-
A question about follow-up MRI for clip placement
Has anyone had a breast MRI for clip placement? Do they do the full MRI with IV contrast or is it abbreviated—e.g. no contrast—and only check to see if the clip is in the correct place? My doctor has already sent in the requisition for a post biopsy MRI to confirm clip placement, but I have a new palpable lump that isn't…
-
Mastectomy after radiation - healing issues?
Hi there! New to the forum. Was diagnosed with DCIS a year ago and had 2 lumpectomy surgeries (to get good margins) plus radiation. Now a year later, they have found Atypical Lobular Hyperplasia in my other breast. Looking at another surgery, possibly more?, heightened screening and probably medication for estrogen…
-
Radiation to Regional Lymph Nodes
Hi there! I was diagnosed with stage 2a IDC and one sentinel node removed was positive. I will be undergoing radiation to my regional lymph nodes. Should I be concerned about any side effects other than lymphadema? Please let me know if you have undergone radiation to regional lymph nodes and how you are doing. Thanks in…
-
Abnormal ALP level
My ALP level is 134 and the cut off point here for a normal level is 130. I have to have it tested again on Christmas Eve... Do you think it is a sign of metastatic spread to bone? My other liver enzymes were normal. This is the first time that my ALP has been abnormal, so I am very worried and I have convinced myself that…
-
Do SSRIs Affect Hormones?
I'm hormone positive and recently started an SSRI for ongoing anxiety due to survivorship. A few weeks into it, I started having random side effects like increased sebum production, sore breasts, increased vaginal discharge, etc. It concerned me a bit so I started googling and came across this article which states,…
-
PREDICT: Updated Breast Cancer "Survival Calculator" Tool
The PREDICT "survival calculator", based in the UK, has updated their algorithm as of Spring 2024 to include additional data inputs such as progesterone receptor status, smoker status, metastases status, plus an option for patients who accept or decline radiation. This tool may be helpful to those that're newly diagnosed…
-
Psychological reactions to aromatase inhibitors.
I'm sure this has been discussed on other pages but I want to start a thread specifically for this discussion. For the second time, I have had a severe neurological response to Aromatase inhibitors. The first time I was told there is nothing that would help so I quit taking the meds That was 6.5 years ago. I recently had a…
-
Small lump by excision biopsy scar
hello all I received an excision biopsy in 2018 and the result was atypical lobular hyperplasia cells. At the time the breast surgeon wanted me to take tamoxifen, but I declined. I have been receiving mammograms & a few MRIs at the beginning of surveillance period. Then went to just mammogram/ultrasound. Periodically, I…
-
Anyone starting brand drug, Enhertu?
I have had growth of tumors while on current treatment. My onc and I have decided to try new treatment, Enhertu (FDA approved 12/20/19)! Wondering if anyone else out there is trying or was in trial? Julie
-
Starting Radiation January and February 2025
Hi All, Join together here!
-
Yet another cancer???
I was diagnosed with a supposedly benign bone tumor in my hand when I was 27. It was removed then and grafted, with good margins, but it came back 9 years later. Another surgeon removed it again, but it grew back for a 3rd time 3 years later. The surgeon insisted it had to be benign (because bone tumors in the hand are…
-
Stage 2 Sisters Club
Welcome to the newly formed Stage II Breast Cancer Club! And Thank You Mods for facilitating its creation.
-
Alcohol, and surgeon general recommendations. Let's talk about it here.
What are your feelings about this and how does it affect you? On January 3, the surgeon general released an advisory on alcohol use and cancer risk, noting that alcohol use contributes to 100,000 cancer cases and 20,000 cancer deaths in the U.S. each year. The cancers known to be affected by alcohol are mouth, throat,…
-
Tert variant p.E652k aka c1954G>A
I just received my genetic test results and I have the above variant which is known to cause all different types of cancers the most concerning as a micro papillary form of breast cancer. Has anyone else received this and also had multiple biopsies and scans due to an area of concern?
