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VIRTUAL MEETUPS for people in treatment for breast cancer!
Letting you all know that we host moderated VIRTUAL MEETUPS for people in treatment for breast cancer. Register here and you'll receive a zoom confirmation with all the information! Tuesdays at 1:00 PM EST and Thursdays at 6:00 PM EST
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One view findings - going back for more images
Hello I've been getting mammograms every year since I was 40. I was called back on my first (ultrasound plus mri) and it all turned out well. Got called back for the same spot a year later and was investigated again and it was well. I started HRT when I was 42 due to premature menopause and my gyno wants to keep me on it…
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Recommended Plastic Surgeons in Connecticut (or New York)
I'm posting this for my mom, who had breast cancer and subsequent double mastectomy and reconstructive surgery with implants more than 10 years ago. She is interested in having her breasts redone, and is looking for a fantastic plastic surgeon preferably in Connecticut, or New York. Any suggestions or experiences with…
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Pale Stool
Ok, can someone give me some good reasons for Pale stools. Dr Google is not helping. I have clay like stool. I had it before about 4 months ago, and my doctor added ca19 to my tests. It was normal last December. In the last week, almost daily I have one bout of very pale stool and I don't like Dr Google. I have messaged my…
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Post treatment questions
So, in 2019 i was diagnosed with IDC stage 1 grade 1 1cm...lumpectomy, radiation arimidex.... in 2008 I had a mammogram that showed calcifications...I had a biopsy....pathology said targeted calcifications, lesion is suspicious for dcis...then final diagnosis said FEA with asscociated calcs...with a note that said FAE…
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Naturopathic Oncologist Recommendations
Hello! I live in Northwest Pennsylvania and I'm interested in consulting with a Naturopathic Oncologist in my area (Cleveland, OH; Pittsburgh, PA; Buffalo, NY). I have seen an Integrative Medicine MD at the Cleveland Clinic, but would also like to see someone who specializes in treating cancer survivors from a holistic…
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Podcast: BC Survival Differences in Black & White Women
Breast Cancer Survival Differences in Black and White Women Mar 16, 2023 Dr. Kent Hoskins explains his research on some of the causes of breast cancer survival disparities. Although Black women are less like to be diagnosed with breast cancer than white women, they are more likely to die if they do develop the disease.…
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Need some advise
My wife was diagnosed with stage 4 terminal breast cancer. 2 years ago. Versinio helped the spreading. Has stopped working and starting pigway. Can anyone give me an idea when symptoms will start if she is going to get them. I know this is a random question and been dealing with this a while. Small family not around and…
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High Dose Vitamin C Cancer Treatment
Why are oncologists so resistant to high dose IV vitamin C? I have completed a lot of research into non-toxic cancer treatments that improve the bodies ability to heal from cancer and reduce it's impact on well being. I do not think any other "alternative" or "complimentary" treatment has as much promising evidence as high…
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Bilateral versus Unilateral Mastectomy!! Please help me decide
Please help! I am unable to decide between bilateral and unilateral Mastectomy. I am flip flopping between the decision everyday. It is an extremely hard decision and one that is completely irreversible. While i want peace of mind, i am also unsure if i want a numb chest for the rest of my life and not be able to feel…
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Onco always disregards side effects
My Onco causing me so much extra stress.She is always blaming anxiety or other things.I have triple positive bc.Had lumpectomy and currently on week 11 of taxol with a side of herceptin.I have started bringing hubby to all meeting with onco as a witness to what she tells me.I complained of severe joint pain after first…
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Radiation Side Effects?
Hi Ladies! I was recently diagnosed with a recurrence and am having a lumpectomy in less than 2 wks. The current plan is to have 6 wks of radiation treatments following surgery/recovery. I'm not overly concerned; however my tumor is on the left side, right next to my sternum. I can't help but to wonder, what if the…
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Paying for drugs while on medicare
I am retired, age 75, single and on Medicare part D for drug coverage. The copays for Ckd4/6 like Verzinio and Ibrance are between $5,000- $7500 monthly which no one can afford. How do people on Medicare part D for drugs get help with paying for these drugs? I am reading conflicting info as relates to people on Medicare.…
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IDC - Stage 1 - Will I need either chemo, hormones or both?
