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Scared. Breast edema after mastectomy with reconstruction
Back on the forum after 1.5 years… I was diagnosed with TNBC 2 years ago: 3cm, no lymph node invasion. I had 16 Chemo+6 Keytruda, double mastectomy with reconstruction, and PCR. All 23 nodes were removed, without infiltration signs. I had no Rads or other treatment since. In January 2024 I had another surgery on the same…
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Radiation
I was diagnosed with DCIS stage 0 in July / 24. I had a lumpectomy in 8/24 and I just started radiation on10/9/24. Luckily I only have to have 5 sessions . I am HR / PR Negative so I won’t have to take any medication. When I did my radiation yesterday Later in the day I noticed I was sore and had a swollen lymph node . Was…
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Pulsing/Vibrating sensation in lumpectomy breast
Just wondering if anyone has experienced a pulsing type vibrating sensation in their breast following surgery and radiation and what they did about it? I am 4 months post-lumpectomy and 2 months post-radiation and for the last 4 days I have had a strange, constant, high speed vibrating sensation in the lumpectomy area. Is…
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Can DCIS become "cancer" in 5 months?
Thank you very much for this space. I am informed about DCIS, but have a question which I cannot find an answer to anywhere on the internet. After searching for a week, I am now thinking it may not have an answer. Past and current situation My wife, age 46, was diagnosed with stage zero DCIS 12 months ago. She received a…
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Anyone on Kisqali and Exemestane? SE?
Hi, all I switched to Exemestane from Letrazole due to unbearable rash with the Kisqali/Letrozole combo. But on Exemestane the skin on my palms and feet is scaling, peeling off. Any advice? Also my hair is thining. What SE do you have and how do you deal with them? Thanks
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ILC Long Term Survivors
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy
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Anyone have acceleration radiation?
Hi, I'm new here. My biopsy result was DCIS stage 0. A lumpectomy was performed, my surgeon said no further surgery is needed. Radiation is next but the thought of five days a week for six weeks depresses me. Has anyone did the acceleration radiation? I could handle that to shorten treatment. Can we firmly request it or…
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My boobs keep trying to kill me
Hello Sisters! It’s been awhile since I’ve last checked in, but am in need of advice/recommendations/encouragement. Background – Diagnosed with de novo ILC (ER/PR+, HER2 - ) with innumerable sclerotic bone mets in 2018 at age 50. This was found on a routine mammogram – I was totally asymptomatic. Had a R mastectomy and…
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Looking to connect with others for support and guidance
Looking to connect with others who have had a second primary breast cancer. First diagnosis was in 2016, found on a routine mammogram. I was 43 at that time Stage 1A no nodal involvement, oncotype 7 had lumpectomy, radiation and 5 years of Tamoxifen. I had a young family at the time and kept it from my youngest as he was…
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I was just now dx with skin mets
Hi, I've not had good news since forever—since suspected recurrence in August 2023 anyway, looks like I won't be getting any either. I had some red raised places — not bumps, not nodules, that would get red, then go away, etc. that appeared Nov. 23, the same month I was dx with St. IV. PET scan didn't show this. CTs-four…
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How do you feel about the "battle" terminology used about managing a breast cancer diagnosis?
How do you feel about the battle terminology (fight, warrior, strong) used about managing a breast cancer diagnosis? Take our poll and share your experiences below.
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Oral Side Effects of Breast Cancer Treatment
Oral Side Effects of Breast Cancer Treatment September 27, 2024 Suffering from mouth sores or dry mouth? Dr. Thomas Sollecito offers solutions. A number of breast cancer treatments, including chemotherapy and some targeted therapy medicines, like Herceptin (trastuzumab), can cause oral side effects, including mouth sores,…
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Questions regarding Metastatic BC
Previously had stage 2 Invasive Ductal Carcinoma=lumpectomy, 7 weeks radiation, then tamoxifen (stopped taking after 1.5 yrs).BRACA testing at this time was negative. OncoDX number was 11. Fast forward 7 years, It is now Metastatic. I am ER +, PR+, HERS2-. PET Scan a couple days ago, received results ..alot of "no's/none"…
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Pain
I had a breast reduction and 2 lymph nodes removed. Got a new oncologist and he says my pain in my ribs is most likely from nerve pain. I had full body bone scan and only degenerative stuff was in different parts of my body but nothing on my ribs except on spot that had a probably from radiation.
