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Scared and Worried
I have just been diagnosed with an Invasive Ductal Carcinoma which resulted in also being a Triple Negative Breast Cancer. I will be seeing my oncologist for the first time on Monday. Not sure what to expect, the information out there seems to be a little scary. Any thoughts with the same problem as me. Thanks.
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30 years later.
I had breast cancer in my left breast when I was 27. Last year I was diagnosed again on my right breast at 57. I couldn’t believe it. Now after the expander's didn’t take and then my body rejected the implant as well. This was hell for me.. invading my body 3 times. This time around I felt like cattle. Come in and out no…
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Fentanyl nausea
Dears, how are you dealing with fentanyl nausea? The patch (smalledst dose patch) gave me the most horrible nause and vomiting I had in my life, way worse than chemo, had to remove the patch after a few hours. The pills form didn’t cause such crippling reaction, but still caused nausea and vomiting.
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oncotype dx roll call
I'm looking to find out what's others oncotype was and wha t they decided to do.. How old were you? I've now read so much in regards to oncotype and know they recently changed staging of breast cancer based on the onco type.
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Bone Pain
I just posted in the wrong group by accident, now I have to explain this all over again, in this group, the right group. My hip/thigh bone and down my leg to my knee is aching. The groin area gets painful and I cannot get up off a chair or go up stairs very well. This started about 2 weeks ago. I just had a Lattimus Dorsal…
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Weight Loss--Wegovy or Alternatives?
Hello everyone. I finished Kadcyla back in April and have been on Anastrozole for almost a year. (By the way I'm triple positive and probably need to update my profile since I haven't posted in a while). Anyway, after chemo, 4 surgeries (including removing my ovaries), targeted treatment, and all the trauma over the past…
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I have autoimmune diseases
I’ve just been diagnosed and have serious concerns about chem if I need it. Not sure if I’ll be able to continue those meds or not, if not then do those symptoms go hog wild. I would be sick from the chemo and sick from the Sjogrens. Then there’s the osteoporosis, will the chemo make that worse and can I continue with…
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September 2023 Surgery Support
A place for those scheduled for lumpectomy, mastectomy, reconstruction, or other surgeries to gather and support one another through treatment and recovery.
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Finish Line Scanxiety
I have an appointment with my MO on 25 September. I have to get blood work done several weeks ahead of time to make sure all the results are in for the appointment, so I’m planning to do that on 1 September. This should be my final 6 month check up and if my blood work looks good, it will mean 3 years in remission, which…
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TERRIFIED day before mammogram yet 12 years with no recurrence
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Getting overwhelmed by all the information -- lumpectomy in 2 days
Hi everyone, I'm so glad I found this site — just reading some of the posts has been helpful. I received my post-biopsy diagnosis through my online health portal (not a nice surprise first thing on a Saturday morning), so it's been a rollercoaster of emotions. My diagnosis was invasive ductal carcinoma, low grade, hormone…
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Breast tethering and no answers- mass on MRI
Hi everyone, Summary- I’m 39 Found a lump in left boob earlier this year. - June- Diagnostic mammogram- report- Birads B density- nil significant seen. U/S- nothing seen July- Noted a large area of dimple- tethering on pectoral muscle contraction C shaped near nipple -approx 7cm long, 1.5cm wide and 1-2cm deep. Complete…
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Removal of other breast
I had right mastectomy in January for grade 2 ILC. 90mm. Clear nodes. I had a reduction of left breast. Histology of left breast tissue showed Classical lobular carcinoma in situ. Which I have been told is not considered as cancer. I had initially asked for DMX which was refused as NHS does not like to remove healthy…
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Single or part of a couple? How different is the Stage IV journey?
Pure curiosity. I’m single. It seems as though the majority on here are coupled up but perhaps I’ve misread. Not a pity party, I promise. I just wonder if anyone else is going through this with friends and (adult or younger) children rather than a partner, and how they feel about it?
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Menstrual Cycle while on Anastrozole and Zoldex 1 Year
I've been on daily anastrolzole and monthly injections of Zoladex for one year and I just started a period. I'm almost 45 so I wasn't menopausal prior to starting treatment. I'm a little anxious as you can imagine, since the drugs should have me in induced menopause. Anyone else have this happen to them?
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High Risk - MRI?
Dear All, I have posted 1-2 times before here and find this to be wonderful, caring and supportive community. I am high risk. Tyrer - Cuzick is 23.9 % lifetime (without co-morbidities) and 20.3% (with co-morbidities turned on). Mom had BC at 59. I have had mammos at 35, 38, 40, 41, and about to have my next one at age 42.…
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Bonded by Breast Cancer Weekly Virtual (Zoom) Meetups!
