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Newly Diagnosed... Scared and Sad
Hello all newly diagnosed. Ductal Carcinoma 2 cm Pos Hrz, 4 cm Neg Hrz. Cancer cells in one lymph node. I am awaiting my Onocology appt. this Thursday. I have such a hard time sleeping, not lots of support since I am a single woman and family…no. So it is very treatable which is good but the thought of getting a masectomy…
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Guardant 360 testing
I didn't see a top for the Guardant testing so I thought I'd start one. Does anyone know what it means when the first Guardant test showed a PIK3CA mutation, and then ten months later, it doesn't show that? I might need to change my treatment if I no longer have this mutation!
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Incision didn't heal after lumpectomy and reconstruction surgery
Hello, September 12, 2024 I had a lumpectomy with reconstruction on my right breast. Cancer was removed. Unfortunately I have to have a second surgery to close up the wound, the incision did not heal and has opened up where wound care, wound vac was not going to heal the incision. My care team assures me there is no…
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Success Stories!
Every now and then I read a post on this forum that talks about somebody who has lived a long time with disease. I know there have even been threads with many node positive success stories and stage IV survival stories. These have been the most uplifting influences for me on my journey. In a world of breast cancer where…
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Kisqali Price disparity
I am 62 years old lady newly diagnosed with mets to bone beast cancer, I lost my insurance coverage for the remaining of this year because I reached the limit, and I will have to buy the medication out of my own pocket which is very expensive. but I was wondering, if i can buy the medication from other places since the…
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Feelings and insights about Breast Cancer Awareness Month as people with MBC
October is Breast Cancer Awareness month, which can be an overwhelming time for many women and men affected by breast cancer, especially for those with a metastatic breast cancer diagnosis. We'd really like to have everyone discuss here what you think and feel approaching this month. Thank you ❤️
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October 2024 Surgery Support thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Cold Capping treatment
How do I get this Cold Capping treatment at my hospital? I've done research on it & I've found that DigniCap & Paxman have the automated machines, but my hospital isn't one of them. (the closest place is over an hour away). What do I do? I'm on Medicare & it does only cover the automated ones. My 1st treatment is next…
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Tips for Getting Through AC Chemo - (Adriamycin & Cytoxan)
Adriamycin & Cytoxan, also known as "AC", also known as "Red Devil", is a commonly prescribed chemo regimen. Below is a primer for patients who're undergoing this treatment. Tips for Managing Side Effects on AC Chemo: - Nausea is particularly tough with this regimen. Take anti-nausea meds around the clock, every 3 hours,…
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18 plus years now
I like to post here occasionally, this forum helped me a lot early in my dx. I am living well with stage v for over 18 years. I am triple positive and on herceptin and Aromasin. For the last nine years I have had no signs of cancer. The last time the cancer was active it was in my bones and lungs. I know stories like this…
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2 surgeries later...
Was diagnosed with DCIS in September 2023. Was told it was high chance of spreading but was DCIS so not to worry as caught it early enough just to whip it out. Thats where it all started to go downhill. Went in a week before surgery to have a magseed placed to mark the target, the radiographer seemed to be having some…
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How do you cope with the fear?
I'm just wondering how everyone copes with this diagnosis and the uncertainty of it? I am 39 years old with a 2 year old daughter and was diagnosed with stage 2 IDC 7 months ago, and I just can't seem to cope with the fear of not being around for my daughter. My oncotype score says I have a 25 percent chance of distant…
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Odd feeling rib area
Over the past week experiencing odd sensation in under right ribs/abdomen. Sporadic sensations, not really pain, lasting less than a minute or two. Ranges from upper right, below bra line to under right ribs to lower center abdomen. Sometimes feels like pulled muscle, other times like winded, or just weird feeling. Feels…
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ultrasound centers
Are there any breast imaging centers in US, which use ultrasound as primary breast cancer screen tool instead of mammogram? Thanks.