Hi, Just diagnosed with IDC Stage one on Friday. Waiting on my markers has induced a whole new level of panic. From what I've read, it sound like either I'll: 1. Need awful hormone blockers if I'm Estrogen/Progesterone postive (I take Prozac for OCD which would interfere with hormone blockers. Effexor isn't an option. Plus…
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Difference between recurrence and new primary cancer
How do they tell the difference between a new primary cancer and a recurrence of the old cancer. I had ILC in 2017, treated with lumpectomy and radiation. I stupidly refused antiestrogens because I thought I would be OK. They have now found another tumour in the other breast, but say it's ductal this time. Has anyone else…
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Concerned about obscured margins
Hi there - I just got called back for a diagnostic mammogram and US and am wondering if anyone here can help me to understand these results? (My doctor was surprisingly unhelpful). How worried should I be?? Especially about the obscured margins?? The waiting is awful. I have two little girls, ages 3 and 5, and I am so…
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IDC with lobular features
Hi, What does it mean to have IDC with lobular features? I was looking back at my pathology from a few years ago and saw that listed there. None of the doctors have mentioned with the lobular features part meant. Does it mean it was found in the ducts and lobules? Thanks in Advance
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Anyone else feel good, like they don't have cancer?
Don't get me wrong, I know I do, I felt the lump and saw the breast and bone biopsy results but I feel fine, always have. I've been very lucky to have completed my first year and treatments with minimal SE's but I often feel guilty that so many others of varying stages struggle, it isn't what I expected when diagnosed…
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Scheduling annual screening while going through 3D mammo?
Hello everyone, I am having a hard time finding my old post to copy/paste some info to give a background, so I will try to keep it short and try to explain my situation. My annual screening in Feb 2022 resulted in some abnormal findings on my right breast. So, I had couple of follow up and biopsy that revealed more…
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Response with new treatment?
I was diagnosed in December with TNBC - stage IIB in my right breast. I started ac+ Keytruda on 1/17 and finished my last dose on Tuesday 3/21. I begin taxol, carboplatin & Keytruda for 12 weeks beginning 4/11. The response was small on the original mass. They have now found two more lesions that are actively growing…
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Scheduling annual screening while following up with 3d mammo?
Hello everyone, I am having a hard time finding my old post to copy/paste some info to give a background, so I will try to keep it short and try to explain my situation. My annual screening in Feb 2022 resulted in some abnormal findings on my right breast. So, I had couple of follow up and biopsy that revealed more…
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United Healthcare Employee Health Insurance
The company I work for is in the process of most likely being purchased by another company that has United Healthcare for their health insurance coverage. With my current employer I am on Blue Cross Blue Shield Gold and have been happy with that coverage so far. I was wondering if anyone had any knowledge of any problems…
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Newly diagnosed with TNBC: PET scan????
Hello everyone, I am new here and completely devastated. Just got diagnosed with TNBC (HER2 is indeterminate at 2+ and sent for FISH).y MO appointment is on Wednesday, followed by a SO appointment. Stats so far: tumor is 2.8 cm, one biopsies LN in the axilla is negative. They are scheduling a breast MRI. My question is the…
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Neck cracking and grinding?
Hi ladies, I am wondering if anyone has experienced neck cracking and grinding when on hormonal therapy. I have been on Exemestane for more than 5 yeas now and just noticed neck cracking on one side of my neck. No pain and numbness of other parts of my body. Hopefully it's not something serious.
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ILC Stage IIIa but history of heart attack and stroke
Hello, all. I hope this is the right area to post. I had ADH removed in 2013 and am doing well. My mother is 81, had a heart attack in 2006 (two stints), and a stroke last year that left her with moderate receptiove and expressive aphasia. She has a MUGA (nuclear heart scan) next week so the oncologist can determine if her…
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Sub pectoral tissue expanders
HI all i finally opted for bilateral mastectomy which was done on 3/20. The flap perfusion was not great in the affected breast so plastic surgeon decided to place TE's below the muscle. It day 4 and i in so much pain still from the surgery have to take pain meds round the clock. Anyone have a similar experience? does the…
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Does Reiki help?
I was diagnosed in July with stage 1b, grade 2 IDC. I did chemo and radiation. while doing radiation I took my Reiki level I & II. I did self reiki every night at bed time. When I did radiation, they took x-rays and one day he said that is the best x-ray I've ever seen. I told him, he probably says that to everyone. He…
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February 2023 Radiation
I just had my pre-radiation therapy mapping session today. I have "pretty" red and blue marks on my skin, and they made a back cast made today to aid in getting me set up in the same position for daily treatment. They told me it might be a week or so before I am scheduled to start and to be careful not wash off. Is anyone…
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Starting chemo September 2022?
Hi I just started chemo this past Friday and was looking for a group to talk through things with. This is unfortunately my second go around but I’m doing a different chemo regimen and it’s kicking my butt so far. Just thought we could all rant, vent and encourage each other.