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Looooooong term lingering symptoms...?
Hello I was diagnosed in 2019 with Stage 2, Her2+ breast cancer in my right breast. Mastectomy, chemo and herceptin treatment followed and was successful. The planned herceptin treatment was interrupted just over half way through thanks to the pandemic, but no recurrence - so far, so good. Thanks to the pandemic, I never…
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Full mastectomy and lymphectomy coming up advice needed!
Hi all I'm new to the group. ER+ breast cancer stage 3 at 41 years old. I'll be having the last of my 7 rounds of chemo tomorrow and then hopefully will be able to have surgery. I'm scared of the surgery - never have been an inpatient in hospital before let alone gone under the knife. Any advice welcome on what I can do to…
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DIM
What is DIM and where do I get it? How does it work- thanx in advance for your help! I am trying tamoxifen but not liking it. Tami
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Letrozole and Tendonitis?
Hello all! I am coming up on 6 years of AIs with Letrozole being the most recent one. I had been on Arimidex but developed trigger thumb and fatigue over time so I switched to Letrozole. I have been okay for the most part but I now have tenosynovitis in my left wrist which won't go away and a new tendon issue on the top of…
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Results coming this morning
I already know it’s a recurrence and in my sternum, probably elsewhere. Trying to figure out how not to have a panic attack when the doctor is telling me. I’m terrified.
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Verzenio What has worked for you diarrhea
Hi Starting Verzenio today. Dr is starting me on 50mg 2x per day, to ease me into it. Do you have a regime that has worked for you in combatting diarrhea? I am going on vacation with my kids and I don't know how I'm going to manage it other than trying Imodium. TIA
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Wrongly diagnosed, had mastectomy and PAP flap operation
I'm in constant pain in my leg, I was diagnosed after a routine mammogram and after 3 biopsies told the best option for me was a mastectomy, I was told that having my own tissue was the superior way to go, the rolls royce of mastectomies. I was told i was a ticking time bomb and this was the best option. ie; preferred to…
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Single-Breasted Photo Shoot
My DH took some amazing pictures of me and my AFC. I'm striving to help normalize women going flat. It's an option that too many are shamed away from.
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BRCA2 but no family history of breast cancer
So my Mum had peritoneal cancer and found out she had the BRCA2 alteration. That's how I have just found out that I have inherited it through genetic testing. We have no history of breast cancer in the family as far as we know, however the Dr's told my mum that they could see that her cancer had developed from her ovaries…
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Its a long fight against breast cancer
Hi everyone, I'm new to this community and happy to be part of this wonderful resource. I am 36 when i was diagnosed with grade II invasive carcinoma (ER+/PR+/Her2-) of my right breast in August 2024. Back then i really wonder why life is so unfair and kept throwing lemons at me. I was always healthy with no underlying…
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Does anyone else feel wiped out for hours after radiation?
Hi everyone, I’m currently halfway through radiation treatment, and I’ve been noticing that I crash completely about 2–3 hours after each session. It feels like my energy just disappears, and I need to lie down for the rest of the day. I expected some fatigue, but I didn’t realize it would hit this hard, this early. Has…
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IBC concerns
I’m 37 with a mom and grandma BRCA1 positive. Grandmother had IBC twice so I have some concerns. Here are my symptoms: 7/10- rolled over in middle of the night with breast pain in right breast Lightning shock pain started and inflamed right breast (continuous since 7/14) Breast felt like mastitis 7/16 Seen in office, pain…
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Recurrence Fears
I am currently 7 years out and have just recently stopped living in constant fear of recurrence. Update to that progress tonight….Recently I have been noticing that if I rest my arm/elbow on some thing, armrest, table, etc. I get pins and needles in my hands. I started checking with Dr Google and down the rabbit hole I…
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Local reoccurrence tnbc
33, currently just discovered a local reoccurrence 10 months after dmx and 6 months after finishing chemo. First presented as fat necrosis/oil cyst but grew. Looking for treatment plans and stories of people who have gone through this successfully with no further occurrence. Looking for hope so scared. Waiting on mri and…
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Safety of Aloe Vera Supplements
Hello all ~ I am seeking some in put concerning Aloe Vera Supplements. I was diagnosed in 2018 with Stage 1 ER/PR positive breast cancer. It was discovered early to which I am incredibly grateful. I had a lumpectomy and four weeks of radiation therapy, followed by four years of estrogen blockers. I also have interstitial…
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Do I seek a second opinion
I am in a high-risk program due to family history. I am 54yrs old, postmenopausal, no-children. I recently had an MRI and the findings were an enhanced lobular mass on left side and an oval enhanced mass right side. Suggested follow up sonogram and possible biopsy. Had sonogram and two techs could not find oval mass on…
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Decisions
Hi - new here - my yearly mammogram this year was inconclusive, so I returned for additional imaging and an ultrasound, which led to a biopsy, which led to a diagnosis of infiltrating ductal carcinoma. All this took about a month. It is a stage I and small (5mm) tumor. I know I need surgery - either lumpectomy w/ radiation…
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Using Estradiol Cream
Hello there. I had Stage 1 breast cancer (lumpectomy, radiation, tamoxifen) in 2010 and have thankfully not had a recurrence. I later had a full-out hysterectomy (ovaries, fallopian, cervix, etc removed). Ever since then I have terrible bladder issues (urgency) as well as vaginal dryness. I've been scared to even think of…
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Next Steps??
