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Dcis microinvasion
Waiting for results of slnb, had smx dcis was 80 x 83 x 80 so very large. What are the treatments usually given for the microinvasion ?
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Immunotherapy
I had my cardio cat scan everything was good, so why is my LVEF low? I must get back to treatment I worry my cancer will come out of Remission!
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Debra trial deescalating radiation for invasive DCIS
I recently was diagnosed with invasive DCIS and my surgeon told me that there is trial called the Debra trial I may qualify for. I have invasive DCIS stage 1 grade 1 ER+ and HER2- and it is smaller than 2cm. This so far qualifies me and the next step is to see if my oncotype gene score is between 1-18 and also would need…
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CRP Protein High
Hello, After being on letrozole for a few years, my CRP levels are high. They think that there is inflammation, I do have lymphedema but my Crp has never been high, Has anyone experienced this?
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Pain under left arm for last couple of weeks and am getting concerned
Background - I had a double mastectomy for stage 2B lobular breast cancer in December of 2012 followed by chemo and anastrozole ,and a lumpectomy for DCIS and radiation five years prior in 2007. Due to severe complications with the double mastectomy I was hospitalized for a month and came home with a pretty big dog ear on…
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Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
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Awaiting results for stage 4 mets to liver and lung
Hello All. I was diagnosed with stage 3 BC 16 years ago and had mastectomy, chemo and radiation. Have been in survivorship program for 15 years. Persistent cough took me to Er last week - CT showed multiple lesions in my lung and liver - dr thinks it is metastatic spread to organs. Had a liver biopsy yesterday. Awaiting…
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BioZorb Recall
I want to let all of you know that have had a BioZorb implanted during your breast cancer surgery that the FDA has recently made a Class 1 Recall on the device. This is the most serious FDA Recall possible. Google BioZorb Recall, Hologic BioZorb recall, FDA BioZorb Recall and you will read a lot of information about the…
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Hematoma
So……. Had my follow up with my breast surgeon today 2 weeks post lumpectomy. I’ve been having increased pain and swelling and generally feeling like crap. I can feel quite a large lump that starts over the incision going all the way down to my stomach quite painful! My lump was near my cleavage at the 8 o’clock position…
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Enhertu
good morning wondering how many people lost there hair on enhertu ?
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ANGIOSARCOMA RECURRENCE AFTER 20 MONTHS...
2017- Original diagnosis lump right breast, lumpectomy, radiation. 2021 - husband diagnosed with Alzheimer's due to Agent Orange. Dec 2023 - Angiosarcoma diagnosis due to radiation. 2024 - Chemo, no radiation, double radical mastectomy with flap on right side. First recommendation mastectomy on right breast only. Got 2nd…
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Trodelvy - Looking for positive feedback
Good morning everyone! I have been fighting this battle since 2004 when diagnosed with Stage 2 B breast cancer with metastasis to one node out of 15. After a partial mastectomy and taking Arimidex for 8 years, was in remission until 2019 until it came back with a vengeance to a Stage 4 with mets to my bones and a lesion in…
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Leaving Stage 3 for Stage 4
I was hoping to make the 5 year mark this summer, and add my name to the list of those who did make it, but I found out yesterday afternoon in the ER, that the cancer has now spread to the bones in my chest and spine. Not sure about next steps, as need to get in touch with oncologist for "new plan", but not looking good…
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Multiple skeletal Mets Strongly ER positive BC originally now showing as TNBC
originally diagnosed IDC grade 2 , stage 3A HR+ with Allred score 8/8 and HER2- at the age of 46, 10 years back . Surgery, chemo and radiation therapy done as part of treatment followed by 5 years of tamoxifen followed by 5 years of letrozole and Zolenic acid. Now got bone pain few months back. When done pet scan and MRI…
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Surgery scheduled for December 2025? Join the surgery waiting room for support!
Are you scheduled to have a lumpectomy or mastectomy in the month of December? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
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I just got diagnosed at 68, is this bad? Stage III (ER+, PR -, HER2 -)
I'd like to connect with people who have a similar diagnosis. • Primary tumor in the breast:
Invasive lobular carcinoma ILC
ER 95% positive
PR negative
HER2 negative
Ki 67 >10 • Cancer found in the axillary lymph nodes:
Invasive ductal carcinoma metastasis
ER 95% positive
PR negative
HER2 negative
Ki 67 >30
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Hormone blockers
I am supposed to start an aromatase inhibitor. I am 72 yo and am concerned about the joint pain and damage to bone density. I have been reading about the supplements DIM and CDG as an alternative and I wondered if anyone is using either or both of these and what is your experience?
