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Brooklyn, N.Y support groups
I live in Brooklyn, N.Y. and would like to know if there are any in person groups here.
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DDX41 gene mutation
anyone else have a DDX41 gene mutation and considering chemotherapy? I was just told I have this mutation and it can increase my risk of developing leukemia. I am concerned about starting chemo as this may increase risk of leukemia later on. This seems to be a “newer” discovery with genetic testing so wondering if anyone…
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Starting Radiation in August 2025 support thread
Share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Tamoxifen side effects
Hello! My name is Betsy and I was diagnosed with BC last February. I had a lumpectomy in April and series of radiations during the month of May and June. My oncologist put me on Tamoxifen which I have been taking for about three weeks now. I have a headache which I can mostly tolerate, but the dizziness is on and off all…
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Oncotype test results.
Hi, I’m 5 weeks post diep flap surgery for lobular BC and waiting for oncotype test result, which I have just found out will be over the phone. Has anyone had Oncotype result over the phone which resulted in chemo? I’m stressing out about difference between in person and phone consultations and if there is any difference…
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Reconstruction opt-implants prior to diagnosis,2019 lumpectomy and radiation, new second cancer
I haven't been able to find a case like mine so hoping I find someone here. In 2018 I had breast augmentation. Then in 2019 I had HER2 positive cancer, chemo, lumpectomy and radiation. Had pretty bad capsular contracture so underwent 3 revision surgeries over 3 years and was pretty happy with the results. Fast forward to…
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Side effect worries
I was diagnosed with stage 3 estrogen positive breast cancer in 2021. Had chemo, then mastectomy, then radiotherapy. Now 3 and half years of taking Anastrozole Hormone therapy and I am beginning to struggle with stiff aching back and hip pain. I was told to take Calci-d and admittedly have not really took it as again side…
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For those w/ multiple lumpectomies
Hello, I was wondering how many of us have had multiple lumpectomies & re-excisions and what the outcomes were for each of us. Here's my story: *6/20/25: 1st lumpectomy for stage 2A, hormone +, HER2- IDC on left breast. Margins came back + for IDC & DCIS. *7/7/25: 2nd lumpectomy w/ re-excision. Margins + for DCIS, *9/8:…
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Really scared
hello I have to start AC chemo in a few weeks. I’m so scared by the reputation it has. I’m terrified of nausea as I’m emetephobic. I’m just finishing my taxol , carboplatinum 12 weeks. I’m hoping there are some positive stories .
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Kadcyla- what to expect
I was diagnosed Dec 2025 with HER2 triple positive. Stage 1b, grade 3, tumor 2.3mm, invasive ductal carcinoma. Finished 6 rounds chemo- HPTC every 21 days, tumor shrunk by 90%. Chemo was absolute hell for me. Had my first Herceptin 3 weeks after last chemo- tolerated will. I had lumpectomy 11 days ago- dr only removed the…
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Back to BC.org after a Recurrence and now Stage IV
Hello ladies and gentlemen. I'll keep it brief for now however, i'm hoping I can navigate this site as well as I did first go round. The website has changed A LOT and I don't know what I'm doing quite yet. I'm going to see if they archived my old stuff. It was a LOT. I was here in 2009 or 10 as Stage IIIc. Was NED until…
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Anyone stop chemo due to ongoing and progressing side effects?
Hi, I finished 8 out of 12 Taxol and the first 4 A/C. At first the treatments were not awful, I have to say. Actually, I felt A/C was easier than the Taxol. But things have been getting progressively worse. GI, severe bone/muscle/joint pain, neuropathy in hands and feet, my legs felt like I could hardly stand sometimes and…
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Illinois ladies facing bc
I'm very curious about all the Illinois ladies who are making this breast cancer journey or who have finished it. Where are you located? What's your diagnosis? Where are you in your treatment plan? How's it going for you? I thought we might be surprised to find somebody right in our own back yard that could use some…
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How Many are doing 10 years on Aromatase Inhibitors
When I started on Femara, I was told I would need to take it for 5 years. Now that I have finally reached the 5 years (and having experienced many side affects from the drug along the way), many oncologists are now saying that it is best to extend treatment up to 10 years. How many out there, are being told to continue…
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Zoladex vs Ovary Removal
Hi, I am a 45 year old breast cancer survivor. I completed treatment for stage 3, Estrogen and Progesterone positive HER2 Negative last year. Since then, I have been on Zoladex (Gosserelin) and Letrozole and I ACHE. I've been told if I have my ovaries out, I can go off Zoladex and have options other than Letrozole; has…
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What’s one thing your body is teaching you this summer?
