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Advice on Funding for Lupron
New girl here. Just got the bill for my first Lupron shot. Was shocked that I was a whopping $1200 after insurance. My mastectomy was $1100! Any advice on any programs that can assist with this? A one time 1k bill is one thing but to rack that up every month is not feasible. My husband said we will figure it out but I…
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Off on a road trip with altitude
Hi friends. I have mildish most of my body lymphedema with a little swelling but not too much. I'm leaving on a road trip and DH is very concerned (more than me) about high altitudes for short periods of time. We plan on Wyoming, Colorado, Utah etc etc, all places we've been before with our little travel trailer. A couple…
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Mucinous Carcinoma of the breast
On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast. When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60. I am neither. I am 51 years…
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Experience with choosing lumpectomy or mastectomy
I am scheduled for a lumpectomy with reduction/lift in a short two weeks, and I feel like l am losing my mind worrying that I've made the wrong decision. When I was first diagnosed in June, I was totally ready to have a bilateral mastectomy and just get it over with. But, I was prescribed neoadjuvant chemotherapy, and -…
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Vaginal pain/letrozole/ can I use estrogen cream?
I've been on letrozole for 2.5 years out of the 5 that I am supposed to do. I have been going along pretty ok until the past year. I have had 3 UTI's, and the lack of estrogen has made my vaginal area very sore. It hurts to walk or bend over. I have tried at least 5 different OTC creams/suppositories, coconut oil every…
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Biopsy tomorrow
this is my first post here. Feeling completely overwhelmed. I had a mammo and u/s in January. A cyst and hypoechoic mass was seen. Went back for follow up u/s in July. Everything was stable. Advised to come back in 6 months. Birads 3. A nurse called that day and said my lifetime risk is a 28% and a second opinion is an…
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Tamoxifen vs. Ovarian Suppression & AI
Hello! I am new here, newly diagnosed and trying to navigate all this. I was diagnosed with ILC in June 2024 and opted for a bilateral mastectomy, right breast was healthy. Currently with tissue expanders, waiting for implants in a couple months. Stage 1A, tumor was 1.7cm (grade 2), high ER+/high PR+, HER2-, Ki67 15%.…
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Breast cell line
Hi, I keep reading studies online that refere to "brest cell lines", for example: MDA-MB-231, MDA-MB-468, MCF-7, and T-47D I can't understand what that really mean...if they actually matter, how do i know what cell line i have, if it is even important to know for the therapy choice. Do anybody know what I'm talking about…
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Resources for Donating your Bras and Prostheses
Dear Members, A number of you have asked for information about organizations to donate old bras and breast prostheses. We have created a list of some viable agencies that accept such donations. Please feel free to offer additional resources as you discover them and we will add them. Organizations that accept donated bras…
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Propoli for mouth sores
I just wanted to say here I'm doing propolis mouth rinse for moth sores. I recently read they were good for chemo induced mouth sores, so I tryed it out. It seem to actually work. I diluted in some water the propolis extract and rinse 2 time daily. Before having any new supplements I always read if they don't promote…
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"Tamoxifen Road" - Support and Encouragement
For those that are taking Tamoxifen, considering taking Tamoxifen and need support, and for those that have completed Tamoxifen Therapy. There is alot of good and helpful information on many threads. Thought it would be nice to have information and experiences logged together on Breastcancer.org in a main Tamoxifen thread.…
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Stressful event years before diagnosed?
Did you have a super stressful event sometime in the seven years or so before you got diagnosed? How many years before was it? I'm just wondering if there is some connection with this. A researcher told me he believes it starts from stress about seven years before.
