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TC vs AC vs TACT chemo regime
What is the best chemo regime for stage IIB, hr+ pr + her2- with 2 out of 15 nodes positive grade III tumour with mastectomy done ?
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Mastectomy after radiation - healing issues?
Hi there! New to the forum. Was diagnosed with DCIS a year ago and had 2 lumpectomy surgeries (to get good margins) plus radiation. Now a year later, they have found Atypical Lobular Hyperplasia in my other breast. Looking at another surgery, possibly more?, heightened screening and probably medication for estrogen…
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RSO is helping bring up my #s/lower tumor markers
Has anyone started to use RSO? I have mets again for the second time after a 2016 breast cancer dx. I had the lump taken out and the cancer was estr/proges + /her2-neg. I was taking anastrozal first for two years, 2019 it was the first met and then took ibrance/fasoldex, stage 4. The studies online with that mix states…
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September 2024 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Stomach issues & severe weightloss
Hi all, I’m hoping that one of you has had similar issues as my doctors seem stumped. I was initially diagnosed in 2011 and had a double mastectomy and chemo. In 2019 I was diagnosed with metastatic cancer in my bones and lungs. I was on Ibrance and Faslodex for almost 4 years. I gained 20 lbs due to the swelling in my…
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I may have breast cancer
47 y o found lump right breast size of a tennis ball 11/04/24. Buy 11/06/24 sore hurts to wear a bra, bruised properly from always checking it. Extreme fatigue x1 month, black under eyes. I don't have a PCP or Gyn. Or good insurance . Was so hard to find someone to see me with out having to see a Gyn/PCP referral. Finally…
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IDC and Mental Health
Hello, I've been recently Dx with IDC Grade 2, ER+, PR+, HER2+ as well as DCIS on left breast and also managing Major Depression Disorder, Generalized Anxiety Disorder, and PTSD. I've had my crying episodes and everyone I have talked with says to have a positive attitude. In my experience having a positive attitude is…
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Bone lesion with no lymph node involvement
Hi everyone, I was diagnosed with invasive lobular breast cancer (ER+/PR+/HER2-) in January 2024. My oncologist says it’s closer to luminal A than B, with a Ki-67 ranging from 10% to 40%. I went through chemo, which reduced my tumor by about 80%, and had a quadrantectomy with clear surgical margins and negative lymph…
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Developing Asymmetry
I have a 3 week wait until my breast MRI and feeling nervous after mammogram showed developing asymmetry with dense breast tissue and ultrasound showed no sonographic correlate. I feel a definite mass on that side so I am confused that ultrasound showed nothing. I’ve also had once instance of bleeding from that nipple.
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Breast reconstruction..which option is best, especially if you had radiation
Hi everyone, my name is Andy. I had a mastectomy on my left breast in March 2023 and have just consulted a plastic surgeon about reconstruction options. Can anyone who has had implants, flap-fat grafting, or DIEP flap share their experiences with me? I am kind of indecisive, but I would love to go for fat grafting, but I…
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Finishing verzenio
I have just finished two years of abemaciclib, following on from surgery, chemo and radiotherapy. I was lucky that just as I finished radiotherapy, Verzinio was approved in the UK for stage 3 BC patients with high risk of recurrence. Given the pretty awful side effects as well as the timing, it means that there aren't many…
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Stage 4 with peritoneal carcinamatosis (sp)
After 14 years my cancer came back with a vengeance. I didn't want chemo again but they convinced me to try abema and an aromatase inhibitor. It's not too bad so far. My biggest problem is that I live with a narcissist and I'm tired of fighting for my needs or even my wants. They say this regimen could give me 2-5 years. I…
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Calling all triple negative breast cancer patients in the UK
With so many forums and threads on this site to go through for information, I thought it would be a good idea for all of us in the UK to form a forum specifically for us, and to give our details and experiences in a compact manner. Anyone else in the world is welcome to join in. I was diagnosed with a very large tumour,…
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Gemzar
Hi everyone! I had my first dose of Doxil last week and had an immediate anaphylaxis reation. My Oncologist said we can rechallenge the Doxil after premedicating with steroids but I am too afraid. I will be starting on Gemzar next week. I cannot find any recent postings about this drug. My Oncologist said other than…
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Seriously? First IDC, then DCIS, now possible DCIS again.
Has anyone had multiple new DCIS primaries rather than recurrences? I had IDC in my left breast (treated with lumpectomy and radiation ) in 2011, DCIS in left breast (treated with left-side mastectomy) in 2021, and today my radiologist found new calcifications in my right breast. I'm having a biopsy on Wednesday. She…
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Zometa side effects
I will be having my first infusion of Zometa this week. Has anyone had any side effects from Zometa? I hope to be able to travel a few days after and to go to work the next day and wonder if this is a reasonable plan.
