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I cant wait until the Oncologist contacts me
I had a bone scan today because my tumor markers have been increasing and this is what the report says. Do you know what it could mean? Am i understanding it correctly? Has my cancer gone to the bones? TIA
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May surgery thread
Happy MAY everyone! Going to start the May thread, even though I'm not scheduled for a couple more weeks yet. Best wishes, family.
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Single life after a mastectomy
Hello -- I'm a 47 year old single, who was diagnosed with DCIS grade 3 in early March. The affected area is quite large ... 15 cm in one direction. I have had two partial mastectomies and they still don't have clear margins, so I will be getting a full mastectomy on the left side in a few weeks. I guess I took the Dr's…
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Arimidex - bone pain/recurrence
I've been on Arimidex for almost two months. Prior to this, I had a "normal" bone density test for my age (37). For those currently on Arimidex - when did bone pain start? Does it ever subside? Am I the the only one who fears recurrence even though my last radiation treatment is tomorrow? Am I being too paranoid about…
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Question about ned and recurrence
Wasn't sure where to post this. I know (or rather I've heard) that in general, recurrence rates run about 30%. I was wondering if you were ned with stage 4, would your chances be the same as if you were ned with other stages? I call myself stage 3, but my doctors refuse to pin it down and just say advanced cancer. Can't…
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Who explained your bone density test results to you??
Did your oncologist explain your bone density test results to you, or were you sent to someone else for an explanation? Mine simply told me I had osteoporosis. When I looked of at the summary in My Chart I did not really understand the DXA findings. I asked my oncologist about it and she wants me to see an osteoporosis…
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Just feel like I keep adding another doctor into the mix
10 years ago I was diagnosed with type 2 diabetes (not a shock due to family history), high blood pressure (no exactly a surprise except for how high it was at the time) and surprise surprise Congenital heart defect (which no one seemed all that concerned about). My blood pressure has been under control for years and my…
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Chemo-induced cardiomyopathy, anyone out there
I am looking for other survivors that have this disease now. Adriamycin
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Itchy nipple months after ending radiation
Hi all, Please forgive me if this is covered in another post. I searched but couldn’t find anything that answered my question. I finished 21 days of radiation (with a boost) at the end of April. I had some minor burns in the armpit area that have healed. Since finishing treatment my Areola and nipple have started to peel…
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Microfat grafting or BRAVA doctor recommendations
There is already a great forum regarding micro fat grafting and some really supportive posters that have been through the process. Although some have posted doctors in their area, I thought I would start a discussion where we could post the PS doctors in our own areas so it's easier for people to research and contact those…
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LDN (Low Dose Naltrexone) - Has anyone used it?
I was wondering if anyone was using LDN (low dose naltrexone) to help deal with chronic pain? I heard about it on the stage 4 section and asked both my primary care doctor and my MO about it but neither knew anything about it.
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Diagnosed/treated 2018 -- Sharing our "what's next"
As this year is drawing to a close, thought it would be helpful to have a place to keep in contact as we move forward. Personally I have found tremendous help here and am interested in how everyone is doing.
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More imaging...more waiting....
Just got back from my appointment at SCCA. Loved the dr. I was given. She took the time to listen to my concerns, understood my frustrations with the last mammo/ultrasound, and didnt once say "you are too young for cancer". My story in short: Found a lump way up high on my pectoral muscle a few months ago. Primary care Dr…
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Depression, anxiety and suicidal ideation
In May 2021 I was diagnosed with DCIS & subsequently had a lumpectomy. In 2009 at age 52 a complete hysterectomy was performed because there was a 25% chance I had uterine cancer. Instead of being relieved, I was furious. A week after the hysterectomy I experienced the most traumatic event of my life: I felt that another…
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3D tattoo vs. nipple reconstruction or both
I see that someone posted a similar question on a different forum without a lot of responses. I thought I'd post here too. I've had my bilateral mastectomy and implant reconstruction and am now at the point where I have to decide between nipple reconstruction, 3D tattoo or both.( I have decided to do something, not just…
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New here
Hi all, just got the call no one wants— I have lobular breast cancer. I don’t know anything further than that. Thanks, Cynthia
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Anyone get nauseous from treatments?
I'm only on day 4, but I seem to be dealing with nausea. I've read that this is a rare side effect. Then I'm trying to figure out is it because I'm lying on my belly while the treatment is happening? But it seems to be lasting into the rest of the day, not just right after the treatment. Just wondering if anyone else has…
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2nd Mammogram (but 1st w this doctor) - received a callback.
