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Recurrence in same breast previous 2 lumpectomies - mastectomy?
I have just been dx with IDC, tumor 1.2 cm grade 2, in same breast that I had DCIS, 2 lumpectomies and radiation 16 years ago. We are talking mastectomy, but wondering if anyone ever had a small tumor in a previously treated breast and just had lumpectomy? Some scattered DCIS was also found on the biopsy this month. Just…
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Bone and joint pain after tamoxifen
I concluded my 5 year regimen of Tamoxifen in August 2024. While taking Tamoxifen, I had terrible bone and joint pain in my lower extremities that was only alleviated by strong pain killers. I was delighted to reach my 5 year mark, stop taking the pain killers, and remain cancer free! However this bone and joint pain…
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CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
I'm hoping there isn't another thread like this. I did a search and saw one for stage 4, but nothing for everyone else. My very special friend on BCO (Tomboy), and I have talked about a Crazy Town thread for awhile now. I know she will be happy I finally took the bull by the horns!! I wrote a little story about visiting…
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PASH
Hi Just wondering if there is anyone that is dealing with PASH and would love to discuss whom they are seeing and what direction their surgeon is taking. If you know of other websites or physicians that deal with PASH in the Chicago or the NorthShore area would like if you could provide that info. Found lump two years ago,…
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Implant exchange 10+ years later
Hello fellow survivors. I’m now 10 years out from my reconstructive implant surgery and it’s time for implant exchange. Since surgery, I’ve moved more than 4 hours from my plastic surgeon and am considering seeing a surgeon nearby. So, I’m wondering do I need to look for someone who specializes in breast reconstruction…
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Need help in making decision on starting AI and ovarian suppression vs Tamoxifen alone
Im ER+, PR+, HER-, Stage 1 ,grade 2, 1 lymph node, post double mastectomy with oncotype of 12. The oncologist said my risk of recurrence is 13% and will go down by 2.3% if I do Chemo or take Anastrazole with ovarian suppression. As an alternative I can take Tamoxifen. I declined Chemo as 2.3% seems not significant to go…
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How about kidney stones!
I was getting ready to go to work (two days ago) when I was struck by the most incredible pain on my left side/flank. Something was very wrong. For about 30 seconds I thought I could drive myself to the ER but realized that an ambulance was needed (texted family who called 911 for me). I simply cannot describe the pain and…
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First mammo. Focal asymmetry. I'm frightened.
Hi, 51 with first mammo last week. Call today, scattered fibro glandular densities. Left breast no suspicious findings. Right breast focal asymmetry. No calcifications or architectural distortion in either breast. Benign appearing lymph nodes in both axillae. Grade B density. I go for diagnostic mammo and possible us in…
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Single Hormone Receptor Positive -> ER+/PR-/HER2-
Anyone else in this same boat? Would love input or sharing your experience. Feeling a little alone in this boat!
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Change in breast lump
When I first discovered my lump, it was about an inch deep in my breast. It's now at the surface, red and swollen. This is my fear, I've had lumps before and they always want away.
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Piqray users, what is your experience?
I just started on Piqray and Faslodex after Ibrance and Arimidex stopped being effective. I am weakly ER positive and PR negative, so I can't say it was a complete surprise that at some point that would occcur. I would be interested in hearing from others how you are doing on this very new medication. So far, the only side…
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High Grade Mucinous Carcinoma at 40
Hello everyone, My lumpectomy and sentinal node biopsy pathology report came back. It was a 1.8cm high grade mucinous carcinoma. Tumor borders were clear but there was additional DCIS 0.5mm from the border. Nodes were negative. This was found when I just finished breastfeeding. I'm 40 and all I see is information on this…
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PCOS
Hi, I have polycystic ovarian syndrome (PCOS). I have not been officially diagnosed but I most likely have HR+ breast cancer. I also have a serious history of depression. Tamoxifen interacts with my medications. I understand that ovarian function needs to be suppressed in pre-menopausal women which is why aromatase…
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Open Letter
I am a husband/ caregiver... I didn't know where this should be posted---and since my wife is going through treatment now, I just picked here. I have lurked since my wife's diagnosis and have been posting only for a few days. I can recognize a sisterhood when I see one. An army of kind souls. I am humbled by your humanity.…
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Side effects of coming off Tamoxifen?
