Recent Discussions

I had surgery 1/14/26. I think my posture has changed or something because my ribs kind of flare out. I’m not sure if this happens to everyone- I think it is pretty common? Another change is I’ve had pretty radical mood swings and my period has been erratic since my surgery. Anyone else live through feeling crazy after…

I chose to go "flat" and have both breasts removed, but I blead to much and my cancer obliterated my left breast. She took four hours on just my left breast. Of course I was asleep but my family was very worried because it was taking so long. The surgery was my greatest fear besides death in this whole thing. I worries…

Trying to decide between lumpectomy and radiation or bilateral mastectomy. Want to hear from some who have gone through each

Triple-Negative Breast Cancer Treatment: Where Are We? Dr. Lisa Carey explains the latest research on TNBC treatments. Mar 7, 2025 About 10% to 15% of breast cancers are triple-negative. This means they don’t have receptors for the hormones estrogen or progesterone, and don’t have too many HER2 proteins. So, hormonal…

Some things take time to feel. Others take time to say. They show up later. In a post sent at 2 a.m. In a reply that starts with, "I didn't know anyone else felt this way." Scanxiety that sticks around even after good news. A body that feels different, whether treatment is behind you or still ongoing. Conversations with…

Hello everyone My sister has had surgery for Stage 2b HER2+++ breast cancer and has received her second course of TCHP (Total Chemotherapy).Meanwhile, she went to the doctor because she had a slight hoarseness and cough. She is on antibiotics. She feels better and has no fever, and she doesn't feel weak except for the…

Hi everyone - it's been 10 years since I've been active in this community, so if you all have seen this question and answered it, sorry for the repeat! I'm having my implants replaced on June 25 and have chosen to have the new ones placed above the chest muscle instead of below it, which is what was done the first time.…

Hello, My original diagnosis in June 2022 was Stage IB (T2N1mi) ER-93% PR-70% HER2 - (2+ by IHC 1.0 by FISH ) Ki-67-80% I did lumpectomy and breast reduction, 4 rounds of TC, and anastrozole switched to fulvestrant due to side effects. In April of 2025, my CA27-29 spiked and imaging was ordered. Signaterra negative for…

Assuming that your tumor markers (Ca27.29, Ca15-3) have always been correlated with imaging, after covid vaccine, does anyone experience rise in tumor markers WITHOUT correlation with increase in size of tumor from imaging? Thanks. Nguyen

COVID and Flu May Activate Breast Cancer Cells in Lungs Aug 20, 2025 People with a history of breast cancer may want to consider COVID and flu vaccinations, according to the researchers. Read more…

Dear Brave Pals, I had lost my Mum to Metastatic Gallbladder Cancer at the age of 60 within 2 months of no symptoms to diagnosis to farewell. So cancer is the most dreaded word in my family. Unfortunately, last month I was diagnosed with DCIS Grade 2 (with expansive Camedo Necrosis, ER/PR+ as per my Biopsy report). They…

One of my close friend was diagnosed with Grade 3 TNBC and was given the following: Keytruda 200mg once in 3 weeks + Paclitaxel + Carboplatin X 12 +Adriamycin and Cyclophosphamide X 4. She has lost taste of food after the chemo treatment and though in remission for over 6 months, hasn't got her taste buds back, and can't…

If you’ve got surgery scheduled this May—lumpectomy, mastectomy, or something in between—this thread is for you. Not just to read. To be part of. 💗 This is where names turn into familiar faces, where “I’m nervous” gets met with “me too,” and where no one has to carry the weight of this alone. However you’re feeling right…

Hello all - Wondering if any of you can share any of your experiences regarding your BCI and what your oncologists have advised based on your results. I am nearing my 5 year mark next year for endocrine therapy and recently found out that my oncologist had run the Breast Cancer Index test on my original tumor. I am…

