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Stage 1A, released from treatment and concerned
Hi, I was diagnosed early 2020 with Stage 1A IDC with ITC’s in one node, HR+ IDC. I had a DMX, and 3 years of zoladex and letrozole. I was having really bad bone pain and tried different AI’s. They were worse. My MO felt it was ok to try tamoxifen. That was unbearable for me. I was happy to go back to the AI but my dr…
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Does DIM really work?
I have been prescribed Arimidex after having a mastectomy with no need for chemo or radiation. After doing some research, I realize that I really don't want to go down that road. I found references to DIM on this site and did a lot of research and would like to know if this really works? From what I read, it seems to be a…
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Wondering
Hi. I am new to this forum. I had thyroid cancer in 2018 and it was successfully removed. Also had to have a hysterectomy in 2016 due to fibroid tumors. I have been on levothyroxine since before 2016 for hypothyroidism. I have dense breast tissue and I know that this can be a concern when reading mammograms. I’ve recently…
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Triple Negative Breast Cancer
Anyone else in the UK had TNBC and gone on to have HRT or oestrogen creams ? There seems to be a lack of knowledge with GP's. Any info would be grateful. Just out of interest I'm also had surgery for hyperparathyroidism.
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Experience with Keytruda for early stage Triple Negative Breast Cancer
Hi Since the standard of care for early TNBC has changed and now includes Keytruda (Pembrolizumab) with chemotherapy in the neoadjuvant setting, followed by Keytruda alone for 9 cycles in the adjuvant setting, I was wondering if everyone on the current regimen could share their experiences? How has it affected you? Have…
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Coughing and Arimidex
I have had a dry cough since chemo and starting Arimidex in 2015. I have been to many kinds of doctors for the cough and no reason has been found. Sometimes the cough is really bad. Has anyone else had coughing?
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Mammogram findings
Can all oddities in breasts be explained? I was told I had something that didn’t look good, but the doctor didn’t think it was cancer. It was a 12 mm nodule with irregularities. He said it could be an infection or scar tissue. Shouldn’t I find out? Thanks
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Scar tissue near Lumpectomy area
Hi! Just had an ultrasound and scarred that the areas in question might be recurrance. Now they want me to have a MRI. Can you please share your experience with ultrasound reports, mri's that show up as suspicious near your original tumor/lumpectomy site. I'm 8.4 years out and had 36 rounds of radiation, chemo, lumpectomy…
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New Cancer - second time
hi, my last breast cancer was in my left breast diagnosed in January 2015. I was diagnosed at my annual check as having a 1cm cancer in my right breast. I get the pathology results tomorrow. I had a partial mastectomy and lymph clearance last time. As well as chemo and radio. They are talking about a lumpectomy. But I want…
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Unknown mass- pretty scared
I'm in my early 30s and have a family history of breast cancer. I started having pain recently, went in for an exam and they found a lump. It's pretty large- 10cm and mobile in the upper outer quadrant. Hard to believe I noticed the pain before the lump but I've gained some weight and it's not visible. The doctor didn't…
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Prognostic without treatment
Hi community, Very hard to find information on patient refusing treatment. Mother 92 , has Recurrence IDC (first cancer 2011) she had lobectomy , axilliary node removed , she refused radiation , chemo and stopped hormone therapy after a few months… Now she is diagnosed with IDC stage 3a , grade 3 , at least one lymp node…
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Panicking Before Surgery
I am having so much anxiety and panic right now. Surgery is early next week for my double mastectomy. I have a lot to be grateful for. It was found early, in Stages 1-2, and is smallish still. But I am panicking over fear, and I get that. Also, the reality is setting in that I have to deal with this. Before, it was just…
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Dcis -mastectomy or Lumpectomy/rad
I am 42 yrs old and was diagnosed with dcis grade 2 in my right breast in April. I had a follow up breast mri which showed other suspicious areas that should biopsied with mri. I have the mri biopsy scheduled but I feel like skipping it and just having a mastectomy instead. My MD adviced of the research regarding outcomes…
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Advice on AESTHETIC FLAT CLOSURE
Hi there! Heading in for a double MX with AFC in 2 weeks. I have the option of going somewhere else with a plastic surgeon there or staying at my hospital and just having my breast surgeon close. She is confident she can do a smooth closure with minimal incision size. I am on the smaller side. Just wondering if anyone out…
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Argh, close to panic again
Getting some super strong scanxiety. Insurance denied PET (I guess because the first one didn't reveal any bone involvement, according to the denial) so they won't allow a PET. My MO wants a CT and a bone scan. The bone scan looks for c in bones, and the CT-well, you know what it does. I went from 1 scan scheduled for…
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Starting new medication (Xeloda ) today I live alone and worry what to expect.
