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Difference between recurrence and new primary cancer
How do they tell the difference between a new primary cancer and a recurrence of the old cancer. I had ILC in 2017, treated with lumpectomy and radiation. I stupidly refused antiestrogens because I thought I would be OK. They have now found another tumour in the other breast, but say it's ductal this time. Has anyone else…
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Our treatment histories
Hello, So far, I've been a silent member only, so this is my first post. I have been following many discussions regularly, and found this forum an incredibly helpful and encouraging place. I was wondering if we could have a thread to collect our treatment histories? Which drugs we've been on, how long we've been on each,…
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Mucinous Carcinoma of the breast
On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast. When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60. I am neither. I am 51 years…
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CHEK2 Mutation
I was at my gastroenterologist last week. He passed on the following news adding that this is the first time (praticing over 30 years) that he has ever seen a risk being removed from guidelines. In August of this year, the National Comprehensive Cancer Network (NCCN) guidelines removed the warning that a CHEK2 mutation…
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Postmenopausal bleeding after stopping tamoxifen
I was diagnosed at age 47 and was on tamoxifen for just over 3 years, which I recently stopped. Was perimenopausal upon starting it and stayed that way for over a year. I'm 51 now and have not had a period for 25 months. Well, 3 days ago, I started what looks and is acting like a period. Was heavy for 2 days and is now…
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carnivore diet
Hello I just wonder if anyone from you is or was on a carnivore diet before, during or after the breast cancer diagnosis. I would like to hear from you. Ata
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DCIS Grade 2 Diagnosis
Hi all, this is my first time posting here and am so grateful that this forum exists. My wife has had an incredibly stressful few months to say the least. In September she went in for her yearly mammogram and a suspicious area was identified in her right breast. She subsequently had an ultrasound, biopsies and MRI and was…
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Tamoxifen withdrawal symptoms
I`m 38 years old and I have been on Tamoxifen for 5 years.Now has been a week without it and I`m not feeling too good.Does anyone know about withdrawal symptoms?
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Taxol liver toxicity
Hi , my name is Gaudys . Recently Dx with inflammatory breast Cancer , ER 100% +, PR -, Her2 -, grade 3. Currently on my chemo , liver enzymes are high and my Dr decreased taxol by 20% , made me worried about treatment efficiency on shrinking my tumor . Anyone on the same boat? I also have moderate neuropathy as a side…
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Anyone else currently in chemo?
Hi everyone, Me again Got through my second round of AC, just wondered if anyone else is currently going through it, just wanted some advice on how it’s mentally taking a toll and any advice on that? Thank you for any advice xx
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Any Metastases to the Internal Mammary Nodes Survivors?
I want to connect with anyone who has gone through what I have. I am almost a year out from ACT chemo and 8 wks of radiation. Having my first PET scan since all of that and facing the dreaded Fear coming up once again...
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Follow up imaging recommendations post bilateral mastectomy
what is the follow up imaging post mastectomy? MRI ? There is still residual breast tissue post mastectomy! My oncologist is very casual about it and tells me there’s nothing to worry about. My high grade DCIS was grade 3 comedeonecrosis ! No need for tamoxifen (my score was 3+estrogen positive! ) worried about the lack of…
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First Time Taking Low Dose Tamoxifen - Side Effects
I started 5mg of Tamoxifen today and within a few hours had several side effects: dry mouth, headache, light headedness, nausea, bad tinnitus, and feeling cold. It seemed pretty quick. Has anyone else developed side effects so quickly? Thank you!
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Spring/Summer 2024 Radiation thread
Gather here to share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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tubular carcinoma
Anyone out there also diagnosed with tubular carcinoma? I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis. If you have tubular carcinoma, I am wondering about your treatment. I had lumpectomy, radiation, and tamoxifen. I am curious to know if all of this treatment is necessary…
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Poll: How are you feeling as we start the New Year?
How are you feeling as we approach the end of 2024 and the beginning of 2025? Take our poll on what you most feel this year, and share more below in the conversation.
