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Drains out today - started to cry
Double Mastectomy was on March 13th. My drains were removed today, and saline was injected into the expanders. All is going well with recovery from surgery. When my husband and I left the office and walked to the elevator, I started crying. Tears of joy, tears of exhaustion. When I was first diagnosed and met with my…
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Bilateral Mastectomy with Immediate Reconstruction
Hello, I was diagnosed with breast cancer in January and started Chemo last week. I've asked for a bilateral mastectomy with immediate reconstruction using implants. I'm worried about the recovery. I've never had any surgeries before. I'm in my early 30s, so the bilateral makes sense to me. Are there any tips anyone can…
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Talk me off the ledge
I'm just about 1 year out from my Stage 1 diagnosis. Had a double mastectomy last July with reconstruction. Tissue expanders were exchanged for implants in November. Had to have a bit of fat grafting/scar revision this past April. Just after this last surgery, I felt a small lump just above my implant. At the time, I…
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Nutrition and Breast Cancer
Nutrition and Breast Cancer Mar 22, 2024 Registered dietitian and oncology nutrition specialist Hillary Sachs helps Melissa Jenkins moderate a special Virtual Community Meetup on nutrition and breast cancer. After a breast cancer diagnosis, many people want to eat more healthfully. This podcast is the audio from a special…
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Scared - recent Mammo shows asymmetries on left breast need additional imaging
Hi everyone, Scared lady here! I have been having mammograms for the past 10 years annually. Went in this week expecting all to be normal. I got on my chart and it shows that additional imaging is needed to to multiple asymmetries in the left breast. I think the machine doing the imaging was a 3d machine. Anyhow in the…
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MRI - Interpret results
Hi all, I went in August 2023 for a mammogram and all was fine minus a few cysts and have been recommended to a high risk clinic due to family history. This month I had my first MRI and now waiting to do biopsy. While I endlessly Google would anyone be able to interpret these results? It seems like a very large mass to…
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Can fibrocystic breast be misdiagnosed?
Can fibrocystic breast be misdiagnosed? Below are my results from my MRI and biopsy, when I research fibrocystic changes, I can't find anything related to birads 4b, plateau enhancement, etc but I do find cancer being misdiagnosed as fibrocystic changes. In the last few months, I have been misdiagnosed due to radiologists…
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Understanding my ultrasound
I have read this 100 times & just get more anxious. Age: 48.9 years Family history: mother has breast cancer at 73 years. Gene mutation report below if someone can help me better understand please Narrative & Impression EXAM:BI 2D DIAGNOSTIC MAMMOGRAM BILATERAL; BI US BREAST LIMITED BILATERALPatient Name: MCPHERSON,…
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Getting scan results today, scared
Getting scan results of bone and CT after 3 months of tx. Nothing really to compare them to, since I had PET and MRI for dx. I'm scared, and need reassurance. Thanks.
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FDA Approves Enhertu for Unresectable or Pretreated HER2+ MBC
FDA Approves Enhertu for Unresectable or Pretreated Metastatic HER2-Positive Breast Cancer January 2, 2020 On Dec. 20, 2019, the U.S. Food and Drug Administration approved Enhertu (chemical name: fam-trastuzumab deruxtecan-nxki) to treat people diagnosed with unresectable HER2-positive breast cancer or metastatic…
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Critical Illness and Life Insurance - Recommendations for British Columbia, Canada
Hello. I’m woefully disorganized and unprepared for this - as are probably most of us. Can anyone recommend an insurance agent to walk me through what, if any, options may exist that I can begin to investigate for immediate purchase, or post treatment. I have some, but not much coverage, and am kicking myself for not…
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tnbc mutated to hormone positive?
Has anyone had their tnbc mutate to be hormone positive? I was originally 99% er+ and 1% pr+. Then I was tn. Now I'm 95% er+ and 75% pr+! My understanding is that breast cancer usually becomes less hormone positive, not more…I'm not sure what to think…
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Ovary Removal, MRI Screening for Breast Cancer Saves Lives in Women With BRCA Mutation
Ovary Removal, MRI Screening for Breast Cancer Saves Lives in Women With BRCA Mutation Mar 18, 2024 Women with a BRCA1 or BRCA2 mutation have a higher-than-average risk of breast and ovarian cancer. Two preventive strategies may reduce the risk of death among women with these mutations. Read more…
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DCIS Diagnosed Outside Regular Screening Increases Invasive Disease Risk by 400%
DCIS Diagnosed Outside Regular Screening Increases Invasive Disease Risk by 400% Mar 7, 2024 If DCIS is found before regular mammograms start or in between regular screening, it more than quadruples the risk of invasive breast cancer. Read more…
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Benign biopsy but in need of lumpectomy
Hi all, I recently found a lump and was told to monitor it I ended up getting a comprehensive mammogram in February followed by a biopsy that came back negative but possible phyllodes tumor. I am scheduled for a lumpectomy on March 22nd I am concerned first and foremost that the pathology on the core needle biopsy was not…
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20 years and still around
Am posting after a long gap. Want to let you all know that I had my recent Pet scan this week and got all clear. My first diagnosis was in 2004 and recurrence in 2021. I am on my 29th cycle of Fulvestrant and Ibrance. In December 2021. I had mets in spine, lungs, liver adrenal glands, chest walls. My latest scan this week…
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Moved: Battling triple-negative, non-hormone-sensitive metastatic breast cancer
This discussion has been moved.