As summer settles in and the days grow longer (at least here in the Northern Hemisphere), July offers a gentle reminder: it’s okay to slow down. For many living with breast cancer, this season can bring moments of lightness — and moments that ask for extra care. So, weigh in below with what your body might be telling you…
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Can't Decide Between Lumpectomy or BM(x)
Age: 51 IDC stage 1 (possible2) right breast Estrogen Positive Tomorrow, I see my breast surgeon again, and I am supposed to share with him if I want to go for a Lumpectomy or mastectomy. If I did a mastectomy, I would do a double mastectomy. I have been thinking and thinking. In one way, it would be easier to do a…
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Positive LVI and Benefit vs Toxicity of Adjunct Treatment
Hi, I am new to this forum. I was Dx with DCIS 8 cm in March 2023 but elected to "wait and watch". I felt a painful tumor in February 2025 and after testing and resultant unilateral mastectomy in May 2025, Dx with Extensive Invasion of LVI in two or more blocks. My stats are Grade 3, ER+/PR-/HER2+ and Ki-67 = 60. The…
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Just diagnosed with ILC mets
Hi, all I had ILC back in 2008. Had radical mastectomy on the right breast and prophylactic on the left. Chemo AC→T, radiation and 7 years of Arimidex. 16 years later I am back in the game. Still in discovery phase. Had FDG Pet Scan that shows liver uptake, had endoscopy that shows little spot in the stomach consistent…
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Starting Chemo in March/April 2025?
Gather here to support one another!
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Newly Diagnosed Post Biopsy 50 years old
Hello everyone! I found this page on my own after I was given my biopsy results today. A nurse called and asked if I wanted results over the phone or come in. I opted for over the phone - but it seemed she could only share partial information: that the biopsy showed cancer in the fluid that was aspirated as well as the…
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How do you manage seasonal shifts?
How do you adjust your routines or mindset as the seasonal shifts throughout the year like end of summer, or shorter days and colder weather? Seasonal changes can compound fatigue, mood changes, and side effects, and the more health challenges someone is facing, the more impactful those seasonal shifts can become. Share…
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Just been diagnosed I'm only 37 waiting on Cat scan scared it's spread
Hello everyone never in a million years did I think I would be writing somewhere like this at 37 years old but here I am in what seems to be a club nobody actually wants to be in. All this started less than three weeks ago.out of nowhere I found a large lump under my armpit I went straight to the GP and was referred and…
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BIRAD5
just curious what the odds will be that this is benign. I had my first screening on 3/26 and came back they wanted more testing done. The women that did my mammogram said that they would do that and not to be worried. They called every day, texted and sent me a certified letter. Between work and the radiology office hours…
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ILC LFET SIDE 46 MM , RIGHT SIDE 5MM IDC
I have diagnosed with ER/PR + HER2 negative on April 21st 2025. Bilateral mastectomy done with reconstruction ,tissue expanders in place . I will start radiation soon my left side . DXoncotype 16 Worried for the side effects of radiation .On Letrozole and lupron since May 2025
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Metaplastic
Hi One month ago i was diagnosed with a rare type of breast cancer Metaplastic with mixed differentiation. I have a positive lymph node and my surgeon recommend surgery first followed by chemo radiotherapy. The doctor told me that my prognosis is not so good and i might have one or two years with good quality of life due…
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Lumpectomy Planning: intraoperative margin techniques and need for a sentinel lymph node biopsy
I'm trying to help my spouse plan out a lumpectomy for her early stage breast cancer. Two things have come up in research: "no ink on tumor" margins are difficult to ensure and there is a risk for reexcision. It looks like there are techniques like Frozen Section Pathology or Fluorescence Guided Imaging that helps lower…
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Not sure what all of this means
I was just diagnosed with Invasive Ductal carcinoma. The diagnosis reads as follows: Left breast, core biopsy: -Invasive ductal carcinoma, modified Bloom-Richardson grade 2 of 3 (score 7 of 9). -Invasive carcinoma measures at least 6 mm in maximum dimension. -Focal associated ductal carcinoma in situ (DCIS), high nuclear…
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Radiation & tamoxifen - necessary...?
Hi everyone, I’d really appreciate hearing from others in a similar situation. I’m in my early 40s, no kids, not close to menopause, and recently had a lumpectomy for a 12 mm, grade 1, ER+/PR+ HER2- IDC (plus a small area of DCIS). Margins were clear, and there was no lymph node involvement. My Ki-67 is low (10%), and I’ve…
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PBMX for ALH or ADH?
Just wondering how many ladies out there decided to have prophylactic masectomies when your diagnosis was ALH or ADH? I know I can't be the only one.... Hugs to all, Valerie