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New lump, dent and anxiety
Hello all, I am 28 y/o female with a 2 year old. In the winter of 2019/2020, I was sent to get a breast ultrasound as I had lumps in my left breast. After the ultrasound, I had to get a biopsy of the largest one to rule out a phyllodes tumor. Results came back benign fibroadenoma, yay! They explained that they are benign…
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Starting Chemo September 2015; join us!
Hello all: There is a great and very helpful group in the August 2015 chemo thread, and I hope they will pop in to give advice to all of us 'younger' chemo sisters, but I figured it was time to start the September group for those just starting down this road. My biggest worry is the impact of losing my hair, and am…
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HER2+ MBC. Anyone 5 years out?
My name is Peoy. Singapore Chinese. Dx Oct 2022 with 8 sclerotic bone mets from T8 to pelvis and lymph nodes. My cancer cells have morphed: ER80%+ to 5%+. PR+ to -. Her2+ remained 3+. Just started Taxol+Herceptin+Perjeta. Xgeva mthly. My MO said median prognosis is 57mths. I also hope to discuss HER2+ MBC treatment lines.…
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Covering your scars with tattoo work
Hi everyone, After some discussion with the mods and a few others, I am happy to start this thread! This is a safe space to discuss covering your scars and such with tattoos, or other body modification techniques. (Flat or recon- all are welcome!) Those of us with a love for beautiful ink, that want something besides…
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NYU vs MSK for surgery, treatment
recently diagnosed and was surprised at how quickly I was able to see a surgeon at NYU. We scheduled surgery for December and I was feeling pretty optimistic until they said I have to do more tests coming up. My SIL insisted I get a second opinion at MSK because her father in law went there. I reluctantly reached out and…
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Olaparib (Lynparza) as adjuvant treatment
Hi I was diagnosed with Stage2b TNBC earlier this year in February. I completed my chemo, surgery (no PCR) and radiation. I am now recommended to take Olaparib for a year to prevent recurrence. Looking for experience from people here on this treatment. Thank you
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Looking for Paxman reviews
I am starting chemotherapy (Taxotere + Cyclophosphamide) next week. I will have 4 cycles at three weeks interval. Infusion center I will go to, they have Paxman scalp cooling system. So I don't need to keep changing cold caps every 20 minutes. I am looking for reviews, anyone used it before? Any pros/cons, tips greatly…
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Positive experience with implants?
Hey everyone, I was just diagnosed for the second time and am really struggling with my limited reconstruction options. The first time around I only had a lumpectomy but this time I am doing a mastectomy (unilateral). I am not a great candidate for DIEP Flap surgery due to limited abdominal tissue (I could do TUG, from the…
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Haiku for Fun
Hi everyone. I've seen some poetry and Haiku on individual threads, but thought we could use a separate thread. I am in no way an expert, and this is simply for fun, so we won't go nuts if you don't have a "cut" or nature theme or other rule. The only rule on this thread is a measured syllable poem. Most common is 5-7-5.…
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Philadelphia plastic surgery
I’m researching plastic surgeons in the Philadelphia area that are trained in the exchange of older implants and also are skilled with fat grafting. Would appreciate any recommendations. Thank you.
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Should I have asked for more testing besides ultrasound?
Hey all, A couple years ago I noticed an area of "thickening" in one of my breasts. On both of my breasts there appears to be a network of tissue/glands (I guess, it's definitely not fat) in the upper outer part, sorta kinda mirrored on both sides. However on the right side it is noticeably thicker, larger and firmer. It's…
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February 2012 Chemo
I start my chemo in February and I'm scared. Tuesday I go in for pre chemo testing, and January 31 I get the port put in. I'm needle phobic so that's adding to my anxiety. I know the chemo will help me, I'm just scared. Anyone else out there waiting and scared?