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Battling triple-negative, non-hormone-sensitive metastatic breast cancer
Hello dear community, My name is Yvonne, I am 56 years old and from the Netherlands, and I am currently battling metastatic, triple-negative, non-hormone-sensitive metastatic breast cancer. After undergoing treatments with capecitabine and paclitaxel, my oncologists have identified Trodelvy (sacituzumab govitecan) as a…
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3 cancers 2 same type and 3rd is opposite type
My first time posting.... I had double mastectomy and had cancer in both lymphs. Each side were Er/Pr + and HER 2- (in breast and lymphs). And during surgery they also found a 3rd cancer that was opposite Er/Pr- and HER2+. (I got the brass ring! ) Luckly, I had good margins on all. One was stage IA and 2 were stage IIA'S.…
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Stage 4 lobular, what treatment next?
Hello, My 49yr old sister has stage 4 lobular diagnosed last April. She has a PIK3CA mutation. She was diagnosed stage 2 , 5 yrs ago and was treated with taxol and then 5 yrs of tamoxifen She has bone mets and also had a hysterectomy and they found lobular in uterus/ovaries etc back in April of last year. She failed on 1st…
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Scanxiety and accuracy of scans
Hi all, I am right now having tremendous scanxiety about two scans I had on Tuesday. One was a nuclear bone scan, the other was a CT scan. They were supposed to reveal progress (or progression) after 3 months of Fulvestrant and 300 mg of daily Verzenio. I never had a bone scan before. The stupid technician came in after it…
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Recurrence symptoms: swelling and heaviness?
Hi all, Has anyone experienced mild swelling or a feeling of heaviness in the breast as a symptom of local recurrence? No pain, redness or itching, but something just feels “off”. Laying on my back feels like something kind of heavy it sitting on my treated breast. Already have yearly mammo and US next week and will…
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Mammogram - recall severe anxiety and depression
I’m terrified ..I was recalled after my mammogram for the results below.. I’m going for a diagnostic mammogram/ultrasound .. can’t eat or sleep … I need information because Google has me in panic mode….any help would be appreciated… I’m 67 with dense breasts
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Kisqali (Ribociclib), Faslodex (Fulvestrant), Femara (Letrozole) - is anyone on this combo?
After many years on Faslodex and Femara, my onc has decided to add Kisqali to the mix as my tumour markers are rising to the 100s although my ct scans appear stable. I haven't noticed anyone posting about this particular combination. I'm very nervous about the side-effects and I'd love to hear how people are doing. Is it…
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What’s on your bucket list?
I am currently working on my bucket list and it got me wondering what everyone else wants to see and do. My list below in no particular order. Go parasailing (done May 2018) Go on a cruise (done Feb 2019) Go to the Bahamas (done Feb 2019) Go to Jamaica Go to Hungary and Ireland See the Northern Lights See Hepcat (Ska band)…
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TE/Implant OVER pectoral Can exercise, comfortable &NO RIPPLES!
I want to put this out there as an option for implant reconstruction. Initially I had uni mx and delayed reconstruction with a TE put under my pectoral muscle. Hated, just hated it. Was painful and crampy for all the muscles of my chest. No strength because my pectoral muscle was cut. So bad I couldn't open a bag of chips.…
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My whole body feels scared - possible findings, biopsy and axillary aspiration
I was nervous just coming up on five years, and then my sonogram was inconclusive which caused days of fear, and then the second reading found a mass just by my nipple (on the good side) and enlarged lymph nodes (on my surgery side). Now I need a biopsy and an axillary aspiration and the soonest appointment is next Monday.…
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Skull mets
I was told back in the beginning of 2021, after a brain MRI, that I had skull mets to the calvarium. I wasn’t offered any treatment for them. I’m assuming because I had no symptoms. Lately I’ve seen a number posting about skull mets and having SBRT. Am I assuming if I had no symptoms and I’m covered from skull to femurs in…
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Mammogram recall
I have been getting mammograms every 6 months for about 5 years now and every other time they use contrast enhanced dye. In all that time, I was never recalled for further diagnostic imaging… until now. I’m a bit stressed to say the least. How often have you guys been recalled? Has the outcome always been good? Did it end…
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Anyone Watching & Waiting tiny DCIS?
Curious if there are women whose doctors suggested watching a small piece of dcis instead of lumpectomy? And if so, how long did you wait it out? This is my second bout of dcis, the first, I did have a lumpectomy. No radiation. I was supposed to take Tamox—Didn't, for a variety of reasons. Fast forward a few years, new…