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is it really a bone island?
I was diagnosed with DCIS in March 2015 and had a bilateral mastectomy and TE reconstruction. I've recently had a breast MRI, a nuclear bone scan, and a CT scan of my abdomen. The breast MRI was completely normal. The bone scan showed: "There is mild heterogeneous uptake in the right shoulder, sternum, cervical spine, mid…
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Extensuve bone mets at 36 with a 2 year old toddler...
I am 36 years old with a 2 and a half year old, i was diagnosed with cancer at 34 and was 12 weeks pregnant with our 2nd child. The 1st biopsy the doctors did aborted my baby (7the miscarriage). I had been living with a lump in my breast for 4 years and during pregnancy that the doctors told me was a cyst. My mother passed…
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Scared of bone mets and so tired of being worried
Dear friends Last time time I was on here was four years ago when I had an awful cancer scare. I was in panic mode but thankfully it turned out to be nothing. This forum and all the support I got here was so comforting. And now I am back, scared once again and in full blown panic. I was diagnosed with bc in 2011 so it's…
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Black and clear discharge from right breast
Does anyone know why I'd have black and clear from right breast but yellowy and clear in left breast. It's been 27yrs since my last child was born. I had a hysterectomy right after.
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Matted/fused nodes and survival?
Hello to everyone. I'm very scared because I had on surgery bunch of matted positive lymph nodes. (I haven't had chemo before the surgery.) It would mean much to me to hear if you had matted nodes and survived. Because I have read that many people with matted positive nodes metastized. My question is only for those who…
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No hormone therapy vs hormone therapy
hello. My wife is about one year out from a double mastectomy. The pathology showed that her right breast had LCIS and DCIS. The left breast was benign, but she had it removed as a precaution. The right had multifocal invasion, with the largest tumor being small about 3 mm. She did not need radiation or chemo therapy, as…
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Backlash Coming Against Instant Disclosure of Health Records
In Politico today, there's an article about doctors lobbying the HHS against immediate release of test results & other electronic data in patient portals, as has been required for more than a year now. https://www.politico.com/news/2023/01/09/doctors-test-results-patients-00076843 I realize it may be difficult for some…
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Incision preferences for mastectomy with aesthetic flat closure?
Hi - I had a lumpectomy recently, but because of some surprises with pathology, I may end up having a mastectomy. If so, I would likely prefer a double mastectomy with no reconstruction -- aesthetic flat closure. But - I actually care deeply about the aesthetic result. I've looked up photos online, and see a lot of…
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Atypical Ductal Hyperplasia - waiting for surgery
Hello, I am happy to have found this site and hope to learn from all of you! I am 50 years old. I was just diagnosed with atypical ductal hyperplasia from a core needle biopsy, but have been told it might be upgraded to stage 0 DCIS after results of the excision surgery (yet to be scheduled) come back. There is also other…
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In a dark place right now. Could really use support.
My anxiety is really bad and I could use some support. I’m 30 years old. Back in May, I found a lump on my inner right breast, just a couple days after my OBGYN did a breast exam on me. I remember being in the shower thinking whoa that’s weird, but I just had an exam so she maybe felt it and thought it was ok? I was also…
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Does anyone know anything about milk fistulas after biopsy?
Hi all, I had a core needle biopsy for a suspicious lump (I found out later they rated it BIRADS 4B). It was a lactating adenoma, which fortunately is benign. Unfortunately, I now have a milk fistula. I am breastfeeding and it sounds like the needle from the biopsy hit a duct. I'm gushing milk from the incision site and am…
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Arm Pain - on the ledge again…
I know every situation is different, but this site has been able to keep me calm through a couple other “scares" so just looking to see if anyone has experienced something similar. A little over a week ago I started with a weird ache in my forearm, almost like a shin splint on my arm. Stretching helped ease the ache. Over…
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Questions for your "end-of-treatment" oncologist appointment?
What questions did you ask your oncologist, at your final visit after chemo/treatment? And/or what information should I hope to get? My last HP is on Thursday, and I'll have an end-of-treatment visit with my oncologist while I'm there. Any tips or suggestions?
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Help with interpreting biopsy report :(
Comment : Specimen: A AND B Excision time: 1427 Time placed in Formalin: 1433 A DIAGNOSIS CALCIFICATIONS RIGHT BREAST: * SMALL GROUPS OF DETACHED FLOATING ATYPICAL CELLS AND NECROSIS, CANNOT RULE OUT MALIGNANCY IN THIS LIMITED SPECIMEN. * DETACHED CALCIFICATIONS IDENTIFIED. * FAT NECROSIS, FOCAL * SCLEROTIC TISSUE WITH…
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Starting Neratinib (Nerlynx)
I was dx early stage, node negative, triple positive in the summer of 2021. I did 12 weeks of taxol and a year of Herceptin. I had a lumpectomy, re-excision and three weeks of radiation. I’m starting neratinib early March and wonder how others have experienced the first few months on it, especially with the slow increase…
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Should Licensed Professional Counselors be Avoided ?
