade 3 DCIS
Hello all, It's been a while since I've posted. Looking through the forum I'm finding a lot of comfort knowing I'm not alone! I had a giant 8cm Grade 3 ER-/PR- DCIS back in 2015 that was treated with Uni Mastectomy. No chemo or radiation. After 8 1/2 years of everything clear on MRI every year, I have now discovered an…
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Anyone on just Taxotere and Cytoxan?
I just started a regimen of taxotere and cytoxan for four rounds. I really need to talk to someone who has been on just this regimen. My first session did not go well. It dropped my sodium levels too low and I had a couple of seizures. They kept me in the hospital for two nights. I have been achey and weak since. Does it…
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Should I be more proactive
hello, I have a strong history of breast cancer in my family. Mom, Aunts, Sister and Cousins. I am 60 and have had annual mammograms since I was 35. My recent mammogram results were indeterminate asymmetry. All other have come back normal. I called my doctors office to get a referral so I could schedule the additional…
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reoccurrence risk
I had a double mastectomy in sept 2-24 and recently had my exchange surgery in oct 2025. Since then i have had random swelling a developed a new lump. Ultrasound said hypoechoic structure measuring 16x429mm 3 weeks ago. Todays ultrasound shows a growth of approx 9mm in 3 weeks, now 25x4x29mm. how concerned should I be and…
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Not Diagnosed and Waiting for Test Results? Start Here
Often, the hardest part of screening and testing isn't undergoing the tests themselves, but WAITING for results to come back. If you're like most people, you will want your test results as soon as possible. Read here for steps you can take to feel more in control of the process: * Test Results and Medical Records,…
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Infection after Mastectomy with tissue expanders
Developed terrible infection in right breast seven days after double mastectomy with tissue expander placement. High fever, chills, skin necrosis, blistering and breast leaking from incisions. Expander removed, cultures taken, flushed area and closed back up. Proper oral antibiotic received once the bacteria were…
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Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast…
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PIK3CA
recently diagnosed with this mutation. Does this mean I have active cancer in my body? My dr is trying to get me on Truqap. My dr keeps telling me I’m metastatic, but I don’t know what it is based on. Is it because of this mutation or because I’ve had 3 primary IDC in 23 years. Earliest was 2025. When I ask, she says it…
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Waiting: what helps?
I know everyone on here has had the experience of waiting for test results. I am currently waiting for biopsy results but the radiologist said given the spiculated margins of the mass I am probably looking at breast cancer. I’ve been in therapy the past couple of months for health anxiety so this is a big blow and my…
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Ibrance (Palbociclib)
A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets.…
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Dcis microinvasion
Waiting for results of slnb, had smx dcis was 80 x 83 x 80 so very large. What are the treatments usually given for the microinvasion ?
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Immunotherapy
I had my cardio cat scan everything was good, so why is my LVEF low? I must get back to treatment I worry my cancer will come out of Remission!
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Debra trial deescalating radiation for invasive DCIS
I recently was diagnosed with invasive DCIS and my surgeon told me that there is trial called the Debra trial I may qualify for. I have invasive DCIS stage 1 grade 1 ER+ and HER2- and it is smaller than 2cm. This so far qualifies me and the next step is to see if my oncotype gene score is between 1-18 and also would need…
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CRP Protein High
Hello, After being on letrozole for a few years, my CRP levels are high. They think that there is inflammation, I do have lymphedema but my Crp has never been high, Has anyone experienced this?
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Pain under left arm for last couple of weeks and am getting concerned
Background - I had a double mastectomy for stage 2B lobular breast cancer in December of 2012 followed by chemo and anastrozole ,and a lumpectomy for DCIS and radiation five years prior in 2007. Due to severe complications with the double mastectomy I was hospitalized for a month and came home with a pretty big dog ear on…