Hi everyone I am starting on Xeloda today 7 days test run. I live alone and pretty nervous on what to expect. Can you share plese what I really need to pay attention to and what would be the signs if any to rush seek medical attention. Thank you .
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MBC and lowered immunity
My white blood cell count is down, neutrophils are down… not that I am sure what that even means, but I do know that my immune system isn't doing so great. Three head colds since December, and they linger and get harder to shake. I now mask up everywhere I go where I'm going to be in crowds. I take public transit to get…
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DCIS
I had a biopsy for calcification that turn out to be Atypical ductal hyperplasia, they advised excision. I had lumpectomy in my left breast. Yesterday I saw the surgeon and the result was DCIS with one clear margin 3 mm and another margin 0.5 mm. They may do re excision and or radiotherapy. I am scared of whole thing…
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Moved to annual oncologist visits today - living life differently after cancer
Heck yes!!!! Celebrate good times. The photo was my first international trip taken this year. More to come. 🤸💕🤸
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Joint stiffness
My last chemotherapy treatment for her2 positive breast cancer was 12/12/23. Since then, I have had crazy bad bilateral joint stiffness (ankles, knees, hips, elbows, wrists). It is the worst at night when i move into a different position. Chemotherapy also catapulted me into menopause. Is my joint pain permanent or…
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Brain Mets question?
Hello, I am a breast cancer patient and i have a question. What are the symptoms of brain metases? Constant ear pain, sometimes with headaches, could indicate of the brain mets symptoms? thanks, a lot
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Is it safe to go a long flight after mastectomy with reconstruction?
Hello, I'm not sure yet if I will need mastectomy, but I'm trying to figure how long after mastectomy with reconstruction it is safe to go on a long flight. I have found mix information on this. Unfortunately I will need to so it will be helpful to know in advance. If someone has had experience with this it'd be helpful to…
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I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…
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Considering Going Flat? Start Here.
The main Breastcancer.org site features extensive information about Living Without Reconstruction including: Going Flat: Choosing No Reconstruction Podcast: Choosing to Live Breast Free, interview with Barbara Kriss Podcast: Talking to Your Doctor About Going Flat Prostheses (Breast Forms) Some popular Discussion Board…
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Md Anderson
Anyone been treated at MD Anderson? Can you pls provide reviews and insight? Been reading online opinions and they are being trashed constantly. Yet they are supposed to be the preeminent cancer hospital. What gives? im thinking of transferring my care there and have just started the paperwork for initial consultations…
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Why did you refuse Radiation?
For those of you that refused Radiation, can you tell me why? I am in the grey area and the Radiation doctor is recommending it, but my Oncologist assumed I wouldn't need it throughout my Chemo treatments. I'm confused and just want to hear from more of you how you came to your decision of why you might refuse Radiation…
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I want to know about lumpectomy and mastectomy
My sister diagnosed with stage 2 dcis er + and pr+ now she is undergoing for chemo and doctor said lump has shrunk so can any one able to advise whether I need to go for lumpectomy or mastectomy Tumor size 4cm
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Acellular Dermal Matrix (ADM) with your mastecomy reconstruction
Anyone use Acellular Dermal Matrix (ADM) with your mastecomy reconstruction. Can you tell me about it - good/bad? Have you decided against it? I ask because I met with my reconstructive surgeon today, and he suggested it for my skin sparring double mastectomy. Somehow, I hadn't heard of this in all my reading and prep.
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How long with Ibrance?
Hello, I was diagnosed with MBC ER+/HER2- (several metas on bones, nodes, lung and liver!) in December 2019 (at 40 years old) and received Ibrance + Anastrazole + Zoladex+ Xgeva + Orocal as treatment since the diagnosis. It seems to work very well because only the meta on left bone shoulder is still active (at Pet Scan). I…
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Need MO (Medical Oncologist) recommendation (in SF Bay area)
Hi all, I was diagnosed with stage IV in Sept. 2023 in Taiwan by a Taiwanese MO from whom I am receiving my hormone and targeted therapies. I continue to work until the third round of treatment on 12/22/2023 when I took a leave of absence from work. Because of the stress from work become too much. So, I asked my MO to…