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(Seek Help) Long Term Luminal A BC transformed into TNBC (Surgery done and under chemo)
Hi everyone who sees this post. I am posting this for my mom's circumstance. She has been diagnosed with breast cancer since 2007, which was luminal A category. She had reoccurance in 2016 and has been living as a metastasis patient since then with hormone therapy. Recently she has been newly diagnosed with a TNBC cancer…
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Staying flat after nipple-sparing double mastectomy?
I'm curious if anyone has made this decision, and if they had subsequent surgeries to tighten up loose skin or fill in any concavity? I had my nipple-sparing DMX in Sept 2025, with the initial plan of reconstruction. However now that I am wrapping up chemotherapy, I am considering remaining flat. I'm not sure what to do…
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Does Cancerization of Lobules = Microinvasion?
I can’t figure this out. Googling hasn’t helped. Does anyone know if Cancerization of Lobules (COL) by high grade DCIS means that patient had a type of Microinvasion, or not? I don’t know if it’s significant: My biopsy pathology was done by the lab of first breast surgeon, whom I fired for good reason. (No point getting…
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Long term benefits vs awful short term sacrifices
Hello all Lumpectomy Oct 21, post op meeting with surgeon, she said"pathology looks good, got the tumor, nothing in the lymph nodes, treatment remains radiation A week later, met with the MO who blindsided me with my high oncotype score(31), and recommended chemo. The idea of going through LBC/risk of infection, hair loss,…
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Feeling isolated after comedocarcinoma
Anyone out there who had grade 3 DCIS, subtype comedo (aka comedocarcinoma) with expansile comedo necrosis? I was ER- and also had cancerization of lobules by high grade DCIS. I had a bilateral mastectomy 2 months ago, which my surgeon and Nurse Navigator fully supported. I think they were relieved that I understood how…
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Older Woman Age 78 Triple Positive Update
Sharing My Current Findings: Jan 2026 Age: 78, soon to be 79 next month, Breast Cancer Confirmed: Location: Lower outer quadrant of the LEFT breast Size: 3.5 × 2.9 × 3.2 cm Nature: FDG-avid, heterogeneously enhancing, lobulated soft-tissue mass SUVmax: 8.83 Local spread: Overlying skin: Not involved Underlying chest…
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💛Starting chemo in January 2026? You don’t have to do this alone.💛
This is your space to show up exactly as you are—and to be surrounded by people who get it. Whether you’re feeling scared, strong, overwhelmed, hopeful, or all of the above, we invite you to share: How you’re feeling as chemo approaches Your planned regimen (if you want to share) How you’re preparing—physically,…
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Tamoxifen side effects
Hi, I am a 69-year-old woman and and I was diagnosed with stage Ia invasive ductal carcinoma in April of this year. I had a wide surgical excision , 19 treatments of whole breast radiation, and now I have been taking Tamoxifen , 10 mg every other day for two months. I am in a Low Tam research study, that us why the dose us…
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Aromatase Hormone inhibitor “5 year pill” side effects?
Has anyone used these? what were your experiences as far as side effects? cardio-muscular-bone damage?
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Anyone with ATM gene variant that decided to have a mastectomy?
Hello everyone. I finished chemo today and now trying to decide between a lumpectomy with radiation or a bilateral mastectomy. I'm seriously thinking about a mastectomy. Would anyone in a similar situation as me be willing to share their feedback on what helped you decide to go for a bilateral mastectomy? How are you…
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Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease
Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease Jan 6, 2026 When treating breast cancer that’s spread to the cerebrospinal fluid, proton therapy controlled the cancer better than traditional X-ray radiation. Read more…
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Enhertu Dose Reduction Results
Hi! I've had 8 infusions of Enhertu at the full dose level and have experienced side effects of fatigue and general crappiness, not in keeping with my quality of life wishes. Because of this, I'm seriously considering going to a lower dose of 4.4 mg. I can't find any data on how effective the drug is at this lower level,…