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Compression garments help for Pap Flap?
Hi All, I'm planning on buying a zippered girdle for my upcoming pap flap recovery. I'm getting pretty confused with sizing… is it normal to purchase a size up? I'm a M (waist 28"/ hips 37") so do I buy a L? My surgical team hasn't been a lot of help here. Any advice would be appreciated!
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Massage therapist for cording in my local area
Anyone familiar with finding a massage therapist to treat cording after lumpectomy? How do I search?
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What does this mean? What to expect. BI-RADS 5
LEFT BREAST MAMMOGRAM At the site of the palpable lump at around 11:00 4 cm from the nipple is a spiculated irregular mass containing pleomorphic calcifications. No additional abnormality identified. LEFT BREAST ULTRASOUND: Ultrasound of the entire left breast was performed and demonstrates an antiparallel hypoechoic mass…
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Transitioning
This is not an easy note to write, and I am very sorry that it may be a difficult one to read. I've come to the realization that I can no longer contend with the effects of metastatic breast cancer combined with multiple GI issues that prevent me from eating and drinking. I am hoping that hospice will help ease my…
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Getting called back after a mammogram
Hi all my deas breasties, It has been years since the last time I used this forum. So here I am, once more, finding myself sick with uncertainty and worry. I had a mammogram three weeks ago, and for the first time in 17 years, I have been called back for further tests after being free of a multifocal grade 2 strongly…
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TNBC at Mass General in Boston
Hi everyone I just found a website for Mass General in Boston- apparently they have a program exclusively for TNBC. I am wondering if anyone has looked into it or is currently under their care? I am meeting with my Dana Farber MO this Thursday to discuss my treatment options Should i mention that i saw info about the…
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Starting Chemo in May/June 2023
A place for you all to gather and share. We're all here for you!
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Lumpectomy vs Bilateral mastectomy
In July I was diagnosed with intermediate ductal carcinoma stage 1b grade 2. Genetic testing came back negative. There is no lymph vascular involvement as of yet. Maternal aunt had left breast cancer and ovarian cancer at age 52 then right breast cancer at 58, paternal aunt had right breast cancer at 54 and again at 59,…
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Loss of appetite PLEASE HELP!
I finished treatment for stage 2A TNBC in January. The immunotherapy triggered secondary adrenal insufficiency so I am on hydrocortisone for the rest of my life… On 28th of February I had double mastectomy with reconstruction and the fabulous news was I had pCr so no other treatment required. I had no appetite issues…
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The Future of Remote Learning and Online Tutoring
Exploring the Future of Remote Learning and Online Tutoring In recent years, the landscape of education has been rapidly evolving, with a significant shift towards remote learning and online tutoring. The COVID-19 pandemic accelerated this trend, but even before that, digital platforms were already reshaping the way…
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Birad3 is now amended to Birad 4A
My diagnostic mammogram and ultrasound was amended to Birad 4A this morning from a Birad 3. Has anyone had this happen? Does anyone know the reasoning behind it? I feel like these numbers are just being thrown around like a calling out bingo numbers. Back story, I discussed with the NP that I see after my Birad 3 results…
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abdominal bulge after tram flap
I am 5 years out (YAY!) from unilateral mastectomy & my tram flap reconstruction surgery.The bulge on the right side of my abdomen is very uncomfortable & I am very self conscious about it. Onc says it is not a hernia,,,Anyone else have this problem? Has anyone had surgery to correct it?
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MRI Bi Rads 3
Hello Friends, I have had many lumps over the years in my breasts. I am 58 now. My mother had breast cancer in her 70's. My maternal grandmother died of ovarian cancer in her 80's. 18 years ago I had a lumpectomy that the Dr's thought was cancer, but it was PASH. Then in 2014 I had a suspicious area in my breast, and had a…
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Navigating Breast Cancer During a Natural Disaster
If you're being treated for breast cancer, a natural disaster can make things even more complicated. If you have been impacted by a natural weather disaster or live in an area with extreme weather patterns, save these tips to help prepare and navigate your breast cancer care even among the most unimaginable circumstances:…
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what else could it be beside IBC
Trying to remain positive… Noticed a new sensation near my old cancer site, more so around my lumpectomy. I noticed it a week ago and them this morning I wake up to an irregular dime size light red spot. It's not raised and does not itch. Everything I read says ibc. I have a call into my oncologist, any thoughts and words…
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Mona Lisa Touch- Have you done this? All opinions appreciated
I can't have estrogen or progesterone and I've had full hysterectomy. The only thing my gyno says can help me at this point is the Mona Lisa touch. I need positive and negative experiences as I am getting desperate Thanks!
