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Grey area here! 5mm tumor- chemo or no chemo?
hi everyone, first time posting here. I am struggling to make a decision as my oncologist, even after a second opinion, is saying it is my choice if I want to do chemo or not! I am 54 years old. I am “borderline they tell me, I’m the grey area”. I am T1a, ER +, PR-, Her2+, DCIS I had a lumpectomy 5 weeks ago, all went…
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Enhertu start
Hi everyone, I'm starting a low dose of Enhertu today, been resisting for a while as I'm more than done with hair loss and any more reduction in quality of life. Side effects don't seem to be consistent with most patients I've observed from research, am very trepidatious. Any thoughts? Thanks
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What can I expect post-lumpectomy?
Hello, My lumpectomy is finally happening next week and I'm not sure what to expect as far as the healing/post surgery journey. (So far diagnosis is Grade 1a, 8mm tumor) I was thinking of planning a trip (flying overseas) after my two week check up. Is this unreasonable? How soon after the lumpectomy do they typically want…
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Insurance denial
Hi everyone, I am a 2 time survivor In 2003 I had a lumpectomy, radiation, chemo and aromatase inhibitor for 10 years. Recurrence in 2012 in same left breast and opted for masc with reconstruction ( I had lost my husband a month later so wasn’t thinking too clearly) Anyways now finally looking for symmetry. Having a…
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Need help anyone else had anything else come back on their pet scan
Hi I am 37 years old I have recently been diagnosed with IDC triple negative and went for a pet scan the scan come back and said that the area hasn't spread anywhere else but the scan did pic up something in my colon area they weren't concerned at all really but now I have to wait yet again before I even see oncology to…
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Hormone suppression
So I was curious of anyone chose to have chemo instead of the hormone suppressor? Or if that is even an option. All the aise effects of that are just as scary as chemo. So is this something I should speak to my oncologist about ?
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The party’s over…
13 years was a good run but all good things must come to an end. Will be heading to see my mo in about an hour to review latest PET scan, which was not posted in the patient portal ☹️. Yes, I have been having pain/soreness in my back and the CT I had during my kidney stone episode showed a healing fractured rib as well as…
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gestational carrier
Hi, Im looking to connect with breast cancer patients who have expanded their family through help of a gestational carrier. I was initially dxd with early stage hormone positive, her2 neg breast cancer in 2018. I underwent lumpectomy & radiation, then took Tamoxifen 4 yrs. In 2024, my oncologist gave me green light to…
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Mucinous Carcinoma of the breast
On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast. When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60. I am neither. I am 51 years…
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Remember When!!
Friends and I recently started talking about things in the "good old days." I thought it might be fun to try here and see what people of all ages remember from different eras of their lives! Just add to the thread with a brief post and we'll all enjoy remembering when!!
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Having difficulty feeling 100% certain that I want a prophylactic bilateral mastectomy
Hello and thank you for the existence of this resource I'm a 40 year old, triple positive, stage 2. I am awaiting my last chemo round on the TCH regimen. I decided to first start with a lumpectomy, as I was hoping at the beginning of my cancer journey that I would not need chemo. I also chose surgery first because it was…
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Lymph Node Positive Survivors
Hey all, Just wondering how many lymph node positive survivors there are out there and how many years out? Also have many of you experienced recurrence during that time? Or if you haven't what have you changed in terms of lifestyle, diet, exercise etc..
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Verzenio
Hello - My cancer recurrence (since 2010-2011 lumpectomy/chemo/radiation/tamoxifen/arimidex 6 yrs) is now MBC+bone metastisis diagnosed the end of January 2025. I have been on 100 mg Verzenio pills since February 2025 (along with monthly Faslodex injections and 3-month Zometa infusions). I keep hearing from the oncologist…
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Oncotype vs mammaprint
I have: 2.2cm idc Er 40%, pr >90% (surgical pathology) single gene score of 9.5 er and 8.9 pr on the Oncotype DX (strong positive) Her 2 +2 ihc, fish negative, oncotype her 2 gene score 9.1 (negative) Grade 1 (mitotic rate 1) Ki67 5-7% Node negative, snlb took out 6 No lvi (mastectomy) Dcis present Oncotype 11 with 3%…
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I'm looking for advice re: my lumpectomy on Monday next week
I'll try to keep the background as short as possible—unfortunately, it is a bit of a twisted tale. I had a screening breast MRI in Sept. last year. It came back BI-RADS 5 (greater than 95% likely cancer). The targeted US showed a rather benign-looking nodule that was presumed to be the one seen on the MRI. An US-guided…
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Saline implants
Hi, Anyone here who has or had saline implants? I am having my surgery next week monday Aug 18,2025 and will be doing reconstruction after the bilateral mastectomy. Any info would be appreciated. my bra size is A
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August 2025 Surgery support thread
Add to the discussion below to share your scheduled surgery date, type of surgery, what you're doing to prepare, ask any questions you have about what to expect, share your experience after surgery, how you're recovering, tips to help others recover, products and other practical advice for those coming after you. We're all…
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Starting Chemo June 2025? Let's support each other here!