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After first shot of Lupron
Hi I am new to this forum. My oncologist recommended a course for Lupron shoot every 3 months for 5 years as I am premenopausal. Then add Tamoxifen for 5 years after my radiation, which is schedule to start next week. The Lupron shoot was done in the middle of my cycle so I had my period at the regular time. But instead of…
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Delayed allergic reaction to Taxotere
Has anyone had a delayed allergic reaction to Taxotere? I had a severe reaction 9 days after my 3rd treatment of Taxotere. I thought I was having a heart attack, it turned out to be a severe reaction. It started with hives all over my head then moved to my arms. I was taken to the hospital by ambulance and they gave me…
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The dumbest things people have said to you/about you
Ok, I know, it might sound mean to make fun of people or call them "stupid" or "idiots". But I am sure that in your journey you had quite a bit of stupid/insensitive or plain dumb stuff told to you. And you wanted to just get those people by their collar and shake them real well (or maybe who knows, just give them a good…
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Anyone with enlarged mediastinal lymph node?
I was diagnosed with IDC 11/14/21. Surgery has not ben completed but biopsy showed HR+, HER2-, grade 1. Recent PET/CT showed enlarged (2.5cm) superior mediastinal lymph node. There was no metabolic activity shown on PET or, FDG uptake was low enough to classify it as non-malignant. The Radiologist made no recommendation…
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Has anyone here declined aromatase inhibitors?
I am 70 and recently had a lumpectomy for stage 1 invasive ductal carcinoma, 7mm. No lymph nodes involved. My oncologist prescribed anastrozole but I refuse to take it. I've done my homework and it's a quality of life issue for me. I already have mild arthritis, osteoporosis and thinning hair. I don't need more of that and…
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SLNB pain
Hi and happy holidays (or at least coping holidays—whatever we can muster at this point, I think), I just wondered if anyone had any thoughts or remedies or experiences to help me think through my SLNB. I had a delayed SLNB, so I got it after the mastectomy. Well, it hurts so much more than I had ever imagined. I know that…
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Verzenio and hair loss.
I’m going to be starting verzenio in a few days and I read that 30% of people who take this medication experience hair loss. I asked the pharmacist about this and he made it sound like I could go completely bald again like I was from chemo. It sounded like he was reading from a script and I’m not sure if he really knew…
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Upper back pain, tingling and numbness in left arm and both feet
Good morning, I haven’t posted here in a while but, I do check in to read the posts from time to time to gain knowledge and peace. I’m very thankful for the ladies here, though I wish none of us were here. So, if I could get some of you to offer advice, prayers, or experiences I would appreciate it. So, in early October I…
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Breast MRI call back
I had an mri a month ago. I finally called my Dr to get the results. I was told over the phone no cancer but I could schedule an appointment to discuss. I put it off because of hearing no cancer but yesterday I got a call to find out why I haven’t booked an appointment. (??). So now I’m going in on Monday and I’m not even…
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Celebrex/Celecoxib
I'm just curious as to who else is taking Celecoxib. I have arthritis but am really taking it as an anti-inflammatory that I hope will delay progression. I've been taking it daily since last June but today a Physician's Assistant refused to renew my prescription. Her reasoning was that my kidney numbers on the GFR test are…
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Small asymmetry in tissue and scared
hi! I’m f22 and felt something asymmetrical in my left breast a few months ago. I do acknowledge I have a lot of health anxiety, so things like this are blown out of proportion. I have no family history or risk factors. A couple months ago in my left breast, right above where the top of my areola ends, when I press in I…
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Spinal cancer symptoms??
I would like to know if anyone has experienced severe rectal pain and burning and then diagnosed with spinal mets. I had ILC in the left breast and had a mastectomy in January 2023. I had radiation in May and June 2023. There was spread to one node. I was placed on Anastrozole, changed to Exemestane and then finally to…
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Chest tightness - post Bilateral Mastectomy
I've done a search, and have come up empty handed.....so I'm asking those of you who have had bilateral mastectomies (without reconstruction)......what about chest tightness???? I am now 11 days past my BMX. Two (of four) drains were removed three days ago, and the tightness wasn't so bad then (otherwise, I would have…