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Starting Chemo
Hi everyone I will be starting chemo next week and I’m afraid I can’t get through this whole process, I’m afraid I will panic and just refuse to do it, I’m afraid of what chemo will do to me and how it will make me feel, how do I overcome this fear? Thank you for any help
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Sex is difficult
I am finished with right mastectomy and reconstruction and left breast reduction and I'm on Anastrazole for 3 more years. My biggest issue is with sex. We always had a great relationship with sex. It was wonderful. Now I find, I cannot climax. I actually don't really have any pleasurable feelings when he touches me. I use…
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Fearful of IV Bisphosphonates and ONJ - Q About Dental Implants
Hi all, I have taken a combo of Tamoxifen and Letrozole for 5 years. I started with Tamoxifen and switched over to Letrozole after a secondary endometrial cancer put me into surgical menopause. I am now having lots of dental problems which everyone attributes to chemo. Am now on my way to losing my 4th tooth and the oral…
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Cold capping
Hi everyone I am about to start treatment and want to do the cold capping but I’m terrified at how painful it could be? Any insight on how to mentally prepare for it or how it feels Thank you xx
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Post mastectomy finger tingling and numbness
Has anyone experienced hand/finger numbness and tingling after mastectomy and sentinel node biopsy? I had mastectomy about six weeks ago. No chemo or radiation. My pinky and ring fingers experience numbness from time to time. I understand numbness in the armpit or chest area is normal. What about numbness in the hands and…
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PASH
Hi Just wondering if there is anyone that is dealing with PASH and would love to discuss whom they are seeing and what direction their surgeon is taking. If you know of other websites or physicians that deal with PASH in the Chicago or the NorthShore area would like if you could provide that info. Found lump two years ago,…
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Drain vs no drain
I assumed I would have drains after my mastectomy, but my surgeon says he prefers not to use them and we will greatly reduce risk of infection. What is your experience if you didn’t have drains?? Did you have seroma?
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Before surgery, looking for connection
I am 37 and was recently diagnosed with DCIS ER+ and recommended to have a lumpectomy, radiation and hormone therapy. I am very concerned and resistant to radiation and hormone therapy, but will deal with those decisions after the surgery. I am American who has been living in a foreign country for 10 years, so I am also…
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Lump in armpit after double mastecomy
Hi, I had a my double mastectomy 2 years ago. I was diagnosed with POS/POS/Neg cancer. I had one 3cm lump and lots of specs that would have been too hard to biopsy all of them. This October I felt a lump in my armpit. I had my ultrasound yesterday. They said they think its fat necrosis but want to biopsy it because there…
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Northeast Ohio Plastic Surgeon Recommendations
I’m looking for recommendations for a new plastic surgeon. I had a bilateral mastectomy & reconstruction surgery 12 years ago. I loved my plastic surgeon, but he has since retired. I haven’t seen anyone in a few years and I’m considering explant surgery with DIEP reconstruction. Any fellow Northeast Ohio survivors that can…
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Anyone w/ osteopenia NOT taking preventive medication?
My first baseline DEXA scan was normal for my age. My first DEXA one year after taking Femara, then switching to Arimidex, showed -12% change in bone density in two areas (now osteopenia) and -16% change in one femoral neck (T-score 2.4, just one tenth away from osteporosis). I go to a very prestigious hospital and have a…
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Herceptin alone or (Herceptin + Perjeta) together
Hi I am a 54-year-old female, and I was diagnosed with HER2-positive breast cancer last April. I completed 8 cycles of TCHP (Taxotere (docetaxel), Paraplatin (carboplatin), Herceptin (trastuzumab), and Perjeta (pertuzumab)] treatment and then underwent surgery to remove the cancer along with 5 lymph nodes. I am scheduled…
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Anyone have 2 different BC diagnosed at the same time?!?!
I had originally been diagnosed with ADH with papillary changes. Was told it was "uncommon and complex". Decided to go to MDA for second opinion. 1 month later they redo my MRI and find thr ADH area is 10 cm and diffuse, and second breast now has NME. Biopsy determines 10 cm is DCIS grade 3, ER/PR+/HER2- and other NME is…
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Spookiesmom
Hi everyone, I hope it's ok to post this here. It's taken me a long while to get up the courage to post anything. I'm spookiesmom's daughter. I've read a few of your kind comments about her passing both here and in some of the other threads. Today is her birthday, though, so I just kinda wanted to… I don't know…. read some…
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How do you feel about the "battle" terminology used about managing a breast cancer diagnosis?
