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gatekeeper nurse
I had a single mastectomy in August. Since then I've had a couple of followup visits with my breast surgeon and have been seeing the plastic surgeon who will do reconstruction. The plastic surgeon is an independent one-doctor office. He has staff for appointments, etc. but he answers emails himself. And in a very timely…
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November 2025 Chemo thread - let's support one another!
Is your chemo treatment scheduled soon? Let's share experiences and lift one another up here. We encourage you to share your feelings about starting chemo, what the planned regimen is, how you're preparing, ask questions and learn what to expect from others, side effects you're experiencing and how to alleviate them, and…
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Vaginal estrogen for intercourse, testosterone supplementation for muscle mass
Hi. Previously my oncologist said we could consider vaginal estrogen after 2 years with no recurrence. I am at about 2 years 4 months now and asked if I could get vaginal estrogen prescribed, and they said no without providing a reason why. No answer. None of their suggested remedies helped. I tried ALL OF THEM. I also…
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Enhertu hair loss
I was told I’d keep my hair but it started dropping out fast. Looking back it may have helped keep more hair had I not brushed as aggressively, started modest iron supplements before iron & other numbers dropped requiring one transfusion. And switched hair products sooner. I think it would have prevented or slowed hair…
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Xeloda (Capecitabine)
Has anyone with Triple Negative Breast Cancer taken Xeloda that went through chemotherapy and then had a double mastectomy and lymph nodes removed? I am going to have radiation but, my oncologist wants me to take Xeloda but, I want to hear some feed back.
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I am grateful
I am grateful for each day God gives me. I am grateful for friends. What are you grateful for?
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Diep flap vs Hybrid
I’m trying to make my decision for my next surgery after having my BMX a couple of months ago. I need some advice! I’m trying to decide between Diep flap vs hybrid. I’ve spoken to 2 women that had the Diep done many years ago and are very unhappy with their results. Hoping to get some more feedback about Diep and the…
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IDC - Just diagnosed from Core Biopsy - Questions for Surgeon?
Hi from Canada! This is my first post! Just diagnosed with IDC, (Grade 2 features) ER Positive, PR Positive, Negative for HER 2 Protein Overexpression by IHC (Score 1+) To be honest not sure what this all means. I have appointment with surgeon Dec. 5th. Would love to have some suggestions for what Questions I should be…
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Hello
I’ve been reading for a while and decided to join earlier in the week. I live in New Orleans , Louisiana. I, fortunately, already had a breast doctor to whom I was referred by a NP friend of mine because I have fibrocystic and dense breast. I’ve been a patient of his for almost seven years. In the beginning, I would get a…
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Revision/Corrective Reconstruction Surgery - What's Your Experience?
Please share in this thread your experiences with revision or corrective reconstruction surgery. As a reminder, we'll be hosting a webinar called Corrective Breast Reconstruction: Getting the Results You Want on July 9 at 6pm ET. You can register here:…
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AI twin, mega cognitive therapy, how to get enough sleep and hhoe to be happy.
I have had bc for 8 years and I’ve been fighting depression, I think it’s because my oncologist was not supportive. She sent me to psy and I tried a lot of treatments plus medication but I don’t feel good. I have been having stomach pain and am on the fodmaps diet. Today very little pain. I have depression mainly from the…
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Has Anyone Tried These Immunotherapy Options for Stage IV Breast Cancer?
Hi everyone, I’m Ralph , and I hope it’s okay that I jump in here. I’ve been reading the forum quietly for a while, but this is my first time actually posting. I was diagnosed with stage IV breast cancer last year it spread to a couple of bones, so things have been a bit up and down ever since. Right now I’m on hormonal…
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Planning surgery for November 2025? Join the waiting room for support.
Are you scheduled to have a lumpectomy or mastectomy in the month of November? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
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November had lumpectomy just had first chemo
I am a retired registered nurse. I have two younger sisters who have had breast cancer, I am just realizing my journey.
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Scalp during/after hair loss
I’m 17 days post first infusion. My scalp started being very tender about day 13. Hair started falling in earnest on day 14. I’m not bald yet, but it’s coming out in clumps. I’ve read many posts about hair loss, but I’m wondering more specifically about the scalp pain. Does the pain stop when the hair is all gone? If not,…
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What were your symptoms of IBC?
