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diagnosed with DCIS - advice welcome
Hi Everyone, First time posting here. Great forum with lots of information and support, and I’m hoping to garner some after finding out today via a pathology report that I have DCIS. I had a lumpectomy back in 2016 for a papilloma that turned out to be benign, and just this past month, experienced an excruciatingly sharp,…
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The husband's and partner's corner
A gathering space for the partners of loved ones with breast cancer to discuss your unique experiences.
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Breast Reconstruction
Hello, I just had a bilateral mastectomy with immediate reconstruction. It’s been 48 hours since my surgery and I feel that both of my breasts are becoming warm to the touch closer to the armpit area. Is it normal? I don’t have fever and generally feel well recovering from the surgery. There is a lot of swelling and…
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Maybe a dumb flat question?
I had surgery Monday. Modified radical on the left and simple on the right. This may be a silly question but will my chest become more flat instead of concave? I am having a very hard time processing what I see under the bandages right now and try not to look because I just cry when I do. Will it look any better? The…
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Comfort dogs
Okay, I am just throwing this out there: does anyone else feel closer to their dog than to humans through this roller coaster journey? I have a wonderful life and great support, but my little blind shelter dog Lewie (a white poodle mix) has been constantly by my side- whether I am sleeping on the couch after chemo or in…
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PREDICT BREAST CANCER CALCULATOR : NEW VERSION V.3
Hi Everyone ! Just thought I'd share this here. Predict Breast Online has released a newer version of their survival calculator. This new version is based on women diagnosed between 2000 and 2017, vs. 1999 and 2003 for the former version. It now includes more details such as PR receptor status, radiation treatments, etc.…
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Deciding on your implant location; Subpectoral or prepectoral
Good Afternoon Group. I met with both my BS and PS this week and was not aware of some decisions I need to make. Specifically under or over the muscle. I was naive and thought it was just a done deal to go under the muscle/Sub-pectoral. Turns out this was not the case. Both surgeons made arguments for and against both…
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Pain and tightness around implant after radiation
I’m 13 months post final radiation and have extreme tightness around my implant. There isn’t a time when I don’t have an uncomfortable feeling or down right pain. Now the back story and questions. Original Dx 6/2016. Dbl mastectomy, SLN Bx, under muscle reconstruction with textured implants. Woke up feeling as if I was…
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Biopsy Results
Greetings - just diagnosed today - more testing to come. I had 2 areas biopsied via stereotactic biopsy (right breast). Area of architectural distortion came back benign - with stroll fibrosis, columnar cell change, usual ductal hyperplasia and focal features suggestive of a radial scar. Calcifications came back -…
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Revision/Corrective Reconstruction Surgery - What's Your Experience?
Please share in this thread your experiences with revision or corrective reconstruction surgery. As a reminder, we'll be hosting a webinar called Corrective Breast Reconstruction: Getting the Results You Want on July 9 at 6pm ET. You can register here:…
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Multicentric ILC
Hello, I am new to this site but hope to find support with others who have my condition. When I was first diagnosed with BC, I was optimistic based on the initial results, namely very early stage because of the tumor size. However, as I proceeded with additional testing - biopsy and MRI - the diagnosis just kept getting…
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TC vs. CMF
I had a lumpectomy a month ago. The tumor was smallish with micrometastatic carcinoma in one lymph node. The doctors initially thought that I would need radiation but not chemo, but after getting my oncotype (28), the medical oncologist is strongly recommending chemo, too. She's given me two choices: AT (4 doses, each 3…
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ADH and low dose Tamoxifen
I’m 65 years old and have had normal mammograms until this year. I had a lumpectomy last month after a biopsy indicated atypical ductal hyperplasia. Because of this and the fact that my mother, her sister, and her aunt all had breast cancer, I am now considered high risk and my oncologist is recommending low dose Tamoxifen…
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Exchange City
We love to include everyone's surgery dates - Please PM me and I will update the list to include you! The list keeps changing since we try to move forward as the dates move forward. Thanks. - Jean Useful web sites: Mentor: http://www.justbreastimplants.com/implants/mentor_specs.htm…
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Anyone take Tamoxifen after Uterine Cancer
just wondering if anyone out there has taken Tamoxifen after a hysterectomy for uterine cancer.