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BCO In Memoriam thread, Part 2
(The original BCO In Memoriam thread started by Milica has gotten too long and is difficult to load or make additions. We need to start Part 2 of this thread, starting 5/3, 2023 to make it easier to load in this new platform. The Original thread (Part 1) will remain and can be accessed for viewing but will not allow for…
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MBC Zoom Meetups: Register Here to Share Face-to-Face
Please join us for one of our Zoom Meetups -- register by clicking the links below: VIRTUAL MEETUP | Do you have metastatic breast cancer (MBC; also called stage IV)? Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST VIRTUAL MEETUP | Under 45 with metastatic breast cancer Register:…
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upper back pain
Hi lovely community, I have been reading in the forum for a few years and found this a wealth of information, but never properly registered, so this is my first ever post. I am from the UK, am 53 years old, am married and have one cat. I got diagnosed with ILC (stage 2, Grade 2) at age 46, had surgery (lumpectomy),…
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Hypertrophic cardiomyopathy and breast cancer
I am really scared that hormone therapy will make my heart condition worse. But if I don't take it the cancer might come back.
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Life After Hysterectomy, Mastectomy and Anastzole
A little back story. I was diagnosed at the age of 41 with ER+ Invasive Ductal Carcinoma in 2018. I had a lumpectomy, 33 radiation treatments and then took Tamoxifen religiously for 4 years. Just when I was starting to feel back to myself and like I had this thing beat, I found out almost 4 years to the day that it came…
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Breast reconstruction implant or diep
I am having a mastectomy next month on my right breast, the lump is 3 to 5mm and I am a b cup. They are planning to do the reconstruction at the same time so I need to decide which I want, implant or flap from my tummy if i have enough fat. I don't know yet if I'm having radiotherapy after, they are taking out a lymp node…
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Cryoablation Therapy
I read this interesting article about the effectiveness of cryoablation therapy combined with immunotherapy. I might consider trying the Williams Cancer Institute if I have progression. Anyone else familiar with cryoablation?
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"Roll Call" for those who've stopped Hormonal Therapy early - short post to share status?
If you quit or reduced hormone therapy and don't mind sharing future status at least once a year, could you share concisely current cancer status (no evidence of disease, metastisis, new breast cancer) or other health facts? This will give an easy to follow thread of results of quitting. It is such a gut wrenching decision…
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Enhertu start
Hi everyone, I'm starting a low dose of Enhertu today, been resisting for a while as I'm more than done with hair loss and any more reduction in quality of life. Side effects don't seem to be consistent with most patients I've observed from research, am very trepidatious. Any thoughts? Thanks
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Concerned about possible symptoms
I had a radical double mastectomy in 2015, tissue expander, and the swap a year later. The last few months I've had sharp pain in the whole region, different areas. Very brief and mild but frequent and unexplained. I don't know what normally happens after reconstruction, long term. Has anyone had this experience? I also…
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Seeking Advice on Breast Reconstruction After TNBC Recurrence
Hello everyone, I was initially diagnosed with triple-negative breast cancer (TNBC) 11 years ago and underwent treatment at that time. Recently, I’ve been informed that the cancer has returned, but it’s still in the early stages. My doctor has suggested that I consider breast reconstruction surgery, but I’m currently…
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Letrozole Side effects-- throaty
Have been taking letrozole for about 4 months after DCIS (w/clear margins), and preventative radiation treatment. Seem to be free of noticeable side effects except it appears to cause a cough and a 'drippy' feeling in the back of my throat. I confirmed this by going off it for 2 weeks, when these symptoms disappeared. Has…
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DCIS stage 0 grade 3 ER + Lumpectomy and Radiation, clean lymph nodes
The Dr. gave me the choice lumpectomy or mastectomy. As she said it was caught early and still inside the duct I picked lumpectomy. Surgery went well, no complications, clean margins, clean lymph nodes etc. Did Radiation and because of the grade AI drugs - Oncologist said 50% chance it will come back. She originally told…
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Have MBC and looking for advice re. caring for a loved one/friend
Hi everyone, I'm new to this forum. Diagnosed with Stage 4 Mets to bone, which started out with breast cancer. Now it spread to my thorasic, lumber, and upper cervical spine. I have a private FB group to share my journey with family and friends. I would also like to join a community group for some more support. With that…