And please forgive me if this is the wrong forum :) I'm just curious as to what your story was. Thanks
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Up for donation: Freezer Packs - Hands and Feet
Hi, We went the cold cap route for our daughter when she was going through chemo for IBC. We purchased a number of freezer packs for her hands and feet. She was able to retain her hair and didn't suffer from neuropathy. So it does work! I would love to donate the freezer packs to someone who is in need. Please reach out. JW
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Madame X
I am starting Madame X next week and just wanted to reach out to the experts about dietary restrictions. It seems that there are a lot of foods that contain folate so I was wondering if anyone had recommendations of things to definitely avoid, my main concern is Hand and Foot Syndrome as I am an avid Pickleball player and…
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Finishing verzenio
I have just finished two years of abemaciclib, following on from surgery, chemo and radiotherapy. I was lucky that just as I finished radiotherapy, Verzinio was approved in the UK for stage 3 BC patients with high risk of recurrence. Given the pretty awful side effects as well as the timing, it means that there aren't many…
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Anyone else have spinal compression fractures?
Mine is apparently from osteoporosis, probably chemo / femara induced. My T scores are not awful (worst is -2.5 in hips; others in -2 range). I’ve been on Fosomax for a few years. But now that I’ve found out about this compression fracture, endocrinologist is recommending Evenity or Tymlos. Both have potential scary side…
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Capecitabine
Hello , My name is Jill and I will be starting Xeloda next week. I was on Ibrance/Letrozole for 16 months and it has stopped working. I am curious about the new meds and wanted to talk to you ladies about a few things. I have not met with the Onc Pharmacy yet to discuss the drug and ask various questions so I figured I…
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Vinorelbine - the end of the line??
Hello all-I have just been recommended to move to Vinorelbine as my 9th line. My oncologist pulled me off DATROWAY due to severe SEs and told me this is one of the last drugs on the shelf for me. Not only is this a scary piece of information, but I also can’t find much online about this drug in terms of user experience.…
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Mepitel Thoughts and Tips
I've learned so much on these boards that I wanted to give back a little and share some things I learned for anyone thinking about trying Mepitel fIlm for radiation. I only ended up using the film for half of my radiation treatment because I was allergic to it. But at my one month follow-up appointment, my RO was surprised…
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CA27-29 elevation
I am 11 year survivor and just has an elevation to 42 from 30 on the CA 27-29. I have to wait 4 weeks for new bloodwork. I am so nervous. Anyone have a similar experience.
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Honoring KBL, Kris B.
07/02/1961 - 08/16/2025 Kristine Mary Blake, age 64 of Murphy, NC passed away Saturday, August 16, 2025. She was born in Suffern, New York to the late Charles and Betty Bryant Brown. Kristine worked as a court reporter. She enjoyed spending time with her grandson, Colton and family. In addition to her parents she was…
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Chia Seeds Safe for Estrogen Positive Breast Cancer?
I have recently heard a lot of positive things about the benefits of chia seeds and yesterday bought a bottle for myself. However, once I got it home started to wonder about its connection to flax seed (which my oncologist suggested I avoid) and whether chia seeds were safe to use if you have been diagnosed with estrogen…
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Has someone received EVENITY injection for osteoporosis?
Good Envening ! Has someone received EVENITY injection for osteoporosis treatment? My wife has taken Fosamax for 5 years and received Reclast infusion for 2 years (one dose per year). Now, the Doctor suggested my wife to receive EVENITY injection for another year (one injection per month). Since EVENITY is relative new…
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Reconstruction of a lumpectomy from late 2005 possible?
Hi. I was originally on this great platform as jcp back in like early 2006. I had to changey name bc it won't take my old user name of "jcp" but still recognized my old email so switched that out. Basically, my rt lumpectomy from late 2005 in past four years ( age) is so much smaller than my left breast that was always…
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DATROWAY advice
Hello all-I’m stage IV MBC since 2017. Was NEAD for nearly 7 years and now have been through five lines of treatment that have failed. Have been recommended to DATROWAY and am wondering if anyone has experience with this relatively new drug. The side effects are pretty terrifying and I can’t find any real world information…
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BRCA1+: what's in your surveillance/ survivorship plan?
Now that active treatment is over, I imagine my next few appointments we'll be working on the surveillance plan. It would be so helpful to hear what others are doing. I've had TNBC twice before age 50, treated successfully (I hope) both times, and am BRCA1+. Before the second diagnosis I was getting a mammogram +…