How do you feel about the battle terminology (fight, warrior, strong) used about managing a breast cancer diagnosis? Take our poll and share your experiences below.
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Starting Chemo September and October 2024 Support Thread
Join us here to support one another, share experiences, and ask questions. We're all here for you. What is the type of chemo and regimen you'll be doing? When do you start? Share your thoughts and get support!
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BRCA2 negative and now positive
Hello, I was first diagnosed in 2015 with early stage IIb. I had genetic testing done at the time and was negative for all mutations including BRCA1 and 2. I had a recurrence in 2022 and I had the Caris test done on the tumor and again no BRCA found. Just within the last month I had a PET scan turn up some swollen lymph…
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BRCA2 negative and now positive
Hi I posted this in Genetic testing but thought I would post her too. Hello, I was first diagnosed in 2015 with early stage IIb. I had genetic testing done at the time and was negative for all mutations including BRCA1 and 2. I had a recurrence in 2022 and I had the Caris test done on the tumor and again no BRCA found.…
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Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
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Letdown feeling with discharge
Hi everyone, I am 36 years old, 6 years post hysterectomy. A couple weeks ago my breasts both started to become very tender, like they do when you start producing milk. It’s gotten bad enough it hurts to take my bra off, or rub up against anything. Today I had the letdown feeling. Went to check and I had a small amount of…
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Triple Negative Breast cancer with brain metastasis
My wife was on Trodelvy and showed no progression in the body and brain during the last scans. But her latest MRI is showing new brain Mets though she’s asymptomatic and the doctor is wondering if they should stop Trodelvy. Has anyone had this situation with your loved ones and has Trodelvy pumped straight to the brain via…
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Anyone have acceleration radiation?
Hi, I'm new here. My biopsy result was DCIS stage 0. A lumpectomy was performed, my surgeon said no further surgery is needed. Radiation is next but the thought of five days a week for six weeks depresses me. Has anyone did the acceleration radiation? I could handle that to shorten treatment. Can we firmly request it or…
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Verzenio stage 2 or3
Has anyone taking Verzenio that is stage 2 or 3 done a dose reduction? Does anyone know if a dose reduction affects the effectiveness of it when taking as a preventative when you are stage 2 or 3? I talked to my physician and pharmacist about a possible dose reduction due to issues with D. The D is not terrible for me, but…
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Hat
does anyone wear a wig or a sleep cap
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Joint pain
Has anyone on Anastrozole had knee joint pain in the middle of the night? I have severe knee pain but only between 2-4am every night. Very odd since I have no joint pain any other time of the day.
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*** UPDATE ** 5/31/2024
UPDATE 5/31/2024: Had double mastectomy 4/25. Great news. Path report showed clear margins! Thank God. Thank you for your thoughts and prayers. Haven't been able to visit my husband in Memory Care but will go this Sunday with my daughter. He is going downhill more rapidly. So sad to watch my once strong Marine going…
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2nd time around - mammogram showed a mass
Hi all - I had DCIS in right breast in 2008, 2 lumpectomies and radiation and fine every since. I started having ultrasound along with mammogram a few years back upon recommendation of my surgeon. This year, I scheduled mammogram but could not get u/s till March. Mammogram usually shows architectural distortion, scar…
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Dx 2003. IDC. ER+/PR+. HR 2 Neg
Had a "mole" removed on breast - (same breast where original cancer was) (3 wks ago) & path report from local hospital then sent biopsy out to The Cleveland Lab. No concrete explanation from my breast md except "perhaps something to do w blood vessels". Assured it was not cancer in July 2024 by same breast md. Advised it…
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Worried About Breast Cancer Spread To Skin
Hi everyone, I am now worried about a small flat pink oval patch of skin about 4mm across in size that has suddenly come to my attention on the back of my hand. It looks a bit rough and scaly and I haven't had anything like it before. Has anyone had secondary subcutaneous breast cancer? Yet another visit to a medic will be…
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Scared!
Hello all! Scared!! Found a lump the other day in my 12-year post diagnosis breast. I had DMX, followed by chemo, bilateral reconstruction, a fat graft transfer and 10 years of anastrazole. At the time, I was stage 2 grade 1 and no LVI. I saw my primary today and was referred to our local breast cancer center, but I can't…