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Just Diagnosed? Start Here
If you have just been diagnosed here are a few places to start from the main Breastcancer.org site: * Understanding your pathology report * Before Treatment: Planning Ahead for Survivorship * Breaking Research News about Planning Your Breast Cancer Treatment Also, a great thread chock full of advice for those just…
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Starting Chemo May and June 2024 Support Thread
Gather here to support one another, ask questions, and share experiences. We're all here for you. What is the type of chemo and regimen you'll be doing? When do you start? Share your thoughts and get support!
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Bloody discharge, Mammo & ultrasound today
I noticed I had some dark red blood from my right nipple about two weeks ago. When I went to the doctor, they noticed a clear discharge from the left as well. Today I had a mammogram and ultrasound done. The radiologist found two lumps, one near each nipple, and said they were probably benign and to follow up with an MRI,…
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Refusing AI Treatment
I I have decided that I'm going to quit taking my AI medicines. I became suicidal, depressed, full of anxiety, feel like I'm going crazy, legs aching in pain. I am diagnosed with stage 1 ER positive invasive ductal carcinoma. I've had a lumpectomy and one month of radiation. I have dense breasts. I have decided that the…
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Breast reconstruction revision
Hi! I am new to the forum. I was diagnosed in 2013 and after a double mastectomy I had reconstruction using expanders. I am interested in getting my implants removed and possibly replacing them with new implants. The problem is I was living in Florida when I had my reconstruction. I now live in Hickory, NC and have no idea…
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Liver met
Frustrated and angry. I've had MBC for 4 years now. I did really well on Verzenio/abemaciclib and was told I had NED in July. I just got my CT scan back and it shows a probable tumor on the liver. PET scan and liver biopsy coming up. My tumor markers have been rising too. Lucky to have had 4 good years so far, but just 3…
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X-ray lung nodule
Hello everyone just checking in after a long time. Did anyone have this issue. I had cold in July and I ordered an x ray. Cough almost gone and I thought to get the X-ray still and they found “ovoid nodule projecting over the right midlung zone 2 cm new from prior”. Not sure if it means a new one 2 cm or 2 c/m from the…
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Does insurance cover nipple tattooing?
I'm about 7 months post surgery for my reconstruction (triple negative, grade 3, high Ki67 IDC breast cancer) and I'm extremely pleased with the reconstruction thus far, but I'm looking at getting the 3D nipple tattooing done. Does anyone know if insurance has to cover this part of the reconstruction process? I've sent…
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For Arimidex (Anastrozole) users, new, past, and ongoing
I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users. I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to…
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Ten Years Blue in a Sea of Pink
Male breast cancer advocacy strategiesI Over the past 10 years, so much has changed for me personally. Fortunately, the message that breast cancer is a genderless disease has grown significantly, and community awareness is much more widespread. To assist those looking to advocate, here are some of the strategies I've found…
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Is invasive lobular carcinoma imaging symmetric or bilateral
Hi, Did anybody diagnosed as invasive lobular carcinoma for ultrasound imaging described below: Broad area of vague hypoechogenicity seen throughout the upper outer quadrant of both left and right breasts, symmetric appearance. Thanks.
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TC Chemo
Hi, I am 75 years old and had lumpectomy for invasive ductal carcinoma 7/26/24. Stage 1, grade 2, clear margins and no lymph nodes involved. Oncotype score 32 which indicated 20% chance of recurrence somewhere else in my body within next 9 years, but with chemo that reduces risk to 5%. Oncologist is recommending 4 TC chemo…
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What to expect from Kisqali (side effects)?
Hi, I'm a caregiver to my mom, who was diagnosed de novo with metastatic breast cancer just last month in August 2024. She has metastases to the bones, liver, and lungs, and she's scheduled for a brain MRI next week. She's started on Letrozole, which was paused while she's been undergoing palliative radiation therapy to…
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Radiation Questions
I’m a seasoned 71-year-old 2X survivor who is going for #3 & #4!!! Each cancer has been new. Except for the 1st, they were all small. I was notified today that 2 recent biopsies of the same breast indicate cancer. I have questions while waiting for the referral to a surgeon. Has anyone had the full course of daily…
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Verzenio
Taking verzenio ..having brutal side effects
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Exemestane (Aromasin)
My MO recommended I leave letrozole because of SE and start exemestane. Can you please share your experience with this medication? Tips? Good news: Exemestane, a synthetic steroid drug widely prescribed to fight breast cancers that thrive on estrogens, not only inhibits the production of the hormone, but also appears to…