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PSA: Updated COVID-19 Vaccines coming soon!
For the immunocompromised, updated COVID-19 vaccine shots are supposed to be available by the third or fourth week of September. Read more: https://www.medscape.com/s/viewarticle/995436 More information on COVID-19 Vaccine Facts for People With Breast Cancer.
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Unilateral mastectomy & reconstruction
It seems that bilateral mastectomy is the norm. Anyone else have unilateral Mx? What are you doing with reconstruction for symmetry? I am still in the expansion process but will need to make a decision soon if I want any work done on the "healthy" side. I'd love to know what others are doing. Thanks.
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Has anyone here had mixed ILC/IDC which is HER2-positive?
Just curious. I had ER- PR- HER2+++ with mixed ILC/IDC.
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Diagnostic Mammogram and Ultrasound came back as BIRADS-3 -Need advice & guidance
Hello all, I'm hoping that you all might be able to place my mind at ease a little bit. I'm 45 years old and was placed in the high breast cancer category at age 40 based on my DNA genetics test. I do not have the BRCA gene. I have a maternal aunt that had breast cancer later in life and 3 paternal great-aunts that had…
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TSA Advice? Bilateral Mastectomy
I am looking for advice about getting through TSA screening without extra embarrassment. I had a bilateral mastectomy, no reconstruction, all healed now. I am comfortable with this new body in everyday situations and also at my community swimming pool where I work out without prostheses. But I am terrified of TSA. During…
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ABUS recall and panicked (again)
I'm back again and hoping I can get some support again this go around from all of you wonderful ladies!! I am a 40F and I posted in here last year when I had my first ever Mammogram a couple months before I was to get married. They found a mass that required repeat testing and eventually a core biopsy. I ended up with 4…
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Updated treatment plan
Hi All, Went to Dana Farber today for 2nd opinion On my tnbc, stage 1 grade 2 1.2x.09 x1 Diagnosed7/24/23 Loved my surgeon at DF she is wonderful! She did a physical exam and we went over my path report from biopsy She emphasized importance of lymh nodes My biopsy u/s biopsy report stated clear but she said only an MRI can…
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Problems with implants
Hi! I have breast implants with Mentor silicone, since 2017. I think there is something wrong with them, because the shape has changed, they have become very soft and one of my breasts hurts. I read an article in which it was written that exposure to extreme temperatures, during heatwaves, can affect the lifespan of the…
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Biopsy tomorrow, micro calcifications
41 year. Had baseline, first annual mammogram back in January and due to dense breasts and abnormal finding in right breast went back for diagnostic that showed 7mm benign appearing micro calcifications so scheduled for f/u in 6 months. Went back last week and that mammo revealed the micro calcifications were more grouped…
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Brain Fog and Cognitive Effects
I didn't see a recent thread for this so I thought I would create one. When I first started hormone therapy I was placed on Tamoxifen. I started it just a few months after chemotherapy, and between the two I experienced pretty thick brain fog in some respects. I'm on Lupron and Anastrozole now and my mind is significantly…
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Triple Negative, Stage 1 Thinking NO CHEMO
Hello all, I'm 44 years of age just recently diagnosed with cancer. My oncologist recommends carboplatin & paclitaxel chemo. After much research, I'm looking for alternatives to chemo. I am a PALB carrier and I'm not sure chemo would add any benefits to my situation. Is there anyone else that could shine some light on this…
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No sleep for three days on brand name Arimidex
Hello, back again for your sage advice and shared experiences. I started brand name Arimidex a week ago. If I took in the AM, I'd feel catatonic all day, completely dissasociated from my brain and exhausted. So I started taking at night but was utterly wired all night long. No sleep. Not even with prescription sleep meds.…
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HER2 Status
Hi, First, thanks for reading my post! I had a mastectomy in May 30th. I received the surgical pathology report on Tuesday and ER and PoR results (both are positive) on Thursday last week. But I have not received HER2 and Ki 67. How long did it take you to get those results? Thank you! J.
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I had my port placement today
The port placement I had today on my left side, I was finished at 1225 pm & it's still extremely uncomfortable it hurts just like it did as soon as it was finished. I was told to take xtra strength tylenol ,which doesn't helper all !! So frustrating