hi I was just diagnosed a few weeks ago .I did have surgery and had two small tumors removed one was micro IDC andDCIS grade 3 one was 4 mm IDC ER positive HERS2 + Grade 3 I was told with lumpectomy ,hormone therapy and radiation. The risk factors for reoccurrence were the same as a total mastectomy. My biggest worry has…
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I feel like giving up on Chemo
I was diagnosed with Stage 2 non invasive ductal carcinoma in March 2025 at 35 years old. I completed 12 weekly rounds of chemo but rounds 9-12 caused me to have fevers and loose strength every week. I have now started the red chemo but I feel even weaker and am worried the chemo will kill me at this rate. I’ve told my Dr…
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Feeling the "Imposter Syndrome" - Early Stage Cancer - Do I really count?
Okay this may seem weird and self serving. I know that I am fortunate to have my cancer caught early. Invasive Ductal Carcinoma. Had a lumpectomy and will start radiation this week. Not a long course from what I understand but I'm getting radiation and then hormone therapy, Estrogen +. I know how incredibly fortunate I am…
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HERS2 Positive information and treatments
I had a biopsy with results showing grade three triple positive for micro invasive ductal carcinoma. When I went to have the seeds put in for surgery they saw another suspicious spot . They put 2 seeds in . I had surgery they removed 2 separate tumors. One was the biopsy site and the second one had pathology of estrogen +…
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Anastrozole - Dry Cough
I was on Tamoxifen for 4 years and was switched to Anastrozole as I hit menopause and was having mild side effects on Tam. After a month I stopped taking Anastrozole as I was having painful sex. I received help for that and went back on Anastrozole. Within a couple of days I developed a dry cough so I took a break for a…
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Side effects of coming off Tamoxifen?
I finished my course of Tamoxifen and few weeks ago (yay!) and just ended my first post-Tamoxifen period. Now I'm having some abnormal discharge, and also there's what looks like a pimple in my healthy breast. I have a doctor appointment to get it checked out, but while I'm waiting has anyone had weird stuff happen while…
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Tamoxifen Holiday?
Hello all, I have been on T for 19 months. Never missed a dose and have very mild side effects. All of a sudden, it's like I can't think. I'm totally lethargic, exhausted always — it's like my body is an alien, and all I want to do is sleep or watch TV. I've been pushing through for three weeks and reached out to my…
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Angiosarcoma diagnosis
I was diagnosed with angiosarcoma in November 2024, 15 years after treatment for triple negative breast cancer in 2009-2010 when I was 56. Back then I had chemotherapy, lumpectomy and radiation in that order. Was cancer free all those years. This past fall I noticed a discoloration on the skin at the lumpectomy site which…
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Purple nipple on one side — should I be worried?
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Exemethsane, letrozole or anastrozole
Hello! I was following a thread and can’t find it, so I apologize if it exists. I was on tamoxifen for five years, finished menopause and started letrozole. The joint pain in my hips became unbearable ((I play volleyball so I’m semi athletic.) Went off letrozole for two weeks and pain was gone. Switched to exemethsane and…
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Newly diagnosed, looking for advise on hospital/doctor selection
hi, I was just diganosed with invasive ductal carcinoma on June 9th. The past week has been a whirl, although I feel a little as if I am watching someone else’s life right now… I am not in denial, but still cannot believe this is happening. I have already had a consultation with a breast surgeon. I am meeting with a second…