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Navelbine chemo
Just started oral Navelbine for lung mets (Was on Xeloda for a year some lung progression in October 23) Not much recent info here on this therapy but seems to be working for me 120 mg once per week for 8 weeks reduced CA15 from 84 to 40 Now on 140 mg No major side effects Ct scan and Bone scan in 3 weeks Bright in Hope
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Help understand my diagnosis
It's been 11 months since my diagnosis and I'm still so confused and scared. I was diagnosed with hormone positive and her negative bc. Alred 7 out of 8 estrogen and 4 out of 8 progesterone. Tubule 3, nuclear 3, and mitotic 1. 40 to 50 percent mucinous. 2.4 cm tumor and 0.3 micrometastis in sentinal lymph node. Focal lvi.…
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Disclosing diagnosis at job interview?
I am in the process of looking for a new job. I’m not sure how to address my diagnosis… 1. I need to know if they will be able to work around all of my dr appts. My current employer has been great about that, but I’ve been here for 9 yrs. 2. If they do hire me, I don’t want them to feel that I was dishonest if I don’t…
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Infection after Mastectomy with tissue expanders
Developed terrible infection in right breast seven days after double mastectomy with tissue expander placement. High fever, chills, skin necrosis, blistering and breast leaking from incisions. Expander removed, cultures taken, flushed area and closed back up. Proper oral antibiotic received once the bacteria were…
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Scared!
Hello all! Scared!! Found a lump the other day in my 12-year post diagnosis breast. I had DMX, followed by chemo, bilateral reconstruction, a fat graft transfer and 10 years of anastrazole. At the time, I was stage 2 grade 1 and no LVI. I saw my primary today and was referred to our local breast cancer center, but I can't…
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I cant believe this - please help
My mom's psychiatrist is paying off his patient's medical debt if he sees them struggling. He was just nominated to win 10K that he is putting toward seeing patients FOR FREE and paying off the medical debt of patients that were laid off due to the pandemic. Can't believe this man's heart. you can read more about his story…
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Trying to decide if DTI is the way to go
Recently diagnosed with stage 1 ILC. Surgeon says I am a candidate for DTI, direct to implant surgery. anyone have this type of surgery, pros and cons?
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ABUS results
Hello, I am 61yr F with history of benign tumors and extremely dense fibrocystic breasts. 6 months ago I had negative Mammo, with ABUS ordered, but delayed testing as local did not have ABUS. ABUS just completed with FINDINGS: RIGHT 1) MASS [A]: There is a mass seen in the right breast at 7 and 8 o'clock, 3 cm from the…
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Breast reconstruction..which option is best, especially if you had radiation
Hi everyone, my name is Andy. I had a mastectomy on my left breast in March 2023 and have just consulted a plastic surgeon about reconstruction options. Can anyone who has had implants, flap-fat grafting, or DIEP flap share their experiences with me? I am kind of indecisive, but I would love to go for fat grafting, but I…
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Is anyone from NYC here
Was wondering if anyone knows any really amazing oncologists here, I'm not thrilled with the doc I have, was hoping for a specialist that does only patients in Manhattan with stage iv. Any advice you can give would be of great help, as there are so many doctors when I start searching on google I have no idea who tto call…
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Newly diagnosed HR+ with 2 positive lymph nodes
See message below
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Ghost and Other Phenomena: What's your Story?
I have had many in my life, not sure when the earliest occurred. Perhaps, the inner voice that cautions is the strongest in me. It's totally different than the right left angels talking to each other on our shoulders. It's the voice that says something different. Mine have always been short seriously abrupt messages. "No',…
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Stage 4- Docetaxol (Taxotere) Treatment
Last week, I started a new-to-me IV Chemo after progression while on Doxil. I have searched the Stage 4 posts but not finding much so wanted to have a thread to post my “story” to allow a place to ask questions as well as posting experiences, hoping to help others if they move to Docetaxel, too.
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Traveling with MBC - Inspire others with your vacation experiences and tips!
Hi everyone! We have a new content highlight on Traveling With Breast Cancer, and would love you to share your tips, experiences, memories, and advice for those with metastatic breast cancer who are considering traveling, but might not feel well enough, think they don't have the energy, are concerned about risks of travel,…
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Borderline Phyllodes Tumor Diagnosis at 22
Hi everyone, I'm a 22-year-old dealing with a recent diagnosis of a borderline phyllodes tumor, and I could use some guidance and support. On 11/10, I noticed a tumor, leading to a biopsy on 11/14. The biopsy results were inconclusive, and a lumpectomy on 12/6 revealed a borderline phyllodes tumor with negative margins.…
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Low invasive duct alcarcinoma
I had a lumpectomy in October and node clearance december, then radiotherapy for 5 days My cancer was grade 2 low invasive ductal carcinoma I need to go on abemaciclib tablet for 2 years and wondered if anyone is on this tablet thank you
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Passing By to Say Hi!