I am 29. No BRCA genes, but a chek2 mutation. It is considered "pathogenic" but it is the one of least concern. My mother had breast cancer, and her mother did as well. I was part of Fox Chase Cancer center and my geneticists there recommended to start screening at age 31, 10 years before my moms diagnosis. I joined City…
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Lots of symptoms and worried
please tell me if I'm over reacting, or under reacting. I tend to under react and don't go the the dr until things are at a breaking point, and really bad. Short back story...family history of BC, dense breast, 3 benign masses in rt. Breast 3 yrs ago. Was suppose to follow up at 6 months to watch things, and never did…
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MRI results
I had an MRI done today and have results already. I was diagnosed with IDC after 22 years from my DCIS dx. I.cant find the place where someone will help interpret results and have a question on if they now see 2 masses? Can anyone help me? REPORT EXAMINATION: Bilateral MR of the Breasts Without and With IV contrast EXAM…
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Worries about stopping Tamoxifen after 6 years
I've been advised by both my oncologist and doctor that my risk of BC recurrance is low enough to stop taking Tamoxifen after almost 6 years. I was not menopausal when I began it and had a Mirena coil inserted at the same time to combat possible side effects of womb lining build-up after a couple of polyps were found and…
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Tamoxifen - Query regarding different opionions.
Hello everybody on this forum. Just a little back ground, I was diagnosed over a year ago, completed all my recommended procedures (surgery, chemo, radiation, tamoxifen) all good one year later according to my annual mammogram and ultrasound results and feel as though I never even had cancer let alone endured the…
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Invasive Ductal Carcinoma
I was diagnosed in March. I am 53 years old with no history in the family. I am Pro+/Est+/HER2-. The mass is close to my nipple (@1:00/2.5 cm deep). It is 11mm in size. I'm having a tough time deciding between Lumpectomy/Radiation or Mastectomy. Also not sure about reconstruction or flat. There's so many decisions to be…
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Any long term survivors with more than 10 positive lymph nodes
I was diagnosed last February at Stage 3, with 13 positive lymph nodes and lymphovascular invasion, er pr+, her 2-, ki 40. Had a mastectomy, just finished TAC chemo, and will be on to rads in 2 weeks, breast recon+ hysterectomy scheduled in February 2020. Time has made me less anxious and depressed over my diagnosis but…
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What To Expect Surgical Oncology Appointment
My cancer was found during routine mammogram, I never felt a lump. I have my first appointment with the surgical oncologist on March 3. I have waited 3 weeks for this appointment as my gyn referred me to Moffitt Cancer center which is an hour away. He wanted me to go see the same doctor that did his mom's breast cancer…
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Facedown Rx Causes Fewer Skin SEs in Women W/ Large Breasts
Lying Facedown for Radiation Therapy Causes Fewer Skin Side Effects in Women With Large Breasts June 2, 2022 During external whole-breast radiation therapy for breast cancer, women with large breasts who lay facedown had fewer skin side effects than women who lay faceup. Read more...
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Trodelvy Improves Progression-Free Survival for HR+, HER2- MBC
Trodelvy Slightly Improves Progression-Free Survival for Pre-treated Metastatic Hormone Receptor-Positive, HER2-Negative Breast Cancer June 8, 2022 Trodelvy (chemical name: sacituzumab govitecan-hziy) slightly improved progression-free survival in people diagnosed with metastatic hormone receptor-positive, HER2-negative…
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Let’s Talk About The Dostarlimab Trial Results Making News
While only tried on 18 rectal cancer patients and not breast cancer, results were all 18 saw tumors vanish.It’s referred to as immune checkpoint inhibitors. No adverse side effects. They say it could signal a paradigm shift in cancer treatment. What might this mean for those of us living with mbc? Would love to hear your…
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Lobular Oncologists in the Dallas Area
Hi there, First time posting but been lurking for the past 5 years since my diagnosis. We are moving to the Dallas area (East of Dallas) and looking for an oncologist or a clinic for my lifetime treatment. MD Anderson doesn't have any location in Dallas, odd. And they don't have any referral to a cancer center either. And…
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Many Black MBC Patients Never Informed About Clinical Trials
Many Black Metastatic Breast Cancer Patients Never Informed About Clinical Trials June 8, 2022 Many Black people diagnosed with metastatic breast cancer never find out about clinical trials from their doctors even though most of them are open to participating in one. Read more...