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Interactive decision support tool!
Hi All, We're letting you know about a new interactive decision support tool for patients that could be helpful in making treatment decisions for people with a metastatic breast diagnosis. It was developed by Clinical Care Options, LLC, and it can provide you with recommendations from 5 experts regarding treatment. We hope…
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Truqap experience
stage 4 Mets to lung, liver, bones and lymph On the sixth week of truqap, handling it pretty well. Some diarrhea that is unpredictable so I always have Imodium on hand. Sometimes I get nauseous and my taste is off. My concern is for the blood sugar levels. Trying to keep my diet during the four days which is no sugars but…
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Primary lung cancer after treatment with chemo
Just read this article - https://www.epicresearch.org/articles/women-with-breast-cancer-especially-those-who-received-chemotherapy-at-increased-risk-for-subsequent-lung-cancer Apparently new information has come out showing a higher rate for primary lung cancer after breast cancer treatment with chemo. Something like a 57%…
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14 YEAR STAGE 3 ILC SURVIVOR
I’m hoping someone can provide me some guidance. I am a 14 year Stage 3A ILC survivor. I did all the right things including chemo rads double mastectomy and 13+ years of Arimidex. Believing that you get long term benefit of protection from long term use of Arimidex, I made the decision to stop taking it because I was…
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Genetic Testing Saved My Life
Genetic Testing Saved My Life May 31, 2024 Dr. Brooklyn Olumba explains how discovering she had a BRCA2 mutation led to earlier breast cancer screening and detection. At the 2024 American Society of Clinical Oncology (ASCO) Annual Meeting, Dr. Brooklyn Olumba was part of ASCO Voices, a program that gives people in the…
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Share a photo to create a bright moment in someones day!
Hi All! #GivingTuesdayNow, a new initiative in response to COVID-19, is on May 5 and we're using it as an opportunity to talk about how Breastcancer.org community members give support to each other. The goal is to spread positivity through photos. What can you share or suggest to create a bright moment in someone's day?…
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ILC stage 3 and 10 year survival
I am wondering anyone with ILC stage 3 diagnosis and made it to 10 year without any recurrence.
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Have you experienced PTS or PTSD following a breast cancer diagnosis?
Please share below your experiences with PTS (post-traumatic stress) or PTSD (post-traumatic stress disorder). How has this affected your life, the way you feel, your relationships, activities? And how are you managing?
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Unfortunately it appears I am back.
Made it almost five years. I was concerned about slowly rising TM so had a CT last summer. I did see something on some of the vertebrae when they showed me the scan but was told it was just some arthritis. Returned this month and on what was to be my last routine CT scan, before they sent me off into the “every two year…
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How many reconstructive surgeries are too many?
I've had a setback with my reconstruction and I'm not sure what I want to do. I had a mastectomy on the right side in November 2022 and had a tissue expander placed, which was swapped for an implant in October 2023 after I healed from radiation. I had mild discomfort from the implant even after recovery and wasn't super…
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Breaking Research News from sources other than Breastcancer.org
I watch for research news on breast cancer, treatments, etc., and frequently see interesting articles. There is a topic on BCO called "Breaking Research News from Breastcancer.org." One of the moderators suggested that another topic might be appropriate for posting links and synopses of reports on research found elsewhere.…
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Taxotere Linked to Less Neuropathy in Black Women
Taxotere Linked to Less Neuropathy in Black Women Jun 17, 2024 In Black women with early-stage breast cancer, Taxotere every three weeks caused less peripheral neuropathy than Taxol every week. Read more…
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Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer Jun 17, 2024 Enhertu offers better survival than chemotherapy for pre-treated, metastatic, HER2-low or -ultralow breast cancer. Read more…
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Fertility Treatments Safe for Survivors With BRCA Mutations
Fertility Treatments Safe for Survivors With BRCA Mutations Jun 11, 2024 Assisted reproductive technology doesn't increase the risk of breast cancer coming back in young women with BRCA mutations and a history of breast cancer. Read more…
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Hi I am New here. Finished my treatment, lost a husband, would like to share!
I had a lumpectomy, chemo, and then a masectomy complete and a hysterectomy after they found the BRACA gene. I have remained flat and happy with that, my husband left me and my children (not his) after my first chemo as he couldn't and didn't want to take on the extra duties that it might entail. I live in France and had…
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Pain in one breast, no lumps, not due to my period. How worried should I be?
