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Need help thinking through AI with ovarian suppression
My MO would like me to start an AI and ovarian suppression/removal. I am 42. Onc score was 31 for IDC with lobular component. No nodes. I understand that I do have a risk of recurrence but I also value an active lifestyle. I had no question mentally regarding the mastectomy and chemo. I do not feel peaceful about the…
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Obesity going into DIEP/Reconstruction
I am currently undergoing chemotherapy. I will have a bilateral mastectomy then reconstruction with DIEP. I am not sure I understand the timeline, it seems there is alot of dancing around regarding my weight. I am currently 41 BMI. Due to loss of insurance and gaining new I have not been able to talk to either surgeon. I…
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FDA Approves Dato-DXd for advanced-stage HR+, HER2- breast cancer
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23 Years of Stage 4!
Today is the first day of my 23rd year after being diagnosed with Stage 4 MBC de novo. The past few years have been very challenging since my body has been protesting against so much chemo, but I am doing my best to hang in here. Sending love to all of you! Denise
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Newly Diagnosed with Invasive Ductal - How do you tell your kids?
Good afternoon. I just got the call that the biopsy confirmed Invasive Ductal Carcinoma. They said that I have to wait for my appointment with the surgeon for me to find out any other details. I have three adult children, the youngest being a senior in college 2500 miles away. I did not let them know that it was a…
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Questions regarding Metastatic BC
Previously had stage 2 Invasive Ductal Carcinoma=lumpectomy, 7 weeks radiation, then tamoxifen (stopped taking after 1.5 yrs).BRACA testing at this time was negative. OncoDX number was 11. Fast forward 7 years, It is now Metastatic. I am ER +, PR+, HERS2-. PET Scan a couple days ago, received results ..alot of "no's/none"…
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IBC lounge: roll call, support and just a good place to hang out
Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are: I'll go first: dx June…
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Pik3ca E110del mutation? it's rare
anyone have a PIK3CA E110del mutation? I do. it's rare, like 1 in 4000 Pik3ca mutation is E110del. it kept me out of a clinical trial because I didn't have one of the top 10 mutations. arghghgh. we're going to try Piqray anyways. arghagrhgargharghghhgh. Same thing happened with my ESR1 mutation as well. I guess I'm…
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Zometa and knee replacement surgery?
I am scheduled for my first Zometa infusion next week and I have a partial knee replacement ia month later (and my pre-op med review is two weeks before the surgery). Does anyone know anything about having bone surgery within a month of Zometa? Want to get this surgery behind me so I can get back outside!
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Afinitor/Aromasin
I am waiting for my pills to arrive and fearful of starting a chemo after almost seven years of anti-hormones. I immediately started looking for info on this site, and the Afinitor topic was started in Jan. 8, 2012 with 35 pages of comments to go through. Do you think it is possible to start a new topic now that this med…
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The Hermit Club
Hey all.....just got done reading a great thread under this topic about feeling like a hermit through this process, was wondering who else out there feels like cocooning themselves right now? I'm mid treatment with my chemo, and have basically isolated myself somewhat because I feel that all my energy is expended just…
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Radiation as Palliative Care
Hello everyone. I hope it's ok that I'm starting this thread because I did a search and couldn't find anything specific to this topic. I'm looking for feedback from anyone who has received Radiation treatment for palliative purposes only. What was your experience with it? Did it actually help ease the pain or did it…
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Osteoporosis and Tamoxifen
I am wondering if there is anyone out there who has been taking Tamoxifen and has been diagnosed with Osteoporosis. I am 48 and just had a DEXA scan, and it confirms Osteoporosis. :( My oncologist said that typically it shouldn't cause issues in pre-menopausal women, but there are some paradoxical instances where it does!…
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Pissed off.
I was recently diagnosed with invasive ductal carcinoma. I've decided if this can come back, I want a double mastectomy. My mother in law asks me what does your husband think of that? My response, he is supporting me in whatever I decided to do. Then she says, Remember we're all going through this. I want to say NO YOUR…
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walnut-sized lump at chest wall
i went in for an ultrasound yesterday and the radiologist told me that the lump she sees and feels is “more than likely” cancerous - especially because of a lymph node in my armpit that looks like its swollen. Why would she tell me this without a biopsy? The images didn't show any fingers sprouting it was just a black lump…
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Recurrence in same breast previous 2 lumpectomies - mastectomy?
