Recent Discussions
Discussion List
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When to stop taking Ibrance? Been Taking for Almost 4 years
Hello everyone, Trying to see if there are fellow people in the same boat as my mother. She was diagnosed with Stage IV breast cancer March 2017 (almost 4 years ago) when they found a tumor in her bones (metastasis). Since 2017, she's been taking Ibrance. In the first year, her tumor markers 15-3 and 27-29 fluctuated a lot…
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Just got biopsy result
Received my biopsy result today for 14mm stage 2 no lymp nodes involved Im 64,back in Feb was told it was just a 9mm cyst.Then in May had colonoscopy that found cancerous polyp,they did a CT scan of chest abdomen and pelvis which showed lump in breast had grown and suspicious.I was devestated with news today after going…
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Worried about continuing with Letrozole
Hi, I was diagnosed with metastatic breast cancer 41/2 years ago. Because of the advanced metastasis I was put on Letrozole, Palbociclib and Venetoclax. The drugs have kept me alive and continue to do so, but the Letrozole is really taking its toll on me. I'm 54 and feel like 80. I am barely able to walk and that is with a…
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Brain MRI every 6-12 months?
Have any of you been told to get a Brain MRI every 6-12 months "just in case" by your MO? Before starting treatment 2 years ago, I asked my local MO if I should have a Brain MRI and she stated, "Only if you are having symptoms." At that time I also had an MO at a distant teaching hospital. She insisted I have a Brain MRI…
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Asking for Tips - Starting Chemo Next Week
My port goes in Friday and I start 4 cycles of TC chemo that are three weeks apart on June 30. I decided to not mess around won’t cold capping but embrace the opportunity to get purple hair that I’ve wanted for 40 years. With that, what are people doing while they just sit there and wait for hours for the infusion? What…
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Partners support, aloofness and anger
I don’t know how to cope with being two weeks post op mastectomy with diep flap reconstruction and my partners anger and avoidance. My husband is arguing with me every day now we’re at home from the hospital. Thankfully his mom is here helping and he doesn’t act out in front of multiple people. I have teens 50% of the time…
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The Next Person Game
In this game you make a statement about the next person. The next person answers true or false to that statement. They then make a statement for the next person, and so on. Example: If the person before me stated - The next person owns a dog. I would answer - True - and add my statement - The next person has curly hair.…
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Doing Well on Aromatase Inhibitors (AIs)
I read a suggestion that someone should start a topic for women who are NOT experiencing severe SEs while taking Arimidex, Femara, or Aromasin. I'm about to start taking Arimidex and when I read about the potential SEs I get discouraged. Maybe others would also like to hear about positive experiences. We would love to hear…
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ILC Long Term Survivors
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy
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Breaking Research News from sources other than Breastcancer.org
I watch for research news on breast cancer, treatments, etc., and frequently see interesting articles. There is a topic on BCO called "Breaking Research News from Breastcancer.org." One of the moderators suggested that another topic might be appropriate for posting links and synopses of reports on research found elsewhere.…
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Her2+++ ER- PR- novo stage IV
I’m her2+++ ER-PR- novo stage IV, had multiple tumors in both lungs. I started in 08/2022 with Taxol Herceptin Perjeta. Stopped Taxol after 18 rounds and still continue every 3 weeks with Herceptin Perjeta. December 2022 after I completed Taxol all my tumors were gone so for the moment 2 years NED. Anybody longer than 5…
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What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
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Mother recently diagnosed with stage 4
My mother was recently diagnosed with metastatic cancer with “innumerable” mets throughout her bones. I’m still in so much shock from the diagnosis but really thinking about how to reorganize my life to be closer to her during this time. I currently live in another country with my partner and know that we need to make some…
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need to find how to treat it
I am asking on behalf of my mother. My mother is a 79-year-old woman with metastatic breast cancer involving the bones. She was originally treated with Letrozole for approximately 4.5 years. When Letrozole was stopped, she subsequently developed significant disease progression with severe hypercalcaemia and further…
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Diagnosed with Stage III Breast Cancer - Start Here
For more information on Stage III Breast Cancer check out these resources at our main site: Breast Cancer Stage III Treatment Options by Cancer Stage: Stage IIIA, Stage IIIB, Stage IIIC If you are interested in connecting with other members diagnosed with Stage III Breast Cancer check out this topic: A Place to Meet and…
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Poll: What surprised you most after being diagnosed with breast cancer?