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Have to make a radiation decision
I have IDC…stage 1, HR+, PR+, HER2-, Grade 2. I’ve had a lumpectomy with tissue rearrangement and sentinel node biopsies. The sentinel nodes came back clear. The RO said that since I’m 73 yo and the tumor was small, 1.9 cm, that I can either have no radiation or a partial breast accelerated radiation course of 5 days. Even…
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Long term side effects of radiation theraphy
for my sister doctor suggested her for 33 sessions of radiation theraphy after mastectomy I just want to long term side effects of radiation and how soon we can go for radiation theraphy after mastectomy kindly share your experience
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ISO a really skilled surgeon
Hello, I was diagnosed Stage 1A Triple Positive IDC in 2019. Genetics showed positive for ATM mutation. Had a bilateral mastectomy with direct to implant reconstruction, three fat grafting surgeries. All well until now. I need more fat grafting AND I think I may have BII. My right foob is really swollen and irritated after…
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THIS or THAT Game
Which do you prefer....THIS or THAT? Express your preference....and then present a new question! Salty or Sweet?
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Upcoming biopsy for "subareolar mass" 1 year after mastectomy for extensive DCIS
I am trying not to get too panicky yet, and I'm more annoyed than scared at this point. I was diagnosed with DCIS in January 2023 after many years of monitoring and multiple biopsies that showed benign papillomas. I then found out I was CHEK2 positive and stepped up the monitoring with annual MRIs. I had very "busy"…
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HRT after Breast Cancer? Maybe!
I just wanted to share this information I've found. The first is a book cowritten by an oncologist, Dr Bluming, called Estrogen Matters. The second is an article he just had published in Cancer Journal entitled 'HRT after Breast Cancer - It Is Time.' I would be happy to send a copy of the article to anyone as he was kind…
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which Chemo for 2. Primary Breastcancer Hormonal + Her-
Dear Ladies, I had Hormonal + Breatcancer in 2009 T1, N1, G3, Her- which was treated with 4 EC and 12 Pacly. And 10 years Tamoxifen as I was 35 at that time. Now I have a new one in the other Breast (T1C, N?, G3, Her -) and gettin Neoadjuvant TC 6x Chemo. I am still not in Menopause. No E this time. I am living in Germany…
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Neuropathy
Hi, I am new here so I hope I am doing this correctly. I had cancer and treatment in 2013 and had taxol. I had bad neuropathy for a few years after, took gabapentin which helped reduce pain and went off the medication because I was ok. I have had the neuropathy- mostly pain-sometimes since then like once a month. The last…
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Unofficially Diagnosed?
Hi all! I am 42, and went for a diagnostic mammogram and ultrasound yesterday. I’ve been going since I was 30 since my mother had bc at the age of 40. I had noticed some tethering of the underside of my left breast and then felt around and found a new lump. I have firbrocystic breasts with multiple cysts and fibroadenomas…
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FES PET/CT scan insurance coverage
Has anyone with traditional Medicare had a FES PET/CT scan? I can’t get a definitive answer on payment for the procedure from either the hospital or CMS. Both say that an FDG PET/CT is covered so the answer is “probably.” Given the cost (more than FDG) I’m worried about having it done without knowing for sure. After two…
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Worried
Hello All, I am a 38 year old female with two small children. I have been having breast discharge (only when squeezed) since I last breastfed 3 years ago. I thought this was normal but I mentioned it at my last check up. I had a normal mammogram and ultrasound. However, they tested the fluid and found Rare atypical…
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Young Women With No Genetic Mutations Have Low Risk of Second Primary Breast Cancer
Young Women With No Genetic Mutations Have Low Risk of Second Primary Breast Cancer Jun 17, 2024 The risk of a young woman developing a second primary breast cancer is relatively low, unless she has a mutation linked to breast cancer. Read more…
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Discovering Asexuality
After starting Tamoxifen and now Anastrozole, my sex drive dwindled to a flicker. Even before my mastectomy, we were having challenges with sex. After delivering my second child as a VBAC, sex was very painful except for a limited few positions. Turned out, my uterus was prolapsing, which put my cervix at a bad angle for…
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Gene BLM pathogenic variant
Anyone with stage 1, grade 1 HR+, HER2- Invasive Ductal Carcinoma with a pathogenic BLM variant? Still waiting for final pathology after lumpectomy. With this genetic variant, a history of eczema & atopic dermatitis and numerous allergies, sensitive skin and hypermobility (connective tissue disorder), I am leaning towards…