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Illinois ladies facing bc
I'm very curious about all the Illinois ladies who are making this breast cancer journey or who have finished it. Where are you located? What's your diagnosis? Where are you in your treatment plan? How's it going for you? I thought we might be surprised to find somebody right in our own back yard that could use some…
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How Many are doing 10 years on Aromatase Inhibitors
When I started on Femara, I was told I would need to take it for 5 years. Now that I have finally reached the 5 years (and having experienced many side affects from the drug along the way), many oncologists are now saying that it is best to extend treatment up to 10 years. How many out there, are being told to continue…
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Zoladex vs Ovary Removal
Hi, I am a 45 year old breast cancer survivor. I completed treatment for stage 3, Estrogen and Progesterone positive HER2 Negative last year. Since then, I have been on Zoladex (Gosserelin) and Letrozole and I ACHE. I've been told if I have my ovaries out, I can go off Zoladex and have options other than Letrozole; has…
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What’s one thing your body is teaching you this summer?
As summer settles in and the days grow longer (at least here in the Northern Hemisphere), July offers a gentle reminder: it’s okay to slow down. For many living with breast cancer, this season can bring moments of lightness — and moments that ask for extra care. So, weigh in below with what your body might be telling you…
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Can't Decide Between Lumpectomy or BM(x)
Age: 51 IDC stage 1 (possible2) right breast Estrogen Positive Tomorrow, I see my breast surgeon again, and I am supposed to share with him if I want to go for a Lumpectomy or mastectomy. If I did a mastectomy, I would do a double mastectomy. I have been thinking and thinking. In one way, it would be easier to do a…
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Positive LVI and Benefit vs Toxicity of Adjunct Treatment
Hi, I am new to this forum. I was Dx with DCIS 8 cm in March 2023 but elected to "wait and watch". I felt a painful tumor in February 2025 and after testing and resultant unilateral mastectomy in May 2025, Dx with Extensive Invasion of LVI in two or more blocks. My stats are Grade 3, ER+/PR-/HER2+ and Ki-67 = 60. The…
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Just diagnosed with ILC mets
Hi, all I had ILC back in 2008. Had radical mastectomy on the right breast and prophylactic on the left. Chemo AC→T, radiation and 7 years of Arimidex. 16 years later I am back in the game. Still in discovery phase. Had FDG Pet Scan that shows liver uptake, had endoscopy that shows little spot in the stomach consistent…
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Starting Chemo in March/April 2025?
Gather here to support one another!
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Irritability with Letrozole?
Is anyone else dealing with high irritability and low frustration tolerance while taking Letrozole? I'm usually an easy-going person. I ended up in a full-fledged tantrum this weekend over something really stupid. This is so outside my normal behavior, and it's starting to negatively impact my life. Has anyone else dealt…
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Newly Diagnosed Post Biopsy 50 years old
Hello everyone! I found this page on my own after I was given my biopsy results today. A nurse called and asked if I wanted results over the phone or come in. I opted for over the phone - but it seemed she could only share partial information: that the biopsy showed cancer in the fluid that was aspirated as well as the…
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How do you manage seasonal shifts?
How do you adjust your routines or mindset as the seasonal shifts throughout the year like end of summer, or shorter days and colder weather? Seasonal changes can compound fatigue, mood changes, and side effects, and the more health challenges someone is facing, the more impactful those seasonal shifts can become. Share…
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Just been diagnosed I'm only 37 waiting on Cat scan scared it's spread
Hello everyone never in a million years did I think I would be writing somewhere like this at 37 years old but here I am in what seems to be a club nobody actually wants to be in. All this started less than three weeks ago.out of nowhere I found a large lump under my armpit I went straight to the GP and was referred and…
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BIRAD5
just curious what the odds will be that this is benign. I had my first screening on 3/26 and came back they wanted more testing done. The women that did my mammogram said that they would do that and not to be worried. They called every day, texted and sent me a certified letter. Between work and the radiology office hours…
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Stage III Cancer Survivors...15+ years and out
Let's just see what happens here...This is a "build it and they will come" experiment. It's time. If you are not a 15 year survivor but know the story of someone who is, please join in.