Hello everyone, GN, here. I hope everyone is doing well. I am dropping by to say hello/hi to you all. Unfortunately, I have some scheduling conflicts, so I am able to attend the meetings. However, as soon as I can, I'll log in. New: I started the new treatment, not great on the body, but trying to hold on and manage.…
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Verzenio and implant complications
Hello, I am excited to join this virtual community. I was diagnosed with breast cancer in October of 23, stage 2 with one lymph node involvement. I did a double mastectomy, chemotherapy, radiation and I'm now taking anastrazole, lupron injections and had been on Verzenio for 7 months. About 3-4 months after taking…
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Looking for Advice on Managing Side Effects of Hormone Therapy
Hi everyone, I’m reaching out to hear from those who have experience with hormone therapy for breast cancer treatment. I was recently prescribed [insert specific medication, e.g., Tamoxifen, Letrozole] as part of my treatment plan, and while I understand its importance, I’m struggling with some of the side effects. So far,…
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Birads 4 after mammo
After a mammogram, I received the following results with two suspicious areas BI-RADS 4 1st Mass: • Shape: Irregular • Density: Isodense • Margins: Indistinct 2nd Mass: • Shape: Round • Density: Isodense • Margins: Shadowed Has anyone had a similar result? I was not given a subcategory. I have to wait until…
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Kadcyla for residual disease after neo adjuvant chemo
Hi All, Starting a new Kadcyla thread as there wasn't one before. I will be starting Kadcyla soon as there was residual disease from surgery pathology report. Kadcyla for 14 cycles is what is recommended. Any of you who have already been on Kadcyla please share how it is going for you.
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Calcification
I am a10 year survivor took a mammography and they say I have calcification on my healthy left breast and they want to do a biopsy it kind of sacres me because i am afraid it might be back. What is calcification?
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Chronic fatigue
hello all, I had a question about chronic fatigue and my triple negative breast cancer. I am waiting for my surgery date but the past few months I have been so fatigue. Could this feeling tired like being exhausted all day feeling be from the cancer? Has anyone else experienced this? Also is their any safe way to get some…
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Long-term side-effect of radiation-stromal fibrosis
I am wondering if there are articles or more information available about "stromal fibrosis" after radiation therapy. 2.5 years post lumpectomy and radiation for ILC, with recent biopsy-proven diagnosis of "stromal fibrosis". Any information would be helpful! Thank you.
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Liver Lesion
Hello, All. I am coming up on seven years cancer free this summer after being dx with stage III breast cancer . Double Masectomy, removed ovaries and fallopian tubes. Several scares of reoccurrence over the years, but so far none. Enter Jan 2025! DExA scan shows osteoporosis so had blood work before starting Zometa to…
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Beautiful home hospice care story
Hi everyone. I just read this beautiful story written by a daughter whose parent decided to have hospice care at his home. It seems that sharing it would be a positive contribution to those like myself who are nearing the end of their experience with cancer, and thinking about hospice care at home. Here's the link :…
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"distortion" on mammogram
Hello, I was just wondering if anyone knows if there is a difference between "distortion" and "architectual distortion" on a mammogram. My finding just said "Right Distortion". They are recommending a follow up, of course. Thanks!
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Implant got infected
I have not been here in a while. Three years ago I was diagnosed with Lobular stage 3b no nodes. Had chemo and rads and a DMX with reconstructive surgery. Fast forward to today. I had revision surgery 1 month ago. Everything went well until I got a sudden infection on the side that was radiated three years ago. So my PS…
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Medication for ER positive breast cancer
I was on Arimidex (name brand anastrozole) for 8 years after my last breast cancer diagnosis. Even though I was taking the drug, I still got a new breast cancer - one that is ER+ (last cancer was triple positive). The cancer was tiny (5 mm) and was actually totally removed with the biopsy. I had a mastectomy and the cancer…
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Advice needed - symptoms ongoing for over 18 months now
Hello everyone. I posted on here a few times many months ago, but considering I’m still suffering with no answers, I decided to come back for some advice. First, I no longer have a gynecologist that I feel comfortable with as the woman I was seeing left the group and since then I’ve been bounced around with no relationship…