-
Tamoxifen
taken Tamoxifen my left side neck and shoulder pain and stiff and painful. Any one else have the problem
-
Waiting for more testing and sad and scared
I have been reading these boards and getting a lot of great information. I am 57 years old and I joined a while back when my mother had been diagnosed with breast cancer, invasive lobular stage 4 which eventually spread to her bones and brain. I was lucky enough to spend so much time with her and be by her side when she…
-
Stage 2 Breast Cancer.
Hi everyone, My sister was recently diagnosed with stage 2 breast cancer and will be starting treatment next week at Inova Health System in Northern Virginia. Her treatment plan includes 12 weeks of weekly Taxol, followed by Adriamycin every 2 weeks for 8 cycles, and then surgery. I’m hoping to connect with others who have…
-
🌟 February 2026 Radiation Roll Call—You’re Not Walking This Alone 🌟
If radiation is part of your plan this February, you’ve found a place to land. This thread is for everyone on the radiation road—whether you’re still waiting on your start date, in the middle of daily sessions, or already looking back on the experience. This is a space for connection, honesty, encouragement, and the kind…
-
A new odour
My mother was diagnosed with metastatic breast cancer 3 years ago. She takes letrazole, palbociclib (3 weeks on/2 off) and has Denosumab injections. After being away for a couple of weeks ( we share the same house), I have returned to notice that she has an odour particularly later in the day. It is not incontinence…
-
Radiotherapy Delay due to wound dehiscence
Hi I had a lumpectomy on Feb 13 2026 with sentinel node biopsy. All clear. Clean margins etc. I was happy to understand that I need 2 weeks of radiotherapy. I'm hormone positive and her 2 neg. For the past four weeks I have a small wound. Pico helped but I still have a slightly open surface wound on inframmary fold. Not he…
-
Anyone else with a grade 3 cancer with ENE?
Hi everyone! I am currently in active treatment. I am so worried about having extranodal extension on my one lymph node. My cancer was 2.5cm and multifocal in my right breast. I had one lymph node positive packed with 1.7cm of cancer and ENE. I am ER+ (95%)/PR+ (80%) and HER2- (2+/FISH negative - Group 4). My cancer is…
-
Abnormal ALP level
My ALP level is 134 and the cut off point here for a normal level is 130. I have to have it tested again on Christmas Eve... Do you think it is a sign of metastatic spread to bone? My other liver enzymes were normal. This is the first time that my ALP has been abnormal, so I am very worried and I have convinced myself that…
-
adriamycin heart damage
Hello, Just dx with heart damage due to adriamycin use in 2005. I was dx with Stage 1 bc, ER-PR- Her2+++. Had lumpectomy, chemo ACT then 10 months of Herceptin (had to stop twice due to low muga scores). Radiation. Had genetic testing Pos Braca 1 so had bilateral overies removed then bilateral mastectomy with silicone…
-
Starting TCHP soon
Hello everyone! I’ve been going through some of the posts not quite ready to join in but I’m starting treatment soon and it feels right. I just turned 40 and was diagnosed in January with stage 1 triple positive IDC. After a lumpectomy they found 1 positive lymph node which oddly didn’t change my staging - the surgeon was…
-
Any FANCM Triple Negative Breast Cancer Gene sisters?
Good afternoon! I and my daughter both carry the FANCM TNBC gene. I’m a breast cancer survivor who was diagnosed in 2011 at age 43. I had a 1 cm DCIS, Stage 0, Solid/Grade 3 tumor and a subsequent bilateral mastectomy. In 2011, the only recognized breast cancer genes tested were BRCA1 and 2, and TP53 which were obviously…
-
💗 April 2026 Surgery Roll Call — Step In, Speak Up, We’re With You 💗
Is surgery on your calendar this April—lumpectomy or mastectomy? This is your space. And we truly mean your space. 💗 Consider this your official roll call—but more than that, it’s your invitation to be seen, supported, and surrounded by people who understand. No matter where you are emotionally—calm, scared, overwhelmed,…
-
Likely Fibroadenoma? 29F US biopsy recommended.