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Mammogram if metastatic
Do you gals with metastatic disease still have annual mammograms? I can't understand why they would be necessary with ct scans every 3 to 6 months. Is the Dr just drumming up business for the hospital? What does your MO say? I haven't had one since 2017 when I thought I was all clear and 2 months later found cancer in my…
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Osteoporosis
This is my first post here. I was diagnosed on 7/22 with left side IDC, E+P-HER2- and I'm having a lumpectomy next Wednesday 8/28. No genetic markers for cancer. I've had an MRI, the Savi Scout placed yesterday, the sentinel node injection next Tuesday. This morning I had a Dexascan and my surgeon called this afternoon and…
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Recurrence with Grade 1
Wondering if anyone has had a recurrence with early stage grade 1 cancer? I usually see folks on here with recurrence after being diagnosed with grade 2 or 3. Just curious because I don't see it much in the literature for grade 1
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Young with MBC
This is a thread for those 45 and under who have been diagnosed with metastatic breast cancer, and facing the unique challenges associated with receiving this diagnosis at a young age. Please feel free to discuss here, share your story, and support each other! --Your Mods
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Change the position of my left breast after my right breast removed
I am 60 yo with DCIS stage 0 grade 2 on my right breast which was removed on May. During the healing process, i feel my left breast moved more toward to the left. My nipple is kind of erected most of time which is uncomfortable. I slept on my back without the mastectomy foam on my right breast and I feel aching of my left…
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Double Mastectomy 10 Years Later
Hello Ladies! When I was diagnosed in 2014, my son was a toddler and I could not afford the recovery time. I so wanted to get both breast done. I actually wanted to go smaller. I have always had big dense breasts. Now I've put on a ton of weight from menopause and my breast are out of control as well as each shaped…
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Discordant finding - sent to tumor board
So frustrated and stuck in limbo. Just turned 41 and long story short, I’ve been having a rollercoaster of mammos, dx mammos, US, biopsies, MRI, and more biopsies since April. Side note: also found out then that I’m highly allergic to MRI contrast. Last pre-biopsy meeting, I find out that one area of architectural…
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Scalp during/after hair loss
I’m 17 days post first infusion. My scalp started being very tender about day 13. Hair started falling in earnest on day 14. I’m not bald yet, but it’s coming out in clumps. I’ve read many posts about hair loss, but I’m wondering more specifically about the scalp pain. Does the pain stop when the hair is all gone? If not,…
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What brings you joy in your summer? Weigh in and share your experiences in the topic below.
Going through treatment can make you feel like cancer is crowding out the joys you once enjoyed. It’s hard to motivate yourself to do much more when treatment takes over your life, but staying connected with people and keeping up some level of activity can offer calm and mental balance. Sometimes, finding a beautiful spot…
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ARV-471?
I have been suggested for a clinical trial using ARV-471 to treat early stage HR+, Her2- breast cancer. I was wondering if anyone has any experience with this drug. It's typically used for metastasis but I want to respect their boards and not post there. Thanks to anytime who has any feedback!
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Late developed change
Hi there, I had a double mastecomy & diepflap reconstruction in April 2021. I didn't have clean margins in my right breast. I did however have chemo and radiation afterwards. I had IDC stage 3 in both breasts, left side 6/13 and right side 5/11 positive lymphnodes at the age of 38. I have this roundish slightly darker than…
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Worried About Inflammatory Breast Cancer? Start here
Hi! We know you're here and worrying about a symptom or change to your breast or breasts. You may have found yourself Googling your symptoms, which led you to finding information on inflammatory breast cancer (IBC). Before coming to any conclusion, we hope you can take a deep breath, and read below from the main…
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High creatinine, high ketones?
I am not sure how common these side effects are, but I've been experiencing them so I thought I'd check in and see if there's anyone who has already experienced these and can maybe shed some light on what I might expect. My meds include kisqali and letrozole. Not sure what might be causing the issues. TMI time: I noticed…
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Accuracy of markers in Bone Mets
Hi All Just wondering if anyone knew accuracy of CA153 and CEA in detecting bone mets I am very anxiously awaiting results Initial blood test showed ALP was above 200 however CA153 and CEA were well within normal ranges etc Were your markers elevated when bone mets discovered?? and any other symptoms?? Many thanks Love to…
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Post Lumpectomy Pain
Hi, Please be gentle 😉this is my first post. I had a lumpectomy on 7/31/2024 (almost three weeks ago). I didn't have much pain immediately after the surgery, but I have gotten what I've been told is nerve-ending pain. I've been to the surgeon and I get it; it's gonna take time for the nerves to heal. I take gabapentin for…
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Stage III and Verzenio
I may need to venture into the mets forum for SE coping strategies, but I’m wondering if there’s anyone else who’s been put on Verzenio (vs Ibrance or Kisquali) to prevent recurrence? My MSK oncs and Yale onc (I switched to Yale this past summer) all agreed that I should be put on a CDK 4/6 inhibitor. We waited until this…
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Concerns about microcalcification cluster ignored by doctors for over a year
Hi there, I'm roughly 18 months out from my original diagnosis of IDC Grade 1, Stage (Onco 9) and have some concerns. My initial biopsy was for a group of microcalcifications (turned out benign) and architechtural distortion (maligant). However, during this initial the biopsy, the radiologist found a second set of…
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Need for an oncologist
I need advise and dont know where to go. I had DCIS Hormone Receptor Positive over 2 years ago, stage 0. After radiation, a little more than 2 years ago I started on the endocrine therapy, but not only can I not tolerate it but the three different medications "woke up" multiple muscular and nerve issues (spine and legs)…