Hi All, We are now offering TWO moderated Bonded by Breast Cancer Virtual (Zoom) Meetups each week! Join with others you've created a connection with at Breastcancer.org, after active treatment is over. • Mondays, 8 pm ET (NEW! begins July 24, 2023). Register in advance! Monday Meetup Registration • Fridays, 1 pm ET…
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Struggling to accept HT for Stage 1 with low likelihood of recurrence
Hello, I'm 57 and was recently diagnosed and treated for Stage 1a, had a lumpectomy, and my lymph nodes are negative. Official diagnosis: grade I, Right breast IDC, cT1bN0, pT1aN0M0, ER+/PR+/Her2, Stage IA They removed a .4 mm tumor and I need to move forward with treatment. While I can accept the need of targeted…
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Worry about IBC
Hello everyone! My name is Alexandra I'm 25 years old. I'm from Eastern Europe, from a country called Romania, I'm absolutely terrified. Last month I discovered something that looked like a pimple on my right breast. I squeezed it and it got infected. I went to a gynecologist who told me that my breasts looked normal. I…
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Mammograms! I hate going for Mammograms.
I dont think there is anything that freaks me out more than my yearly mammogram. The fear is overwhelming even though I have had 11 years of normal mammograms after my stage 1 breast cancer. It is incredible how something so life saving can simply cause immense stress and anxiety for me.Chalk up the shortage of mammogram…
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Questions regarding testing
To make it short. My daughter unfortunately had BC dx in her 20's, and passed away years later. My other 2 daughters, now in their early 30's have been doing Mamos/Sono and 6 months later MRI. We were all checked for mutations but they showed all negative. Including my other daughter. Now my daughters are getting anxious…
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Navigating breast surgery: Q & A from Instagram Live
Click HERE to hear the recording of our Instagram live Q &A featuring @drmarisaweiss and Dr. Zafar from the Center for Restorative Breast Surgery to hear helpful insights and get critical information about what to know about navigating breast surgery.
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Has anybody decided to do excision only? Or active monitoring?
I have no intention of having radiation or hormone therapy. I am considering lumpectomy only or active monitoring. Has anyone else chosen this route?
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Lumpectomy - no rads age 40
I recently had a lumpectomy for low grade DCIS. The pathology results showed all DCIS was removed at biopsy, so clean margins with atypia only. BS thought I could avoid radiation provided these results and my history of uncommon reactions to medicines. RO states it is my choice, however, per my younger age would still…
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LCIS, ADH, ALH, Family History, Dense Breasts
Last week I had a central duct excision for bloody nipple discharge. The results came back today and show LCIS, ADH and ALH. I have a family history of breast cancer (my mother, twice IDC) as well as my sister (DCIS). My breasts are very dense and nodular which means i am constantly having ultrasounds. MRIs etc. Given…
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RBS (red breast syndrome)
Has anyone else experienced RBS? Before I go into much detail, I'd like to find out if anyone else has experienced RBS in the last few years. I've been searching for more recent RBS info on the internet and there is hardly anything to be found. I developed RBS 3 months plus after I had my right breast reconstruction. I am…
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Zoladex and Letrozole age 55 hysterectomy age 38 don’t know if I need the Zoladex?!
how can I tell when I can stop the Zoladex? I haven’t had period since 2005. I didn’t want surgery again as I had terrible adhesions after my hysterectomy. Anyone else in similar situation?
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Unclear about Oncologist’s treatment plan
I am so happy to have found this forum. I have read so many conflicting accounts of how to treat ILC that I don’t trust my oncologist’s plan. I have ILC - classic with Pleomorphic features, Onco DX score 16, tumor 7.7 (but really two masses measuring ~5 cm total and cancer cells in between them), no nodes. I had a…
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Tamoxifen after 5 years?
Hi :) I am 54 years old and was on Arimidex for 1.5 years (side effects were too much for me) and Tamoxifen for 3.5 years. I was not menopausal when I started, but I am now. I assumed after five years that I would be done, but my oncologist has now said I should stay on for at least two more years. I'm seriously…
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My Stroke During Herceptin Treatment
Every three injections of Herceptin I have an electrocardiogram to check the heart function is not affected. Herceptin is the drug of choice to prevent HER2 breast cancer recurrence. My last electro cardiogram during treatment showed a weakness in the heart function, and treatment was suspended for the heart to recover.…