-
IBC Worry
Good evening! Long story short, I started having a severe pain in my breast 3 weeks ago. I ended up at my high risk breast specialist where they did an ultrasound. Turns out I had an abscess. They drained it with a needle and put me on antibiotics. The antibiotics I started with didn’t work and my abscess filled up again,…
-
Breaking Research News from sources other than Breastcancer.org
I watch for research news on breast cancer, treatments, etc., and frequently see interesting articles. There is a topic on BCO called "Breaking Research News from Breastcancer.org." One of the moderators suggested that another topic might be appropriate for posting links and synopses of reports on research found elsewhere.…
-
Decision about lumpectomy or mastectomy
I was just diagnosed with Invasive Ductal Carcinoma and am a bit overwhelmed about the influx of information. For many years, my sisters and I have quipped that if one of us gets “it”, we will go get double mastectomies together. Our mother had it a few times, and she didn’t survive the last bout. When my husband met with…
-
Hypersensitivity and tenderness
I am new to this site and wonder if what I'm experiencing is normal. I had DMX with immediate reconstruction with tissue expanders on December 20th. My PS filled the expanders with air during the surgery, then on January 2 I had air exchange and saline fill of 250cc. I am 4'11 and going for a full B size. Anyway, I'm…
-
Cancer Tratment for 5 years on Stradexa
Thank you for sharing this page. I find it most interesting and informative. I am 76 years old. I do have Charcot Marie Tooth Muscular Distrophy. Had Mastectomy. Very active and healthy in every other way. I am trying to maintain that. But the side effects, and the little devels are creeping in. The predicted and expected…
-
DCIS removed but... gene mutations... now what and family thinks I should be happy
Diagnosed with DCIS (ER+/PR+) in Sept. Had it removed in Oct. Doc talked abt possible radiation and/or hormones even though I'm one of the "lucky" ones- HA! Now I'm positive for CHEK2 and RAD51C w a family history of ovarian and colon cancer (1 + 1). Waiting to hear back from gyn to screen for ovarian cx and sons need to…
-
Starting Chemo September 2019
Hi All, I haven't seen a September 2019 chemo thread so I thought I'd start one. I am scheduled for my first treatment on Wednesday 9/4/19. I will be having Cytoxan and Taxotere every 3 weeks for 4 cycles. Tracy ------------------------------------ 8/28/19 - Snaffle53 - AC+T 9/4/19 - tmh0921 - TC 9/4/19 - Ryanrose - AC+T…
-
Triple negative breast cancer
hi I have had triple negative breast cancer I finished my 6 month of chemotherapy but my pathology response wasn’t good I have axillary detection because of my lymph nodes wasn’t clear. I have been offered by my oncology team trial call MK-2870 (sacituzumab tirumorecan) for 6 month anyone have same experience or anyone…
-
Starting chemo with no support. Advice?
Hello, I start chemo next Wednesday 8th of Jan. I live alone and my family are not in this country. I also just moved to the South Bay so I don’t have friends here either. any advice on how to go through this grueling period completely on my own ? Also, I am considering cold capping ( using penguin) but I’d need someone to…
-
Phesgo loading dose for 18 cycles
Hello, has anyone been told they need to be on the loading dose of Phesgo 1200-600 every 3 weeks for 18 injections? I read that the first dose is 1200-600 and the remaining should be 600-600 as a maintenance.
-
Difference between recurrence and new primary cancer
How do they tell the difference between a new primary cancer and a recurrence of the old cancer. I had ILC in 2017, treated with lumpectomy and radiation. I stupidly refused antiestrogens because I thought I would be OK. They have now found another tumour in the other breast, but say it's ductal this time. Has anyone else…
-
Our treatment histories
Hello, So far, I've been a silent member only, so this is my first post. I have been following many discussions regularly, and found this forum an incredibly helpful and encouraging place. I was wondering if we could have a thread to collect our treatment histories? Which drugs we've been on, how long we've been on each,…
-
CHEK2 Mutation
I was at my gastroenterologist last week. He passed on the following news adding that this is the first time (praticing over 30 years) that he has ever seen a risk being removed from guidelines. In August of this year, the National Comprehensive Cancer Network (NCCN) guidelines removed the warning that a CHEK2 mutation…
-
Postmenopausal bleeding after stopping tamoxifen
I was diagnosed at age 47 and was on tamoxifen for just over 3 years, which I recently stopped. Was perimenopausal upon starting it and stayed that way for over a year. I'm 51 now and have not had a period for 25 months. Well, 3 days ago, I started what looks and is acting like a period. Was heavy for 2 days and is now…
-
carnivore diet
Hello I just wonder if anyone from you is or was on a carnivore diet before, during or after the breast cancer diagnosis. I would like to hear from you. Ata
-
DCIS Grade 2 Diagnosis
Hi all, this is my first time posting here and am so grateful that this forum exists. My wife has had an incredibly stressful few months to say the least. In September she went in for her yearly mammogram and a suspicious area was identified in her right breast. She subsequently had an ultrasound, biopsies and MRI and was…