Hi, I’m new here and honestly not thrilled to be in this group…this is a plot twist indeed for my life. I went in for a routine mammogram in early December. The imaging, pathology, etc., is complete. I'm currently navigating a diagnosis of triple-negative apocrine-type invasive carcinoma (TNAC), Stage 2, Grade 2. The tumor…

says Invasive carcinoma, Ductal with mucinous features, Low grade, 1 of 3, Mitotic rate: low, Lymph-vascular invasion: not identified, DCIS absent, Additional findings: not identified. Pending still; ER/PR, HER2, Ki-67. My PCP will get the results on Monday 5/11/26 (it’s Saturday). PCP is Multicare in Olympia WA. As of…

Hello, i just had my exchange surgery after expanders post DMX. I had expanders filled to 550 cc. I learned today that they only were able to put in 415 cc implants due to the fact they could not get the pocket to close when a larger implant was put in. Did anyone have this experience? Not sure if this leaves me options…

Hello, I am weighing the options of treating my liver mets with either histotripsy or SBRT. I am in communication with 2 different physicians, one who treats with histotripsy and the other with SBRT. The physician that uses histotripsy is still in the process of reviewing my images, and is expected to contact me soon as to…

Does anyone else out there have experience with an Occult Primary Breast Cancer? I was diagnosed this week with Breast Cancer in a Left Axillary Lymph Node but they can't find any cancer in my breast - I've had whole breast US, breast MRI, and biopsy of two small lesions in my breast that they didn't think looked like…

Has anyone who reached NED while on Enhertu but had to stop due to side effects, gone on to achieve lasting remission (1+ years) or did your cancer return soon after?

Hi, I was diagnosed last month and have my surgery consult tomorrow. Over the past few days, I've doing a podcast deep dive and am greatly appreciative for the podcasts that I listed to from this website. What a great wealth of information! I'm happy to join your community here! (Well, not happy to have cancer but happy to…

I got fitted for my cool cap today. I start my first taxane treatment next Wednesday. I have thick hair but I did cut it to make more manageable to my chin. Looking to hear some experiences. I and so scared im not going to be able to handle it or I do it all for nothing.

Hi everyone, I’m really glad I came across this space. I’m 24 years old and was recently diagnosed with low-grade ductal carcinoma in situ (DCIS), estrogen-positive. It started when I noticed a lump in my left breast, which I honestly didn’t think much of at first. I think I was influenced by people around me—some of my…

Palliative care focuses on pain and symptom relief. Dr. Joe Straton explains why it’s appropriate for anyone with breast cancer. Palliative care is often confused with hospice care, but the two are very different. This podcast is the audio from a special Virtual Community Meetup featuring guest moderator Dr. Joe Straton.…

Hi everyone. Haven't been here in a while. I've had lymphedema in many areas of my old body now for years and years (I won't say how many :) - I wear a lot of different compression garments depending on the severity on the day, sleeves, vests etc. My question is: does anyone else have quite severe burning pain in the upper…

I was recently prescribed Augtyro (repotrectinib) because of NTRK gene fusion. When I was on Verzenio and Fulvestrant/Faslodex, tons of people had experiences and could talk through side effects. Now that I'm on a rare drug, I don't have that group. Is anyone on or been on this medication?

If radiation is part of your plan this April, this is your invitation to step in and introduce yourself. ☀️ You’ve found a space where people truly get it—and we’re ready to meet you. Whether you’re waiting for your first session, in the rhythm of daily treatments, or already ringing the bell, this is your place to check…

Hi all, Would love to start a thread for those with DCIS who chose surgery only, no RT or HR meds. I've done a lot of research and am comfortable with my decision based on my pathology and low Oncotype score. I will have monitoring twice a year, once w GYN & mammogram and once w BS & ultrasound, so should anything change…

Hello, I am really scared of receiving my recent biopsy of early stage breast cancer today and came across this site and about to turn 54 and not what I really wanted to hear. I'm just reaching out for a community who are traveling with cancer. They are not sure where it has spread or if it is contained with the 15m size…

I'm interested in hearing from people who did not have radiation or hormone therapy after a lumpectomy for DCIS