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Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer
Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer Dec 7, 2023 Adding Tukysa to Kadcyla improved outcomes for metastatic HER2-positive disease. Read more…
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Worried about IBC. What were your IBC symptoms?
Good day! I am a 30 year old mom of 2 little girls. Currently being assessed for breast disease. Here's a little background: In February 2020, I felt a lump in my RIGHT breast, the skin of the areola turned very dark, and part of my nipple inverted. I went to my OB-Gyn and he ordered mammogram and breast ultrasound which…
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Lupron plus AI
I gave chosen to go the aggressive route of monthly lupron shots plus an AI rather than tamoxifen. I was 38 at diagnosis and 39 now. I have just read that it is possible to have incomplete ovarian suppression which would make my estrogen levels too high for the AI. Anyone else doing this course concerned? My MO says she is…
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Choosing Between Double Mastectomy or Lumpectomy
I’m meeting with my surgeon this week to decide on surgery. I have 2 different types of cancer in both breasts. What are your thoughts or experience with double mastectomy vs mastectomy plus lumpectomy? I’m in my late sixties.
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Who has had both implants and DIEP?
I had a direct to implant BMX with 535cc silicone implants in October 2021, followed by radiation on my left side in June 2022. I had fat grafting in June 2023 to try and break up/loosen the radiated tissue, with limited success. My chest feels heavy, cold, and tight, especially on my radiated side. My boobs look…
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Piqray
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New here, found out 4 days ago MBC
Hi all, I've written long posts on other discussion threads, but I'll keep it short here. I feel like I'll get more responses at this board till I know more about my dx and what other threads I need to check. I was dx 4 days ago with lung/abdomen and probably ureter mets. PET scan revealed. I'm not ready to hear stats…
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Lump but negative imaging
I noticed a lump in my left breast on 11/16 and was seen the next day. My Dr ordered a mammogram and ultrasound. Since originally finding the lump, I also found a second smaller lump on the same breast. After getting imaging done yesterday, the radiologist told me that they can’t see anything remarkable on my scans with…
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Stage 2 triple negative breast cancer
I was diagnosed with stage 2 triple negative breast cancer. Because my tumor is aggressive and fast growing they flipped the treatment around from doing surgery first and starting chemo instead. I have made my decision from the choices I was giving which basically was double mastectomy followed by reconstructive surgery. I…
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Sleeves and rowing machine!!
Hi Can anyone please help .. I have been using a rowing machine for past few months and my arm is now swelling up , sorry it's got no lymph nodes. Should I be wearing a compression sleeve ? Thanks
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Surprise upgrade of benign radial scar to IDC grade 1 t1b
Hi all, I am a new member of this club and I am glad I found this forum. Brief history about my case: I was diagnosed with radial scar during routine mammogram. When a core needle biopsy was done it came back as benign but my doctor insisted on getting a lumpectomy. Now my doctor called me and told me that actually they…
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Courage to Stay Positive Through Chemo and Surgery Decisions
I’m off to round 4 of Tchp tomorrow. I’m feeling overwhelmed and anxious about the long day ahead. Needing a bit of encouragement this morning. Also meeting with surgeon on Thursday to decide between single mastectomy plus lumpectomy or double mastectomies. I have two kinds of cancer one in each breast. The past five…
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Diagnosed 3.5 weeks ago
I thought I had previously posted here but if so I can't find it. I've had a crash course on breast cancer. I have ER+PR+ HER2- . Tomorrow morning I am having surgery. A lumpectomy and some type of node removal and testing then either more nodes or not depending on test. I wish I had thought to come here earlier to ask..…
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Ibrance 100mg and femara
Hi, I have an oligometastatic and I have been taking these medication for 6 months. My blood count white cells were sooo low that my doc decrease the dosis. And I felt much better. Although count doesn’t increase much. I have shots regularly to increase white cells. My energy levels are usually good. Sometimes I get sick…
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Eagle Pharmacy for the brand name Arimidex
Does anyone know if Eagle Pharmacy online is a reputable pharmacy for brand name hormonal medications? I'm going to give the treatment one more try with the brand name Arimidex and not the generic anastrozole. My oncologist agreed to monitor me if I decide not to do the hormonal treatment due to the awful side effects I…
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Verzenio + fulvestrant increased OS in ER+/HER2+ MBC
I guess this could eventually mean a new first line for estrogen positive HER2+ patients. This was just a Phase 2 trial so I suppose there has to be a Phase 3 before it would become common in clinical use. Looks like they didn’t include Perjeta (pertuzumab) in this protocol, either. CONCLUSION: In this phase II trial,…
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Anyone else with just liver mets
is there anyone else on the board with stage IV only in liver? It seems everyone else has liver and….bone,brain,etc. I’m not complaining but at age 77 keep wondering what’s next or if we are missing something. I feel so sad for the young women and feel I’ve had a full life and I know where I’m going when I die. Not in a…
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The Losses We Feel After a Metastatic Breast Cancer Diagnosis
The Losses We Feel After a Metastatic Breast Cancer Diagnosis Dec 1, 2023 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on the losses people feel after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many losses: not being…
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Questions and any advice for straight to implant reconstruction?
