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Feeling the "Imposter Syndrome" - Early Stage Cancer - Do I really count?
Okay this may seem weird and self serving. I know that I am fortunate to have my cancer caught early. Invasive Ductal Carcinoma. Had a lumpectomy and will start radiation this week. Not a long course from what I understand but I'm getting radiation and then hormone therapy, Estrogen +. I know how incredibly fortunate I am…
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HERS2 Positive information and treatments
I had a biopsy with results showing grade three triple positive for micro invasive ductal carcinoma. When I went to have the seeds put in for surgery they saw another suspicious spot . They put 2 seeds in . I had surgery they removed 2 separate tumors. One was the biopsy site and the second one had pathology of estrogen +…
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Anastrozole - Dry Cough
I was on Tamoxifen for 4 years and was switched to Anastrozole as I hit menopause and was having mild side effects on Tam. After a month I stopped taking Anastrozole as I was having painful sex. I received help for that and went back on Anastrozole. Within a couple of days I developed a dry cough so I took a break for a…
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Side effects of coming off Tamoxifen?
I finished my course of Tamoxifen and few weeks ago (yay!) and just ended my first post-Tamoxifen period. Now I'm having some abnormal discharge, and also there's what looks like a pimple in my healthy breast. I have a doctor appointment to get it checked out, but while I'm waiting has anyone had weird stuff happen while…
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Tamoxifen Holiday?
Hello all, I have been on T for 19 months. Never missed a dose and have very mild side effects. All of a sudden, it's like I can't think. I'm totally lethargic, exhausted always — it's like my body is an alien, and all I want to do is sleep or watch TV. I've been pushing through for three weeks and reached out to my…
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Angiosarcoma diagnosis
I was diagnosed with angiosarcoma in November 2024, 15 years after treatment for triple negative breast cancer in 2009-2010 when I was 56. Back then I had chemotherapy, lumpectomy and radiation in that order. Was cancer free all those years. This past fall I noticed a discoloration on the skin at the lumpectomy site which…
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Purple nipple on one side — should I be worried?
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Exemethsane, letrozole or anastrozole
Hello! I was following a thread and can’t find it, so I apologize if it exists. I was on tamoxifen for five years, finished menopause and started letrozole. The joint pain in my hips became unbearable ((I play volleyball so I’m semi athletic.) Went off letrozole for two weeks and pain was gone. Switched to exemethsane and…
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Newly diagnosed, looking for advise on hospital/doctor selection
hi, I was just diganosed with invasive ductal carcinoma on June 9th. The past week has been a whirl, although I feel a little as if I am watching someone else’s life right now… I am not in denial, but still cannot believe this is happening. I have already had a consultation with a breast surgeon. I am meeting with a second…
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My fellow mastectomy crew! What do you sleep in?
I had a single mastectomy last year and my 7yr old son knows, but has never seen the scar. I sleep with a little soft boob pillow in a tank top to keep up the illusion of shape, but it's just a little insert thing that they gave me at the hospital to wear post op. I think I want to keep sleeping with something in for a few…
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A 1st ultrasound report suddenly worries me!
Hi ladies! This's my tumor profile Idc 2.2cm lump Grade 1 Ki67 5-7% Er/pr positive, her2 negative 0/6 nodes negative Oncotype 11, 3% recurrence risk Mastectomy on 30th of may and currently on lupron injection + aromasin (42 yo) My 1st ultrasound report in indonesia (note: indonesia's hospital not very reputable) showed…
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adriamycin heart damage
Hello, Just dx with heart damage due to adriamycin use in 2005. I was dx with Stage 1 bc, ER-PR- Her2+++. Had lumpectomy, chemo ACT then 10 months of Herceptin (had to stop twice due to low muga scores). Radiation. Had genetic testing Pos Braca 1 so had bilateral overies removed then bilateral mastectomy with silicone…
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Triple positive IDC Grade 3
I had a biopsy with results showing grade three triple positive for micro invasive ductal carcinoma. When I went to have the seeds put in for surgery they saw another suspicious spot . They put 2 seeds in . I had surgery they removed 2 separate tumors. One was the biopsy site and the second one had pathology of estrogen +…
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HERS2 Positive Grade 3 IDC
I had a biopsy with results showing grade three triple positive for micro invasive ductal carcinoma. When I went to have the seeds put in for surgery they saw another suspicious spot . They put 2 seeds in . I had surgery they removed 2 separate tumors. One was the biopsy site and the second one had pathology of estrogen +…
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DCIS, receptor positive and still on HRT. How risky is this?