Join together to share experiences. Discuss your chemo regimen, how to prep, what to expect, how you're feeling, side effects you're having and tips to alleviate them. We're all here to support you - you've got this!
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Starting Radiation? Get educated about Mepitel film!
Mepitel is the brand name for a thin film that you can apply over the skin before radiation starts. It is easy to order online and to apply yourself, and it is effective at reducing skin damage from the radiation. It feels like saran wrap (cling film). It stays on throughout radiation, but probably will need to be…
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Is it my fault?
Hey I am very newly diagnosed with triple negative IDC I think it's called and I just keep thinking what have I don't wrong? Is it my fault? I don't live the most healthy of life styles but I hardly drink don't do drugs don't smoke drink way to much fizzy drinks and eat to much but could I have done more. I'm only 37 and I…
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I was just now dx with skin mets
Hi, I've not had good news since forever—since suspected recurrence in August 2023 anyway, looks like I won't be getting any either. I had some red raised places — not bumps, not nodules, that would get red, then go away, etc. that appeared Nov. 23, the same month I was dx with St. IV. PET scan didn't show this. CTs-four…
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Brooklyn, N.Y support groups
I live in Brooklyn, N.Y. and would like to know if there are any in person groups here.
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DDX41 gene mutation
anyone else have a DDX41 gene mutation and considering chemotherapy? I was just told I have this mutation and it can increase my risk of developing leukemia. I am concerned about starting chemo as this may increase risk of leukemia later on. This seems to be a “newer” discovery with genetic testing so wondering if anyone…
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Starting Radiation in August 2025 support thread
Share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Tamoxifen side effects
Hello! My name is Betsy and I was diagnosed with BC last February. I had a lumpectomy in April and series of radiations during the month of May and June. My oncologist put me on Tamoxifen which I have been taking for about three weeks now. I have a headache which I can mostly tolerate, but the dizziness is on and off all…
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Oncotype test results.
Hi, I’m 5 weeks post diep flap surgery for lobular BC and waiting for oncotype test result, which I have just found out will be over the phone. Has anyone had Oncotype result over the phone which resulted in chemo? I’m stressing out about difference between in person and phone consultations and if there is any difference…
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Reconstruction opt-implants prior to diagnosis,2019 lumpectomy and radiation, new second cancer
I haven't been able to find a case like mine so hoping I find someone here. In 2018 I had breast augmentation. Then in 2019 I had HER2 positive cancer, chemo, lumpectomy and radiation. Had pretty bad capsular contracture so underwent 3 revision surgeries over 3 years and was pretty happy with the results. Fast forward to…
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Side effect worries
I was diagnosed with stage 3 estrogen positive breast cancer in 2021. Had chemo, then mastectomy, then radiotherapy. Now 3 and half years of taking Anastrozole Hormone therapy and I am beginning to struggle with stiff aching back and hip pain. I was told to take Calci-d and admittedly have not really took it as again side…
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For those w/ multiple lumpectomies
Hello, I was wondering how many of us have had multiple lumpectomies & re-excisions and what the outcomes were for each of us. Here's my story: *6/20/25: 1st lumpectomy for stage 2A, hormone +, HER2- IDC on left breast. Margins came back + for IDC & DCIS. *7/7/25: 2nd lumpectomy w/ re-excision. Margins + for DCIS, *9/8:…
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Really scared
hello I have to start AC chemo in a few weeks. I’m so scared by the reputation it has. I’m terrified of nausea as I’m emetephobic. I’m just finishing my taxol , carboplatinum 12 weeks. I’m hoping there are some positive stories .