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Appointed as a Dr Susan Love Foundation Ambassador
Well, pretty chuffed to be chosen as an Ambassador. Raising awareness that breast cancer is a genderless disease has been one of my missions here for eight years now. https://drsusanloveresearch.org/rod-ritchie/
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Implants and reconstruction I need advice
Ok so I had my exchange consultation with my plastic surgeon today. I'm small frame but a tad over weight at 5'4" 170 I currently have 500cc expanders UM. I am getting 595cc Implants. But the projection is likely smaller than my expanders. My plastic surgeon said he can’t put anything any larger in I just feel defeated I…
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Going flat after reconstruction
Hi all. I was diagnosed with breast cancer in 2020. Had a bilateral mastectomy and immediate reconstruction. Tissue expander removal and reconstruction in February 2021. I have had a revision already, feb 2022. Since the first surgery i have had pain so bad sometimes it takes my breathe away. I was an avid runner and…
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Gemzar
is there anyone here on Gemzar? Had my first treatment on minday
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Waiting for hormone therapy. Worried about side effects
Hi I had a lumpectomy, intraoperative radiotherapy and a sentinel lymph node biopsy 2 weeks ago. I was told the high level analysis of the biopsy at the time of the surgery was clear but this needs to be confirmed after an in-depth analysis has been undertaken. I get the results of that next week. I've been told I'll need…
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Waiting sucks
Hi all, I recently discovered a weird area of thickening in my right breast that feels totally different from my left. I had a fibroadenoma in my left breast 5 years ago. I'm 45. I don't do regular self exams but am pretty familiar with my breasts and my body in general so I know that what I am feeling is not right for me.…
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Needle Biopsy Results
I was recently diagnosed with Florid LCIS With Focal pleomorphic features Comedonecrosis Calcifications ER pos PR neg 37 mm area of concern I have an appointment with a surgical oncologist upon referral by my Gyn . Any thoughts on what the future choices might hold for me ?
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Fall 2022 New Covid Shot?
I was just curious if anyone had got it yet. My MO told me a couple of months ago to go ahead and get another booster but by that point, it made sense to wait until the new Covid shots came out and hopefully get better protection against the new strains. However, I am not sure from what I am reading if the Covid vaccines…
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DVT’s
I wasn’t sure which thread to post this on, and I didn’t see one specific to the topic. Have any of you had DVT’s? I’m freaking out somewhat. On Wednesday morning, I noticed my left leg was swollen when I put pants on and they were tight on my left calf. It was swollen and felt tight, but no pain, discoloration, etc. I did…
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Am I doing this right
I just got the call that I have cancer, but I don't think full pathology results from the biopsy (Wednesday) are in. Nothing is on MyChart yet. My primary care doctor gave me the number for an oncologist and a surgical practice. She said to take the first available for both. I have an appointment for an oncologist on…
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Issues with a top-ranked NCI hospital, Huge Anxiety/Frustration
I had my first surgery consult and MO consult this week, and after waiting 2 weeks when the new patient coordinator at the top-ranked NCI I transferred care to, set those up, I find out my imaging is NOT at the NCI. The coordinator claimed to have sent the request form for all imaging, but the imaging center I went to…
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Dimple that led to biopsy
I had the smallest dimple barely noticeable so I went to the walk-in ( I have no gp). I ended up seeing a physicians assistant who i don't think had ever done a breast exam as it was not at all a thorough exam. I requested a mammogram and followed up after hearing nothing. Turns out the referral was sent to the wrong…
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Medicare questions
This is pertaining to Medicare in the U.S.---- I will be eligible to start Medicare in January 2021--- 2 years after being approved for Social Security Disability. I do not know anything about Medicare as I am not close to regular Medicare age (I am 50 years old). I want to do some research now in preparation for applying…
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Nipple Discharge
from the American College of Radiology "Nipple discharge is a common complaint that leads patients to breast imaging evaluation. At least 80% of women will experience at least 1 episode of nipple discharge during their reproductive years. Nipple discharge is the third most common breast complaint after breast pain and…
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Found a lump in breast, had an appt. this morning. Freaking out.
Hi all, I would be grateful for some advice and encouragement if you're willing and able to offer it to me. I am 37 years old with no family history of breast cancer. Last night I was running my fingers across the top of my left breast and noticed a firm, tiny lump; probably about the size of a pea. Fortunately, my doctor…
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Signatera testing for residual disease
Hi everyone! I'm new here. I was diagnosed with Hormone + IDC last year. I was eventually deemed grade 2, stage 1b, with 1 positive lymph node plus a second with micromets. I had DCIS on the other side. Lymph nodes were taken from both sides with no additional ones being positive. I did nipple sparing BMx with tissue…
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No treatment and no progression
wanted to let everybody know- I stopped conventional treatment( was on enhertu at the time) in February. Still had lymph nodes that were lighting up on PET , original lesions in lungs seemed to be inactive and fibrotic. Scan at the end of May shown no change. Obviously everybody's situation is different- mine was an…
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More results
so yesterday was my diagnosis day via stereotactic biopsy lab results. Idc grade 2 Dcis grade 3 with comedonecrosis, calcifications and extension into lobules I have had 2 ultra sounds and 2 mammograms no palpable or Detected lumps or masses just hardened tissue today I received the following: er positive 100% pr positive…