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radiation-induced atypical vascular lesions (AVLs)
I've had radiation treatment twice for breast cancer in 2009 and 2019. In 2021, I developed four atypical vascular lesions on my mastectomy scar. They are a rare complication of radiation treatment and had to be removed. The surgeon removed them because in some cases these can lead to angiosarcoma, which is a death…
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Stage III Cancer Survivors ...Five + Years and Out.
A place to post hope for those who are stage 3. Please posts your stories of HOPE for those just starting this journey.
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Didn't have a clean margin, go back in and re-excise?
I had surgery 2 weeks ago (lumpectomy); and just got to meet with my surgeon. One of my margins wasn't clear and she's recommending going back in and doing another surgery. I'm scheduled to start chemo next week, and then radiation. Isn't the whole point of doing chemo and radiation to kill anything that might still be…
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Ten years later painful lump under implant
I had a double mastectomy with reconstruction ten years ago after having stage 1 ILC. I did NOT take the prescribed Tamoxifen. Now I have a hard knot/lump that also appears to be bruising under my right implant. It is sore and sometimes throbs or feels like it’s stinging when I am just sitting still. Anyone know what this…
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Brain MRI findings: "mild chronic microvascular disease" Anyone else have this?
I just completed a Brain MRI: no tumors! Yay! However, I did have "mild periventricular and subcortical white matter areas of T2/FLAIR hyperintense signal consistent with chronic microvascular disease." This was not mentioned in my brain MRI a year ago. Apparently, chronic microvascular disease, also known as small vessel…
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How fast can HER2 positive cells grow ?
i was diagnosed in Aug- 2024 with IDC Grade 3, 3 foci largest 3mm, extremely high grade DCIS of 8cm, HER2 positive score 3, HR negative, ki67: 90%, braca 1 and 2 negative, and i am 30 years old. At first on 28 July 2024 I did an ultrasound in a town hospital and they said it’s normal nothing to mention. Did it because i…
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BC treatment causing constipation, extreme gas and immediate urinary incontinence
Back story - Original ST 3C, now Newly Diag at 10 yr recurrence ST4 w/Metastatic (Bones) after detected by Signatera. After CT, MRI and PET scan collaboratively confirmed, immediately was started on IBRANCE, FULVEST, XGEVA - Like you, I am sad that I am here writing this note but thankful for this community of support.…
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Sex is difficult
I am finished with right mastectomy and reconstruction and left breast reduction and I'm on Anastrazole for 3 more years. My biggest issue is with sex. We always had a great relationship with sex. It was wonderful. Now I find, I cannot climax. I actually don't really have any pleasurable feelings when he touches me. I use…
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Enhertu
I am in the middle of my second cycle of Enhurtu. I’m having mixed feelings, side effects and emotions. Side effects are real, but can I deal with them if it works?? I have not got a port and am going to hold off as sling as I can. I just want to know if anyone else has a schedule of side effects that seem to repeat. Like…
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Can't get in to surgeon for 6 months.
I was diagnosed with stage 2A ILC 2/10/25 and can't get an appointment with surgeon until June At that appointment they will refer me to a plastic surgeon for immediate reconstruction after the mastectomy but it will take another 3 months to get in for that consult. I am really nervous because by the time I actually have…
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Kisqali side effects and timing
I was diagnosed with stage four NBC earlier this year and just started a combination of anastrozole and Kisqali. I am three weeks on with one week off. I have experienced some persistent nausea, but most concerning is my serious fatigue. I’m wondering if this improves over the months as you continue with the Kisqali? I’m…
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First Time Taking Low Dose Tamoxifen - Side Effects
I started 5mg of Tamoxifen today and within a few hours had several side effects: dry mouth, headache, light headedness, nausea, bad tinnitus, and feeling cold. It seemed pretty quick. Has anyone else developed side effects so quickly? Thank you!
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Parathyroid disease and breast cancer
I keep on seeing posts that people have had these dual diagnoses; sometimes the parathyroid disease pre-dated the bc and sometimes the other way round. I am becoming convinced that the two are causally related, so am interested to see just how many of you have been affected. Many of us are getting osteoporotic and blaming…
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"Tamoxifen Road" - Support and Encouragement
For those that are taking Tamoxifen, considering taking Tamoxifen and need support, and for those that have completed Tamoxifen Therapy. There is alot of good and helpful information on many threads. Thought it would be nice to have information and experiences logged together on Breastcancer.org in a main Tamoxifen thread.…
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Dealing with Lymphedema w/o surgery?
Hi community. I'm posting since I haven't found a similar case yet. I opted out on surgery and chemo (too late), and it's been a good run for 7 years. The LE came on slowly to rt arm, dr diagnosed. Now its in both feet, then the left breast just swelled in size. No real noticeable discoloration. Has anyone else had LE…
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What did your radiologist say when you were referred for a biopsy?
