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Kisqali
Anyone taking Kisqali for Advanced Stage Metastatic Cancer. If so how how long did it take for you to know if it was working for you? I have Mets to my liver and spine, likely in lungs too. I just want to feel better.
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MRI w/o contrast
Hi I am wondering if anyone have had an MRI without contrast. Is that better than a 3d mammogram for dense breasts or an ultrasound? Just wondering as reading up on the contrast used for MRIs and getting nervous on using it as it saying that gadolinium can stay in your body for a LONG time and even staying in the brain.…
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Recent diagnosis
TNBC stage 4 Ductal metastatic 6.9 cm tumor in right armpit breast tissue, 3 cm on right breast, clavicle, possibly groin left side. Palliative taxol chemo & immunotherapy since the large one in my armpit is protruding out & would grow outside of my skin. 6 mo-1.5 yrs is what they gave me. Diagnosed 6/2024. Just finished…
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How often do you think about recurrence?
Hi all, I'm just wondering how much you think or don't think about recurrence. We are all different, and we have different chances of recurrence, but I wonder if you think about it. I was diagnosed in February. DMX in March, currently on Tamoxifen for five years. Taking a daily pill is a great way to think about the…
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Double vision one eyes getting blurry
hi - I was stage 3c (1 node in neck lit up but was not biopsies so olio?) -er positive her2-. Very aggressive breast cancer. Had chemo, Masectomy and radiation, Currently on the last month of my two year Verzenio. I’ve had one instance of double vision in one eye 6 weeks ago on a plane. Then I noticed I’m having more…
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vaginal dryness
My DCIS is estrogen receptor + and i am wondering if the aloe vera gel in the good clean love i am using for my vagina dryness will increase the level of estrogen in the body as i read the aloe vera will mildly increase estrogen level in the body. Any advice. Thanks.
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Waiting …
I went for my yearly mammogram three weeks ago. I’m 54 years old with no family history of Breast cancer. I was called to go back for additional mammogram views and an ultrasound of left breast. A week went by and I received an early morning call requesting me to go back in for a 90 degree mammogram view. I asked if I…
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Birad 4
Hello Ladies, I had an abnormal screening mammogram and then I had a diagnostic mammo and U/S. The U/S showed a suspicious spot, so they want to biopsy it. I decided to switch breast care centers because I didn't like the radiologist. I felt like it was now processing number 20. I went to get the films from one place to…
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Invasive lobular carcinoma
Hi there . I was diagnosed with ilc, had lumpectomy of right breast stated barely stage 1. Treatment: tested one of 2, it’s at 25 which means radiation yet sending back other sample to get tested because over 25 would be to do chemo , then radiation . Stated stats : with chemo 1% of returning , without 12% of returning I…
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Implant reconstruction after radiation
I have a recurrence of DCIS in my right breast. In 2017 I had a lumpectomy and radiation. I now need to have a mastectomy and I’m hoping to have an implant reconstruction, rather than the DIEP flap. Most of the conversations I’ve found on the success of an implant reconstruction years after having radiation are pretty old.…
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AWAITING SECOND OPINION
Is there a cancer hiding somewhere in this moderate to highly dense Fibroglandular breast tissue of mine? From Sydney, Australia HISTORY: Age: 36yo Menstruating since 11yo Endometriosis - surgery in 2022. 2 children - 10yo and 5yo Recurrent mastitis infections since the birth of first child. Spontaneous and recurrent…
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Perjeta and itching
I think this has been discussed a while back, but I was wondering if anyone has anything new to report. I’ve been on Herceptin and Perjeta for about 7 years so far. Weird itching on both my arms (without a rash) started about 6 years ago… got progressively worse, and I’ve been on and off various medications to try to…
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TN stage one lobular with no spread to lymph nodes; Chemo?
Oncologist is recommending CMF. My androgen receptor test was positive and I am trying to make a decision about chemo. Anyone able to share side effects experience?
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Not responding to Verzenio after some months: anyone switch to Kisquali? Help please
Hi all My tumor markers dropped for the first few months on Verzenio/Fulvestrant, and now are climbing again. Scans didn't show progress last month but I'm terrified. Did anyone have better response switching to Kisquali and if so, what was it and how were the side effects compared to Verzenio? Verzenio and I are getting…
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Opinions on MRI, Biopsy and Overall Worry
I'm looking for opinions or similar situations. Every year I get my mammo and since cancer they appear hypervigilant. The first few years they wanted to biopsy everything they saw. I had a couple of bad experience with the first two biopsies so I later took charge and said no if it was something that could be watched.…
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Pain and sensations months after lumpectomy
I had a lumpectomy of my 1 cm lump and 5 lymph nodes. There’s been some new pain and all kinds of sensations recently. It’s disconcerting. Could it be nerve endings healing? Anyone else had this
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Herceptin Side Effects
As a 22+ year survivor of Stage 4 MBC de novo, I have been on Herceptin for about 21 years. I have not had any problems until about a year ago. During the infusion, I have chills and shaking. Sometimes it helps to request a warm blanket, hot cocoa and turning on the seat heaters. As soon as I leave the chemo center and if…
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Tubular/Cribriform IDC - any insights?