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Sports bra recommendations
Hi there, Does anyone have suggestions for a sports bra they love? I had a lumpectomy, some lymph nodes removed, and radiation last year. Overall, I'm doing really well but the surgery area is still sensitive. I bought the only "sports bra" that our local bc garment store had to offer. It's perfect for day to day (comfy…
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What do you want people to know about Breast Cancer Awareness Month?
As we enter October and Breast Cancer Awareness Month, you'll hear a lot of words used to talk about breast cancer and people who have it. Some of these words might make you feel strong and supported, while others might make you feel worried or left out. Words like "fight" and "battle" can inspire some people — they can…
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Looking to connect with other young ladies with MBC
Hello I’m new here, I’m 33 Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy, radiation. I’m now on verzenio and anastrozole. I fell well so far. On my recent routine blood work my ca 27-29 goes up from 26 to 44 Unfortunately Scans show multifocal bone…
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Ixempra
After failing Kisqali/aromasin, abraxane and halaven, I’ve now begun my journey with Ixempra. I get treatments once every 3 weeks. Tuesday was my first tx - in between meltdowns (due to report of progression), I slept a lot. Until that night. I was up all night long. I’m sure it was the steroids in the premeds. Wednesday…
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Dark sense of humor?
Is anyone out there cracking bald or death jokes or am I just the morbid one? For example, when I die, I want my husband to put this shirt on me before the coroner arrives.
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Replacing implants after 15 years
Has anyone had implants replaced? I would appreciate sharing about the experience.
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Focal LVI
My pathology report says lymphovascular invasion present, focal. What does focal mean? They also found 0.3 micrometastis in the sentinal lymph node. Does this mean I have cancer cells spreading in my blood?
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Super scared and depressed
I have dense breasts and have kept up with annual Mammos. Last month, I had a mammo, diagnostic mammo, ultrasound, and stereotactic biopsy. Results came back as DCIS Grade 2. I just had a breast MRI and it's showing another area in the same breast (no suspicion of malignancy in the right) so they want an MRI-guided biopsy…
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Anyone decline chemo?
Hi! I will give a little background. I’m 49 y/o and was dx with stage 1a Invasive Lobular Ca Er/Pr + and HER2-, node negative. I had a lumpectomy with clear margins. I am perimenopausal. My initial treatment plan by team was radiation with 5 years of hormone blockers. I was surprised by oncologist when I went to discuss…
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Team ILC Warriors
I thought I would start a new thread for those DX with ILC. I belong to a wonderful IDC Warrior group here and love it. It is a large group whom I love but I am the only one with ILC. So, feel like I need to get to know some of the women out there dealing with this sneaky lurking dang disease. I dont see nearly as many of…
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Moved: Tips and tricks on addressing Side Effects
This discussion has been moved.
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New treatment
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Newly Diagnosed with ILC
Hi everyone, it’s still feels strange to say that I have breast cancer. I’ve had a long journey with breast screenings, biopsies and surgeries. In 2017 I was diagnosed with LCIS which I was told was not cancer. I was given the option of preventive mastectomy or the watch and wait option as I had no genes for cancer,…
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Scared. Breast edema after mastectomy with reconstruction
Back on the forum after 1.5 years… I was diagnosed with TNBC 2 years ago: 3cm, no lymph node invasion. I had 16 Chemo+6 Keytruda, double mastectomy with reconstruction, and PCR. All 23 nodes were removed, without infiltration signs. I had no Rads or other treatment since. In January 2024 I had another surgery on the same…
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Radiation
I was diagnosed with DCIS stage 0 in July / 24. I had a lumpectomy in 8/24 and I just started radiation on10/9/24. Luckily I only have to have 5 sessions . I am HR / PR Negative so I won’t have to take any medication. When I did my radiation yesterday Later in the day I noticed I was sore and had a swollen lymph node . Was…
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Pulsing/Vibrating sensation in lumpectomy breast
Just wondering if anyone has experienced a pulsing type vibrating sensation in their breast following surgery and radiation and what they did about it? I am 4 months post-lumpectomy and 2 months post-radiation and for the last 4 days I have had a strange, constant, high speed vibrating sensation in the lumpectomy area. Is…