Hi there. I had my first two screening mammograms in 2018 and 2019. Life got in the way and I haven't had another one until just recently where they found calcifications (that were not there previously) in my left breast only. I went back for a diagnostic mammogram and ultrasound. I knew something was weird when the tech…
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Brain metastases experience?
Hello, my name is Charlie. NHS in the UK. My mum (42) this year has been suffering headaces, weakness on her right side, balance issue, vision and speech. We kept going to our GP but she kept brushing it off and kept prescribing stronger and stronger pain killers for the persistent headaches. Granted she has a history of…
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"Cancer Care" by Paul Marik
Does anyone know if this book contains legit information? The person who gave it to me is very much anti-"traditional" medicine... but the book itself contains peer-reviewed references. I would obviously discuss any specifics with my oncologist. Just wondering how much time I should invest browsing it, since my time and…
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Is It Normal for Skin Sensitivity to Appear Weeks After Radiation Ends?
Hello I finished my radiation therapy about three weeks ago & while my skin seemed to heal well initially; I am now experiencing delayed sensitivity almost like a sunburn that wasn’t there before. 😑 The area feels warm and slightly itchy & some mild redness has reappeared. I expected side effects to gradually improve, not…
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Breast cancer treatment and living alone
Hello, I was recently diagnosed with BC. I live alone and fear everything that's going to happen to me. The unknown is scary. Does anyone live alone and going through chemo and everything that has to do with BC.
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This piece is for anyone navigating loss.
I wrote this personal story about grief, healing, and the small things that helped me find my way back after losing my mum to breast cancer in 2023. If you're going through something similar, I hope it brings a bit of comfort. You’re not alone. ✨🤍 https://www.olivesbay.co/journal/love-loss-resilience With love, Vanessa
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Lupron, Tamoxifen and Oncotype
Hello All, I had Stage 2A grade 3 DCIS & IDCIS Cancer. Im 42 and a Mas w/DEIP. My oncotype number was 19 with a 6% chance of recurrence however my oncologist used a tool call Exact Science RSClin tool that says given how big my tumors were (biggest tumor was 28mm) and high grade that my recurrence rate is 17% with only…
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Tamoxifen side effects and your experiences
Hello I am Vanessa. I am 47 no menopause. I was diagnosed with LCIS in December (11 mm) + atypical ductal & lobular hyperplasia. Had my surgery in January 2025. No quimio nor radio therapy was needed. Just tamoxifen (20 mg). It has been a roller coaster in several ways. I had to take of mirena, change medication like…
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Morning Anxiety 6 Years Post-Treatment
would seeing a therapist who specialized in cancer survivors help me get rid of anxiety. Meds don’t work. It’s 6 years. I feel terrible all the time, like I’m dying. I’m not dying now, will someday but want to stop it. i wake up with anxiety bd, then exercise it gets a little better by evening it is much better. it’s very…
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Have summer self-care tips that’s helped you feel your best?
Let's all share summer self-care tips here! Bring them on!
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Diagnosed 1 mnth+ ago, deciding on treatment
Hi ladies! Been lurking here since i got birad5 on my ultrasound, this's my 1st post. I had a single mastectomy on my right breast. Final pathology showed idc 2.2cm with dcis, grade1, ki67 5-7%. Er/pr+, her2- (fish and oncotype dx confirmed), no lymph node/vascular involvement 0/6. My oncotype score is 11, 3% recurrence in…
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Spinal cancer symptoms??
I would like to know if anyone has experienced severe rectal pain and burning and then diagnosed with spinal mets. I had ILC in the left breast and had a mastectomy in January 2023. I had radiation in May and June 2023. There was spread to one node. I was placed on Anastrozole, changed to Exemestane and then finally to…
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Asymmetry and distortion BIRADS 4
I am a 42 year old woman. I did my first ever screening beginning of this year. I went for a biopsy last week for asymmetry and distortion in 2 regions on same breast. Each region less than 1 cm. I will know the results next week, but anxious. Google says ppv for distortion malignancy is 75%. I had assumed the chances are…
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Anyone regret going flat?
I'm finishing up chemo next month and will have to make a final decision about whether or not to do reconstruction. I'm planning on having both breasts removed. I do not want implants, so I'm choosing between going flat or DIEP fat grafting. A few weeks ago, I was just fed up with the whole multiple surgery, lengthy…
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2020 Running Thread
Hello Pink Runners -- everyone is a runner no matter how far or how fast -- let's talk about our running and our running as it relates to being newly diagnosed, going through surgery, going through treatment, and beyond. If you would like to share your race schedule please do so -- you don't have to enter any races to be…