Hi all. I was diagnosed with tubular IDC earlier this year following a core biopsy (grade 1, ER/PR+). This hadn't shown up on my routine mammogram due to dense breasts but in self examination and then at ultrasound. They measured it at 17mm x 6mm at ultrasound. I then had an MRI to further confirm diagnosis and this…
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Coping with emotions
Background: I'm 52 with MBC. In 2022 diagnosed with estrogen positive cancer w/high BRCA indicator. Had a double mastectomy and chemo. In February 2024 noticed a lump in the scar tissue from the mastectomy. My doctor and I thought it was just necrotic tissue, but she ordered a PET scan. Not only was it not necrotic tissue,…
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Ringing of the bell. A perspective from someone with MBC. Please share yours!
Thanks to Jaimee for sharing her perspective! Please share yours below! Does your treatment center do this? If so, how does it make you feel? Share your thoughts.
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Breast MRI
I’ve posted a few times over the past two years about my symptoms and the tests I’ve had that have all been fine. As my symptoms are ongoing I’ve finally gotten an order for a breast MRI. I’m petrified of any and all medical procedures so I was hoping someone could tell me what to expect. I’ve had a really horrible few…
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Living far from daughter with stage IV
my daughter was diagnosed stage IV de novo over 5 years ago and has been doing well and living an almost normal life I’ve been going to almost all of her appointments and scans We live about an hour from one another at the moment and she hardly comes to see me but she’s see her about twice a month I’d like to move to…
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Has Anyone Had TEMPUS Blood Testing Done?
I’ve been stable on Xeloda since 2020. Recent ct/bone scans show a couple enlarged paratracheal (neck area) lymph nodes (everything else appears stable). Today I had a PET scan ordered by my onc to further investigate what might be going on. When I was at the onc last week, I also had blood drawn for TEMPUS xF testing. Has…
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Liver mets: resection, ablation, SBRT, Y-90, anything else?
I'm interested in who has had local treatment for liver mets and what was your experience and outcome. I've been talking about this with my onc, and he seems a little hesitant. I have my regular appt. for a 2-mth MRI of brain and followup with rad onc. I plan to ask him about the possibilities. I think that some of the…
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Unfortunately it appears I am back.
Made it almost five years. I was concerned about slowly rising TM so had a CT last summer. I did see something on some of the vertebrae when they showed me the scan but was told it was just some arthritis. Returned this month and on what was to be my last routine CT scan, before they sent me off into the “every two year…
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MRI Radiologist Has Me Terrified
I was recently diagnosed via an unconventional route, dermatology, due to spots on my nipples. I've since seen a surgical oncologist and a medical oncologist. Initial thoughts were likely stage one as they could feel no swelling in my lymph nodes and my mammogram and ultrasound were clear. But my MRI came back a couple…
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Help my arm sleeve is discontinued!!
Hi all.. my Sigvaris 15-20 arm sleeves which I've been happy with for years has gone and is replaced with new silicone button tops, which is turns out I'm allergic to. I've looked all over for a similar sleeve with no silicone but they all seem to have it now.. do you know of any sleeve that has no silicone, just the…
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Bras while waiting for exchange?
Hi. I have searched through everywhere for info on Bras, but it seems most recommendations are for either immediately after surgery (sports bras) or comfortable wire-free ones if you are semi-even. I've tried a number of those recommended front closure bras and so far the band is not wide enough. They are all too high and…
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Not Diagnosed and Waiting for Test Results? Start Here
Often, the hardest part of screening and testing isn't undergoing the tests themselves, but WAITING for results to come back. If you're like most people, you will want your test results as soon as possible. Read here for steps you can take to feel more in control of the process: * Test Results and Medical Records,…
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Any Triple Positives Go from Stage 1 to Brain Mets?
Hello All, I was diagnosed in late 2022 with Stage 1b IDC cancer in one breast and one axillary lymph node in that breast. I received 6 rounds of chemo, then 12 rounds of Kadcyla. I also underwent 30 rounds of radiation, a lumpectomy and am planning on a double mastectomy in a few months. All of my Signatera blood…