Looking for advice and suggestions on how to be best prepared for my surgery and any other questions I should consider for my PS. Two weeks ago I had a lumpectomy bilateral reduction. Love my new breasts. Sadly, the left reduction tissue was chock full of DCIS. The more you know… right? I get to heal for a couple of months…
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Diagnosed with MBC!
10 years ago, I was diagnosed with breast cancer. I had a lumpectomy, chemo, a mastectomy, radiation and reconstruction. In April of this year I was diagnosed with MBC. I am on Kisqali. After initial side effects, I have adjusted to the meds and have been asymptomatic. Physically I am doing okay. Emotionally I am a roller…
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Pneumonitis
I have been MIA for a while. Starting this new topic for those DX’d with pneumonitis while MBC. October 2020, my TX was changed to Afinitor and Exemestane. In November, I started to wake up at night feeling like I couldn’t breath. Afraid to lay back down, I would get up and sleep sitting up in my recliner. Due to CoVid,…
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Everolimus
Has anyone been on everolimus? Doctor might switch to this from verzenio.
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Treating Faslodex-related acne
The newest insult to injury, my face looks like a sullen 16 year old. Has anyone dealt with acne following your Faslodex injection?
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After-surgery Pain/In search of revision options
Hi. I am am a two-time DCIS survivor, once in 2009, and once in 2019, in the other breast. I went w/ Reconstruction in 2009, which did not go well, so I had the implant swapped out in 2011, for a different kind. That one hurt, but I just lived with it. It stretched my skin too tightly, restricted my shoulder movement, and…
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Surgeons in NY/CT/NJ area that do mastectomy + BRAVA expansion system + fat grafting reconstruction
I am BRCA1 positive, needing to do prophylactic risk reducing mastectomy very soon. Almost all of my immediate female members in my family have been diagnosed with breast cancer (mother, both grandmothers, three aunts), some in their 30s. Most have BRCA1, the rest have not been tested. My oncology team in located in NYC. I…
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Waiting for biopsy/ultrasound for left breast
Hi, I just got back from the doctor and I had a follow-up mammogram/ultrasound. The doctor said they found a suspicious spot on my left breast and now I have to wait 19 days for a follow-up biopsy/ultrasound. I am very scared and nervous and looking for support.
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Sclerosing adenosis
Hi everyone I'm looking for some advice. I'm an American who lives in Mexico. In may I went for a 3d mammogram and they found suspicious lumps in both breasts and did 2 immediate core biopsies. Thankfully 1 came back as good and the other side they said had schlerosing adenosis which is benign. The doctor recommended…
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Node Testing for Contralateral Prophylactic Mastectomy?
Hello! I am so grateful this board exists! I (48 yrs old) was just diagnosed with high grade, ER+/PR+ DCIS in my left breast (by mammogram and a stereotactic biopsy.) In hopes of avoiding radiation and hormone therapy, and for symmetry, I am wanting to do a bilateral mastectomy with aesthetic flat closure. I was told my…
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Asymmetries with Architectural Distortion help
A someone help me decipher and maybe there’s someone who can relate?? Super worried after reading about this stuff.. FINDINGS: The breast tissue is extremely dense, which lowers the sensitivity of mammography. RIGHT BREAST There is an asymmetry with possible associated architectural distortion in the mid aspect of the…
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Tamoxifen
I was told I would need to take this after surgery for 5 years. I took it on two separate days (2 pills) and refused to take this medication, at the advice of my breast surgeon. I have to take a statin for high cholesterol and gabapentin for pain and currently was approved for short-term disability due to pain in my right…