I am an AA 29F that just had an ultrasound done due to a new breast lump finding. I’ve had it for around a year or so but it felt more pronounced after losing some weight, it is very palpable right next to the nipple. Aside from that no significant changes and seems to swell on or around my cycle. Here was the radiology…
-
MRI results & awaiting biopsy
hi everyone, For the pst two years I’ve been getting poked (biopsies) and one lumpectomy. So far my left breast has shown to have radial scar with atypical cells, and a intraductal papiloma with usual hyperplasia, all found at 12oclock position. Since family risk and personal risk I’m on high risk screening, last years MRI…
-
Kisqali (ribociclib) and ILC
I am having results with Kisqali, anastrozole, and Zometa undergirded with lots of prayer. I have had debilitating bone pain in my back for over 2-years. Finally diagnosed with Advanced ILC 27 Sep 2022. I started anastrozole in Oct, Kisqali in November, and had a Zometa injection in December. Two days ago, I became aware…
-
Enhertu
would love to hear from other Enhertu users about managing side effects. Does it get better over time? I just finished third round and am very weak, even 10 days after infusions. Tried one dose of modanifil which gave me some energy (more like nervous energy) for a handful of hours but I don’t think that’s going to be good…
-
New diagnosis
I was diagnosed with DCIS in Oct 25 left breast. Had lumpectomy in Dec 25 & reduction mammoplasty in right breast & told would have radiotherapy in Feb/March on left breast. Told very good prognosis. Pathology results in Jan filled me with total panic. Told I had 11mm grade 2 invasive ductual carcinoma in left breast &…
-
Biopsy marker migration and pain...4 years post biopsy?
Hi, I guess I should start with a little history. I am 49. I had both breasts lifted and augmented (saline) in 1994. I had a TAH in 2000. Generally healthy but suffer from GIRD (have had several esophageal dialations) and the occasional hernia. Over the years my breast implants had encapsulated to the point where it was…
-
Elevated CA 15-3, Stage 3, without metastases
Hello everyone, July 2024 – Diagnosis: breast cancer ER+ / HER2 negative, with lymph node involvement, no metastases, stage IIIA. I had a CT, MRI, and PET-CT before starting chemotherapy. August 2024 – I started chemotherapy, but before that I measured CA 15-3, which was elevated at 74 U/ml. It increased up to 92 halfway…
-
Kisqali side effects and timing
I was diagnosed with stage four NBC earlier this year and just started a combination of anastrozole and Kisqali. I am three weeks on with one week off. I have experienced some persistent nausea, but most concerning is my serious fatigue. I’m wondering if this improves over the months as you continue with the Kisqali? I’m…
-
Bad Reconstruction
When I had my double mastectomy, I was not give any choice in what plastic surgeon I had. So, my doctor was young and I'm not sure had a lot of experience. I had expanders for however long, then got the implants installed. This was five years ago last month. They are just terrible! They are completely round so they look…
-
Am I being under-treated?
Newly diagnosed here. TNBC stage 1b grade 3. I met with my BS, MO, and RO for the fist time yesterday. Breast MRI shows a 1.5cm mass that hasn’t grown since mammo and US a month ago and no nodes involved. So the plan is: -Surgery first (I am leaning towards SMX no recon) -Chemo: 4 rounds of TC spread 3 weeks apart -No…
-
silicone implant
Hi, I want to get my silicone implant of 16 years removed due to contractures and pain. I recently had a MRI due to finding a lump, but it turns out it is the implant that I can feel. It is uncomfortable all the time and cold. I am considering going flat afterwards and have mixed feelings about appearance. No real good…
-
Early Stage Breast Cancer - anyone on Letrozole and Ribociclib?
Wondering if anyone has been diagnosed with Early Stage Breast Cancer and on AI/Ribociclib regimen? I’m going to start after radiation and wondering how your treatment is going and if there are any tips out there! Thanks in advance!
-
How do I accept that I have to slow down and work less?
I finished active treatment at the end of 2024, but 14 months of exemestane has basically disabled me. I can hardly use my hands and I have debilitating insomnia. I'm taking Seroquel for the insomnia and it usually works, but we just moved and the stress of that and work was too much for me. My insomnia has come back and I…
-
Over 60, Birads 3 and a Story you Can’t Believe
I’m looking for input and advice. No prior history for myself. Mom diagnosed at age 90 with + - - grade 3 aggressive cancer. Died of unrelated causes before diagnostic work up completed. For me - Screening mammo at the end of October…Birads 0, new bilateral focal asymmetries both upper outer quadrant. Diagnostic spot…
-
Brca2
I was diagnosed with Breast cancer in early July. With in two weeks i was at the COH and a week thereafter I had a genetic test. BRCA2!! Crazy. I notified my family with the letter of my test results and 2 of the four did the test too. They both have BRCA2. I am not sure if one brother got tested, but i hope so. My other…
-
Arimidex side effects?
Side effects?? Need advice!
-
Anxious waiting for Biopsy
I am nearing my 5 year anniversary of Stage 1, Grade 3, BC in my left breast and today the mammogram and sonogram picked up somethin in my right breast. (I just had a clear MRI on this breast 8 months ago!) The radiologist said it could be a hematoma as there is no vascularity and it is very small (5mm) but I am spiraling…
-
Laughing at and with myself
As much as I like this forum/site, I was feeling incredibly ignorant and behind every time I connected. Everyone that posts lists all the letters, numbers, definers of their diagnosis. I kept thinking how do they have this memorized? Do they have a post it note on their laptop, or copy and paste? I am still just trying to…