Dear Breast Cancer Community: I am a 10 year survivor of breast cancer. I am also a Licensed Professional Counselor with over 20 years experience. As with all Licensed Professional Counselors/Mental Health Counselors, I am credentialed (licensed) by my state. My professional education, training, and experience are at least…
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Mets during active treatment? Possible?
My wife's currently undergoing treatment for stage IIIb TNBC. She had a 4cm mass that was misdiagnosed as a fibroadenoma and removed via lumpectomy. Subsequent PET CT showed an enlarged axillary LN 3.6cm with no evidence of distant mets. She's currently completed 4 AC and 8 cycles of weekly pacli and carbo (with Keytruda…
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Nice about lymphedema?
I just got lymphedema and I'm scared it's the end of living life normally and of nice events in my life. I wanted to ask you to tell about nice moments you've got since you've got lymphedema and give us newbies some courage. Are there any nice moments? Are they daily? Is there still a lifejoy? Does it resamble to 'normal…
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Can I take lymphedema glove?
Hello, Yesterday I got lymphedema. I'm starting chemo tommorrow. I want to buy a glove and wear it today. But doctor says I must do lymph drainage first, but he doesn't want to do it during chemo. He says that glove is pointless without lymph drainage. I'll be on chemo for 6 months and I think that is too long time to wait…
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Post Lumpectomy Breast Changes
Has anyone experienced any changes in breast appearance post Lumpectomy. Like darkening of nipple and peau d'orange appearance? Is it normal and expected?
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Brain mets
Hi everyone Hope you are all doing well Can anyone tell me what symptoms they had with brain mets? Could it be this dull headache I’m having for the last two weeks?☹️ Ann
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Newly diagnosed, still in shock
I am 47, and a mama to 3 boys . Found a lump a couple weeks ago. Has a mammogram and ultrasound on Friday along with a biopsy and got my pathology today. An absolute whirlwind of a couple weeks. they actually found 4lumps all in that same area. They biopsied 2 and they both came back relatively the same IDC, provisional…
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Does therapy really help?
I feel I have hit a wall mentally. I am 4 years out , NED and on tamoxifen. I feel lost, I don’t have anyone I talk to on a serious level about my cancer experience. I was out with friends last night and they jokingly said they were going to make an online dating profile for me. I laughed it off and said dating feels…
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Port
I just finished chemo and am trying to figure out if I want my port removed. Initially I wanted it out ASAP but then my nurse and oncologist said that I would be having blood work done every 3-6 months for now and it might be worth it to keep it in. I would appreciate hearing how long other people kept theirs in
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Unexpected removal of lymph nodes during BMX?
After a lumpectomy where i failed to get clean margins, I opted for a BMX. Because of existing neuropathy in one of my hands and arms, it was discussed and agreed upon with my surgeon, that I would not have lymph nodes removed. I just received my pathology and see that I had 4 lymph nodes removed on the non-cancerous…
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Hyper awareness/anxiety or IBC
In 2015, I found myself here as I was experiencing some skin changes with my breast and upon googling (the worst, I know), found out ibc existed. I didn’t have it, thank God, but it took 3 diff breast doctors to tell me that. My mind created all sorts of problems. Fast forward to a few weeks ago and my right breast (which…
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Focal asymmetry & nipple inversion
hello! I’m a 47 year old mom to 3 teens! I just had my yearly mammo a few days ago. It was my 4th one. Previous ones all had been great. I don’t have any symptoms that I’ve noticed. Except a couple years ago I had slightly bloody discharge from my right nipple. Ended up having it removed and it was an intraductal…
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Nipple Tattoo?
Has anyone done this? Did it last? Was it worth it? I’m thinking about this after listening to this TED Talk. I’m “flat” with nipple grafts. I have a few areas where the cells didn’t survive so it’s a bit splotchy and uneven (but I’m so glad I chose to have nipples!
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Just diagnosed DCIS grade 3 after many benign biopsies
I joined here in 2017 with questions after finding out I was CHEK2 positive and a many-year (close to 20) history of nipple discharge. I had I think 3 ultrasound guided biopsies around that time and all came back benign intraductal papillomas. Although the CHEK2 put me in a higher risk category there is no breast cancer…
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No sentinel node were found during sentinel node biopsy
Hi, i have a few questions and i wonder if anybody had the same experience. 1. I recently had my Mastectomy done and the doctor performed a sentinel node biopsy for me. However strange enough after the surgery he says that he couldn't find the sentinel node and histopathology report came back with 2 axillary lymph nodes…