I’m a 45 year old woman and my mom had a rare form of cancer (phyllodes tumor), which is more of a sarcoma than breast cancer. It did unfortunately, take her life. Due to family history, I’ve been getting mammograms since 40. That said, I’ve had random pains that I would describe as shooting pains in my left breast. Very…
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Sacituzumab Govitecan (Trodelvy)
Hello everyone. I was wondering if anyone(s) could share any experiences they have had using sacituzumab govitecan (Trodelvy) either in a clinical trial or as recently approved by the FDA. We are trying to determine if it's the best plan of action for my wife at this time. There are 2 key things we are trying to determine.…
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I am so scared :(
Good morning everyone! I'm writing because I needed to vent to someone about this subject... I'm 38 years old. 3 months ago I discovered a large lump in my left breast. I don't know how I hadn't realized it before, but the truth is that when I found it, I decided to go to the gynecologist. She scheduled me for an…
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Arabic speakers with Breast Cancer
Good morning, Anyone here who is native Arabic speaker? Would love to connect.
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Second mass found...reconsidering treatment plan
Hi! I was diagnosed about 6 weeks ago with IDC (ER/PR+, HER-). I had to pause starting any treatment to travel to the UK to be with my mom, who was diagnosed with stage 4 colon cancer. Sadly she passed away last week. I have just got back and now picking up my treatment journey. Just before I left for the UK, an MRI showed…
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Rash
I started with a rash on right breast now it has spread and deeper in colour. I have a dr appt this afternoon . Can anyone think what it could be . Upper pic yesterday Lower pic today (EDITED BY MODS to remove photos)
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Delayed direct to Implant re-construction
Hi Everyone, My sister had double mastectomy in Jan. Her surgeon didn't recommend immediate re-construction. She is now thinking about direct to Implant re-construction. Please share your experience about direct to Implant re-construction. Thanks 😊
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What causes AI or SERM failure?
Are the causes of hormone therapy failure due to mutations in the tumor dna or bypass mechanisms? Like if you’ve been on some therapy for a while but then develop a new primary, how is this possible when those receptors are suppressed (assuming the patient is compliant with dosing). Also, has anyone had the Breast Cancer…
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Tamoxifen 5mg side effects
Hi I tried this drug by the 6th day I could not function I ended up in the doctors because of the pain in my head and my vision I can't even describe the way my brain felt the depression the muscle cramps The Hot Flashes this isn't worth it to me I will not take any of this poison they say helps because it does so much…
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All about Xeloda
I will complete my first cycle of Xeloda today (2 weeks on; one week off). I have already noticed some signs of HFS on my feet. Sometimes they are red and feel hot. I've had some minor skin peeling, but not any blistering. The heels are the worst (the most sensitive) and it is uncomfortable to walk. I hope I get to see the…
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How Many Stage 4 Girls are getting SS disability..
Seems like a lot of stage 4 US citizens are getting Social Security Disability Insurance payments. So lets see how many there are! If you were denied, please comment if it was for medical issues. My understanding is denials are more "not paid in enough" issues than medical. PLEASE TAKE POLL ONCE ONLY!
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Pain in lumpectomy site years later
Hi all, I was dx in May of 2010. I had a lumpectomy was stage 2, grade 3 er/pr+, 7+nodes and brca2+. I did chemo, rads and had a mastectomy a year ago with diep reconstruction. Off and on I get pain in the scar area from the lumpectomy. They took muscle from the area -- lump was on the right at 5 o'clock -- very unusual…
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things to buy in dept store
Lets shop in department store like Wally World. I will start and next person start with last letter of my word.. Curlers
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Faslodex
Just wondering if anyone has experienced this. I have been on faslodex (and Ibrance) for 3 and a half years. I am so fortunate that his combo is still working and don't want to change it. I have always had a couple of side effect days after shots but bearable. Though recently my side effects seem worse. Anyone experience…
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Kisqali
Anyone taking Kisqali for Advanced Stage Metastatic Cancer. If so how how long did it take for you to know if it was working for you? I have Mets to my liver and spine, likely in lungs too. I just want to feel better.