I have just been dx with IDC, tumor 1.2 cm grade 2, in same breast that I had DCIS, 2 lumpectomies and radiation 16 years ago. We are talking mastectomy, but wondering if anyone ever had a small tumor in a previously treated breast and just had lumpectomy? Some scattered DCIS was also found on the biopsy this month. Just…
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Bone and joint pain after tamoxifen
I concluded my 5 year regimen of Tamoxifen in August 2024. While taking Tamoxifen, I had terrible bone and joint pain in my lower extremities that was only alleviated by strong pain killers. I was delighted to reach my 5 year mark, stop taking the pain killers, and remain cancer free! However this bone and joint pain…
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CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
I'm hoping there isn't another thread like this. I did a search and saw one for stage 4, but nothing for everyone else. My very special friend on BCO (Tomboy), and I have talked about a Crazy Town thread for awhile now. I know she will be happy I finally took the bull by the horns!! I wrote a little story about visiting…
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PASH
Hi Just wondering if there is anyone that is dealing with PASH and would love to discuss whom they are seeing and what direction their surgeon is taking. If you know of other websites or physicians that deal with PASH in the Chicago or the NorthShore area would like if you could provide that info. Found lump two years ago,…
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Need help in making decision on starting AI and ovarian suppression vs Tamoxifen alone
Im ER+, PR+, HER-, Stage 1 ,grade 2, 1 lymph node, post double mastectomy with oncotype of 12. The oncologist said my risk of recurrence is 13% and will go down by 2.3% if I do Chemo or take Anastrazole with ovarian suppression. As an alternative I can take Tamoxifen. I declined Chemo as 2.3% seems not significant to go…
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How about kidney stones!
I was getting ready to go to work (two days ago) when I was struck by the most incredible pain on my left side/flank. Something was very wrong. For about 30 seconds I thought I could drive myself to the ER but realized that an ambulance was needed (texted family who called 911 for me). I simply cannot describe the pain and…
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First mammo. Focal asymmetry. I'm frightened.
Hi, 51 with first mammo last week. Call today, scattered fibro glandular densities. Left breast no suspicious findings. Right breast focal asymmetry. No calcifications or architectural distortion in either breast. Benign appearing lymph nodes in both axillae. Grade B density. I go for diagnostic mammo and possible us in…
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Single Hormone Receptor Positive -> ER+/PR-/HER2-
Anyone else in this same boat? Would love input or sharing your experience. Feeling a little alone in this boat!
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Change in breast lump
When I first discovered my lump, it was about an inch deep in my breast. It's now at the surface, red and swollen. This is my fear, I've had lumps before and they always want away.
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Piqray users, what is your experience?
I just started on Piqray and Faslodex after Ibrance and Arimidex stopped being effective. I am weakly ER positive and PR negative, so I can't say it was a complete surprise that at some point that would occcur. I would be interested in hearing from others how you are doing on this very new medication. So far, the only side…
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High Grade Mucinous Carcinoma at 40
Hello everyone, My lumpectomy and sentinal node biopsy pathology report came back. It was a 1.8cm high grade mucinous carcinoma. Tumor borders were clear but there was additional DCIS 0.5mm from the border. Nodes were negative. This was found when I just finished breastfeeding. I'm 40 and all I see is information on this…
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PCOS
Hi, I have polycystic ovarian syndrome (PCOS). I have not been officially diagnosed but I most likely have HR+ breast cancer. I also have a serious history of depression. Tamoxifen interacts with my medications. I understand that ovarian function needs to be suppressed in pre-menopausal women which is why aromatase…
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Open Letter
I am a husband/ caregiver... I didn't know where this should be posted---and since my wife is going through treatment now, I just picked here. I have lurked since my wife's diagnosis and have been posting only for a few days. I can recognize a sisterhood when I see one. An army of kind souls. I am humbled by your humanity.…
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MRI Biopsy
I am 8 years out from triple negative BC and have been doing well. My last mammogram showed a very small area of concern. Watch and wait was suggested but my last cancer was very aggressive and grew quickly so I'm not inclined to watch and wait. I have asked for a biopsy but because it is so small, it will be difficult to…
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Salpingo-oophorectomy experiences and tips?
Hello, I decided to get this procedure done so I don't need to be dependent on the monthly shots. I understand that the surgery itself is pretty quick and straightforward, but I was surprised about the recovery instructions and a whole month without lifting more than 10 pounds. Also the doctor recommended two weeks off…