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ILC LFET SIDE 46 MM , RIGHT SIDE 5MM IDC
I have diagnosed with ER/PR + HER2 negative on April 21st 2025. Bilateral mastectomy done with reconstruction ,tissue expanders in place . I will start radiation soon my left side . DXoncotype 16 Worried for the side effects of radiation .On Letrozole and lupron since May 2025
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Metaplastic
Hi One month ago i was diagnosed with a rare type of breast cancer Metaplastic with mixed differentiation. I have a positive lymph node and my surgeon recommend surgery first followed by chemo radiotherapy. The doctor told me that my prognosis is not so good and i might have one or two years with good quality of life due…
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Lumpectomy Planning: intraoperative margin techniques and need for a sentinel lymph node biopsy
I'm trying to help my spouse plan out a lumpectomy for her early stage breast cancer. Two things have come up in research: "no ink on tumor" margins are difficult to ensure and there is a risk for reexcision. It looks like there are techniques like Frozen Section Pathology or Fluorescence Guided Imaging that helps lower…
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Not sure what all of this means
I was just diagnosed with Invasive Ductal carcinoma. The diagnosis reads as follows: Left breast, core biopsy: -Invasive ductal carcinoma, modified Bloom-Richardson grade 2 of 3 (score 7 of 9). -Invasive carcinoma measures at least 6 mm in maximum dimension. -Focal associated ductal carcinoma in situ (DCIS), high nuclear…
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Radiation & tamoxifen - necessary...?
Hi everyone, I’d really appreciate hearing from others in a similar situation. I’m in my early 40s, no kids, not close to menopause, and recently had a lumpectomy for a 12 mm, grade 1, ER+/PR+ HER2- IDC (plus a small area of DCIS). Margins were clear, and there was no lymph node involvement. My Ki-67 is low (10%), and I’ve…
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PBMX for ALH or ADH?
Just wondering how many ladies out there decided to have prophylactic masectomies when your diagnosis was ALH or ADH? I know I can't be the only one.... Hugs to all, Valerie
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Hormone Replacement Therapy?
Hi all — I’ve been reading a recent research- esp. from the US, including the book Estrogen Matters, which questions the idea that women with breast cancer should automatically avoid Hormone Replacement Therapy (HRT), and how it can help with longevity etc. I’m planning to speak with my doctor about it, but I’m curious…
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Phesgo vs. H&P side effects
Hello all, I’m interested in hearing from others who’ve been on both Phesgo and H&P. Specifically, I’d like to know if you experienced more fatigue and worse side effects with Phesgo. I was dx’d in 2018 Stage IV de novo and did 6 rounds of Taxotere and H&P. I’ve been on maintenance treatment since then and have completed…
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Biozorb Marker Removal
Can you point me to a specific plastic surgeon that was willing to remove a recalled biozorb marker? My mom is anxious about hers remaining in her body but has struck out with local plastic surgeons being willing to remove it. I would love to compile a list of clinicians I can bring to her to connect with! Thank you so…
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Poll: What does “wellness” mean to you right now?
Living with breast cancer can change how we define wellness — physically, emotionally, and mentally. Cast your vote and see how others in the community are feeling, too.
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How has your definition of wellness changed?
Whether you’re in treatment, recovering, or living with metastatic breast cancer, how has your idea of wellness shifted since your diagnosis? What does it look like now?
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Checking on a website to order from
I hope it is okay that I am asking about a website. I am thinking of ordering something from survivorroom.com, but don't know anything about them except what I see on their website. I can't find any reviews about them outside of their website. They look legit and I will probably give it a try, but I am doing my due…
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Anyone with ONLY lung mets, E+, her2+?
Going through a lengthy incidentally found pulmonary nodule diagnostic journey (8 mm, low avidity on PET, nothing else lit up). It was found on a cardiac CT for high LDL (perfect score, no statin 🤪). Followup CT to prep for biopsy says nodule most likely benign but a few additional micronodules were found, scattered in my…
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Radiation is much harder than I anticipated!
Just finished 5 days…and have 5 more weeks to look forward to. After day 2, I met with my radiologist and she told me to start using the Miaderm because I'm already getting redness and swelling. After day 5 I feel like my breast is on fire and my sternum hurts when I touch it. Any favorite go-tos for relief?
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Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
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Update - Diagnosed with Triple Negative Breast Cancer
My cancer 20 years ago was HER2+. I'm looking at stage IV and I'm devasted.