I finished my course of Tamoxifen and few weeks ago (yay!) and just ended my first post-Tamoxifen period. Now I'm having some abnormal discharge, and also there's what looks like a pimple in my healthy breast. I have a doctor appointment to get it checked out, but while I'm waiting has anyone had weird stuff happen while…
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MRI Biopsy
I am 8 years out from triple negative BC and have been doing well. My last mammogram showed a very small area of concern. Watch and wait was suggested but my last cancer was very aggressive and grew quickly so I'm not inclined to watch and wait. I have asked for a biopsy but because it is so small, it will be difficult to…
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Salpingo-oophorectomy experiences and tips?
Hello, I decided to get this procedure done so I don't need to be dependent on the monthly shots. I understand that the surgery itself is pretty quick and straightforward, but I was surprised about the recovery instructions and a whole month without lifting more than 10 pounds. Also the doctor recommended two weeks off…
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Architecture distortion with benign biopsy but sent to MRI and surgeon
Hi everyone, I am new here and just went through a roller coaster with my breast exams over the past week. Hoping to get some help and support from this group. I am 38 and just finished breastfeeding my 1 yr old. I did my first mammogram last Friday and got callback for diagnostic mammogram followed by ultrasound. I was…
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What part of day-to-day life during your breast cancer experience has been most challenging for you?
Take our poll and share details in the thread below!
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High creatinine, high ketones?
I am not sure how common these side effects are, but I've been experiencing them so I thought I'd check in and see if there's anyone who has already experienced these and can maybe shed some light on what I might expect. My meds include kisqali and letrozole. Not sure what might be causing the issues. TMI time: I noticed…
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Summer/Fall 2024 Radiation Support thread
Gather here to share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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1 Year appointment and stressed!!
I just had my 1 year appointment. Everything went good, however my Dr. recommended me getting an ultrasound. I have had two mammograms since my lumpectomy and the first one said post surgical changes and a seroma and the second one said no changes. However, I have a hard lump directly where the lumpectomy bed is. It is…
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Chronically itchy nipple...Dx'd with PASH in 2020
Hi, all- Just a brief history: I am a 50 year old post-menopausal woman with dense breasts and a family history of BC. In 2020, my annual mammogram revealed a small cluster of calcifications in my right breast, after which time I underwent a stereotactic needle biopsy. The results were benign showing columnar cell changes…
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High risk and not getting taken seriously
Hi everyone I’m new here.. happy to find a group that I can discuss my concerns with cause Reddit has some mean girls on there haha. Long story short I’m 35F with family history of breast cancer.25% risk score. My mom passed away from TNBC she was diagnosed at 47. My mom’s aunt as well & my moms grandma POSSIBLY. I did…
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The wait begins...lumps between breast & collarbone
Scans scheduled for next week, already told will likely also be biopsied. When I saw the lump last week had no idea it could be associated to breast cancer. Don't think anyone has ever even looked at or felt this area, even during breast exams. About 1" above the right breast, 2-3" below collarbone. Largest near the…
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Her2+++ ER- PR- novo stage IV
I’m her2+++ ER-PR- novo stage IV, had multiple tumors in both lungs. I started in 08/2022 with Taxol Herceptin Perjeta. Stopped Taxol after 18 rounds and still continue every 3 weeks with Herceptin Perjeta. December 2022 after I completed Taxol all my tumors were gone so for the moment 2 years NED. Anybody longer than 5…
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Recurrence after mastectomy
Hi, I just found out there’s a tiny nodule with residual DCIS, 10 months post mastectomy. I’m freaking out about these new findings. Has anyone experienced a recurrence post mastectomy? My surgeon plans to perform a lumpectomy followed by radiation. I’m terrified it will have spread elsewhere since recurring so quickly.…
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My Update—6 years post diagnosis
Hi Friends: I thought I’d post a update on myself 6 1/2 years after my stage 1, grade 1 Invasive Ductal Carcinoma diagnosis. I chose to only have surgery. I did not go on hormone blocking drugs. I chose not to have radiation. I’m doing very well! What was my treatment plan post cancer? I try to eat as plant based as I can.…
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Question about CEA levels...please
Hi everyone, I have a question and hope someone could help me find some awnsers. In 2023 she was diagnosed with breast cancer, there was no spreading to other organs but she did have 9 involved lymph nodes removed. My mom had to go trough 6 months of weekly Chemo and is now on chemo pills that she should take for atleast…
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NPR story sex after cancer treatment
https://www.npr.org/2025/01/19/nx-s1-5266845/cancer-sex-survivor-sexual-health