After a breast cancer diagnosis and the whirlwind of treatment calms to a breeze, there can be pressure to move forward. To feel grateful. To seem okay again. But many people in our community describe something more complicated: learning how to carry a diagnosis while still trying to stay connected. To themselves, to the…
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Occult bc ER low (5%) HER2 neg treated as TNBC
I was diagnosed May 26, 2026 with breast cancer after a lymph node was biopsied after routine MRI(I have had LCIS since 2011.) further test and biomarkers show no further metastatic cancer and the breast is the source. No tumor found, so they are calling it TNBC. My Ki67 is low, 11-15%. I feel like I’m the only one dealing…
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fungating tumor
how to treat a fungating breast cancer tumor
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Haiku for Fun
Hi everyone. I've seen some poetry and Haiku on individual threads, but thought we could use a separate thread. I am in no way an expert, and this is simply for fun, so we won't go nuts if you don't have a "cut" or nature theme or other rule. The only rule on this thread is a measured syllable poem. Most common is 5-7-5.…
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Is there just a general drop in breast cancer open forum that is current ?
Is there a breast cancer drop in text discussion group that is current ?
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Lumpectomy Lounge....let's talk!
WELCOME TO THE LUMPECTOMY LOUNGE! I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried). So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell…
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How to choose whether to do chemo or not
My oncologist has essentially told me that the decision about chemotherapy is mine. The research suggests that my type of cancer may not benefit much from chemo and that ovarian suppression may provide a similar benefit. I enrolled in the OFSET trial and was randomized to the arm that does not require chemotherapy, but my…
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Liposuction/Flying Squirrel
Hi. I have BCR lymphedema. It has been a long and difficult journey for me. I live in Tampa and have had limited success with treatment options and providers in this area. After being told by Moffitt there were no treatment options for me I went to Cleveland Clinic and met with Dr. Chen who recommended liposuction and…
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Invasive Lobular Cancer
Hi I'm Chris 73 years old diagnosed with Lobular invasive Breast Cancer grade 2 my first surgery was on the 6th May 2026 followed up with my report on the 4thJune 2026 meeting with my Surgeon. The tumour removed was 14mm and she also removed two smaller 3.5mm and 6mm ones in my left breast. I also had two Lymph Nodes…
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LVA surgery - bypass surgery - Have you done it?
I recently traveled to the University of Iowa to meet with Dr. Wei Chen a supermirosurgeon/plastic surgeon. I was referred to him by my PS. I had the Indocyanine Green Lymphography done and was amazed at what was seen both in my healthy arm and diseased arm. I was diagnosed under the Campisi Staging at Stage 2 as my LE is,…
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Liposuction for lymphedema/Vaser treatment
Any input anyone on these treatments. Grateful for any info Good wishes to all Anna
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Back after years - lymphedema surgical resources?
Hi everyone. I was diagnosed with lymphedema I think in early 2011, so it’s been a while. I used to be on this board a lot back then. I’ve stayed active and used compression and not had much trouble with flares of swelling. My swelling never goes away completely, but it’s still soft and it’s honestly quite subtle to the…
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Stage 2B with positive nodes
Husband here. If there's already a thread for Stage 2B with positive nodes, I apologize, as I missed it. I see a lot of discussion between ladies with Stage lll and between ladies with Stage l and a lot of dialogue for Stage lV only----but not much for Stage ll. I was interested in reaching out and finding what everyone's…
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Scares That Turned Out To Be Nothing
Husband here. My wife was diagnosed about 2 1/2 years ago. She is doing well. But that's not to say there haven't been more than a few moments of high anxiety thinking something's wrong or just waiting for test results to rule out a recurrence or mets. I hope it's ok with the great members here that I start a thread that's…
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Open Letter
I am a husband/ caregiver... I didn't know where this should be posted---and since my wife is going through treatment now, I just picked here. I have lurked since my wife's diagnosis and have been posting only for a few days. I can recognize a sisterhood when I see one. An army of kind souls. I am humbled by your humanity.…
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- Research News 116
- Mastectomy 111
- Podcast 97
- Metastatic Breast Cancer (MBC or Stage IV) 95
- Invasive Ductal Carcinoma (IDC) 86
- Lumpectomy 78
- tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox) 69
- Anxiety 68
- Triple-Negative Breast Cancer 63
- Ductal Carcinoma In Situ (DCIS) 58
- Lumpectomy vs. mastectomy 57
- ER-positive 53
- Breast implants 49
- Femara (letrozole) 45
- Taxol (paclitaxel) 42
- AIs (Aromatase Inhibitors) 42
- AC: Adriamycin and Cytoxan 41
- Arimidex (anastrozole) 41
- Dense breasts 41
- AC+T (Taxol): Adriamycin and Cytoxan plus Taxol 40
- Abdominal Pain 36
- Recurrent Breast Cancer 36
- Kisqali (ribociclib) 36
- Hormone receptor-positive HER2-negative 36
- Verzenio (abemaciclib) 36