Hi everyone. Never thought I would be spending my holiday break talking and researching cancer. Yet here we all are. I was recently diagnosed with DCIS and receptor positive for both ER and PR. I had a lumpectomy on 13 Dec 2024 and was advised I need a further one (scheduled 22 Jan) as they didn't get clear margins all…
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Discharge from surgery area pls need help
Dear beautiful community, my mom had breast cancer more than ten years ago. It was stage 3b. She had surgery chemo and radiation. She had BMX. She had cancer in one breast but was afraid of recurrence in her other breast so she did BMX. they made a mark tatto in her sides from where they did the surgery ( took of the…
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Falling apart for every scare-- latest is a pea sized lump on my chest
6 years out from 2b/3a dx— treatment was masectomy with total axillary nodal dissection, chemo, rads and still on arimidex. I recently discovered a hard pea size lump a couple of inches under my collar bone about an inch from my arm pit. My oncology nurse practitioner couldn't find it during our visit and I couldn't find…
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Histotripsy for Liver Mets. Experiences, Thoughts, Knowledge, Suggestions?
I am in the process of learning about histotripsy for possible liver mets treatment. My oncologist has told me something about the process, and I've read quite a bit also. It is not yet offered at all cancer centers (mine included), so it's sometimes necessary to go to a different clinic for the procedure. Has anybody here…
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Abraxane
Weird that there hasn't been a thread devoted to Abraxane before this... here goes nothing!
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Scheduled for Radiation July 2025? Gather here to share experiences and support!
Share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Radiation Induced Morphea of the Breast
hi everyone!!! last fall I was dx'd with radiation induced Morphea 8.5 years after my last treatment. I am currently seeing a radiation oncologist, who has only seen this twice in 20+ years. It is fairly rare and because it is, there are not any tried and true treatment options. I think this may be because a lot of us are…
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Torso sensitivity
I posted about this 5 years ago, and never received a response from anyone who could relate. I hoped I'd "outgrow" this sensation, but that's not the case. So I'm circling back now, after discussing this at my annual check-up. Has anyone experienced hyper-sensitivity after a double mastectomy? Specifically, along the bra…
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Night sweats and acupuncture
I have bed soaking night sweats from hormone meds. I have tried multiple meds but the side effects destroy my quality of life. I sometimes feel like giving up due to side effects of the cancer drugs as well as the side effects from the meds to help manage the side effects. Before trying any new meds that are out the…
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Keytruda Improves Survival in Triple-Negative Breast Cancer
Keytruda Improves Survival in Triple-Negative Breast Cancer September 15, 2024 People diagnosed with early-stage triple-negative breast cancer who received the immunotherapy Keytruda (chemical name: pembrolizumab) along with chemotherapy before and after surgery had better event-free survival — how long they lived without…
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Question about prognosis for HER2-positive ER/PR-
Hello, I am a close relative of a young woman who was recently operated on for HER2-positive, ER/PR-negative pleomorphic lobular breast cancer, with a Ki67 of 12%. The tumor was large, 93 mm, and 6 out of 11 axillary lymph nodes showed metastases. Blood-based testing has also indicated evidence of spread. The tumor was…
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Chemo or not?
Hi ladies, i just got back from my oncologist appointment. My current condition: I had a single mastectomy on my right breast. Final pathology showed idc 2.2cm with dcis, grade1, ki67 5-7%. Er/pr+, her2- (fish and oncotype dx confirmed), no lymph node/vascular involvement 0/6. My oncotype score is 11, 3% recurrence in 9…
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So scared- expansile mixed lytic sclerotic density Found on ct scan
I went into the er for kidney pain, and we did find a stone. But in that scan they found “2 areas expansile mixed lytic sclerotic density in the right anterior 6th and 7th ribs. These are new from 2023. Suspicious for pathologic lesions.” And I’m scared. So scared. I got home from the er Thursday night and called oncology.…
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Decision about lumpectomy or mastectomy
I was just diagnosed with Invasive Ductal Carcinoma and am a bit overwhelmed about the influx of information. For many years, my sisters and I have quipped that if one of us gets “it”, we will go get double mastectomies together. Our mother had it a few times, and she didn’t survive the last bout. When my husband met with…
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Considerations: Lumpectomy w/Rads vs. UMX vs. BMX
Years ago I put together a list of considerations for someone who was making the surgical choice between a lumpectomy, mastectomy and bilateral mastectomy. Over time I continued to refine the list and add to it, thanks to great input from many others. Over the years I have posted this many times, and although I don't spend…
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If you are not Stage IV but have questions, you may post here
This thread is for those people who are not stage IV but are having concerns or questions regarding stage IV.