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Anyone starting chemo in September, October, November 2022
Hi all, Anyone starting chemo in September, October, November 2022? Hoping we can build a community as we navigate our chemo journey togethe. I am starting chemo on Thursday, October 20 and would love any advice, things to bring, suggestions for anything that helped after chemo , etc Look forward to getting to know…
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Paid survey for Her2+ early stage
Hello! I wanted to let anyone interested know that RC Horowitz is looking for earlier stage, being Stage I, II, or III, Her2+ participants for a paid survey. I have done surveys with this company since 2020, and I have a great relationship with them. I will place the information below. I do not work for them. This is for…
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Finding humour in a breast cancer diagnosis
Breast cancer is no laughing matter, but that does not keep our guests in this episode from using and sharing humor to cope with their diagnosis. https://www.ourmbclife.org/episodes/laughter-as-medicine
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Podcast: Experimental Capivasertib Promising for HR+, HER2- MBC
Experimental Capivasertib Seems Promising for Advanced-Stage, Hormone Receptor-Positive, HER2-Negative Breast Cancer Dec 15, 2022 Dr. Nicholas Turner explains research looking at capivasertib, a new targeted therapy medicine. Researchers are always looking for new treatments for advanced-stage breast cancer. Dr. Nicholas…
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Podcast: Overall Survival in Enhertu vs Kadcyla for HER2+ MBC
Enhertu Offers Better Overall Survival Than Kadcyla for Metastatic HER2-Positive Breast Cancer Dec 9, 2022 Dr. Sara Hurvitz discusses new overall survival results from the DESTINY-Breast03 study. 2021 results from the DESTINY-Breast03 study showed that Enhertu (chemical name: fam-trastuzumab-deruxtecan-nxki) more than…
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Starting Chemo This Month (Dec. 2022)
Hi All, A little bit of family history, just lost my sweet Mom to metastatic BC 5 yrs. ago. Hers was one of the hormone types (not sure which one) and she was on I think Tamoxifen for 5 yrs. and then they took her off of it. Seems once they took her off, the cancer returned with a vengeance and she only survived another…
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Podcast: GRASP: Helping Advocates Understand Research
GRASP: Helping Advocates Understand Research, Helping Researchers Understand Patients Dec 14, 2022 Patient advocates and researchers who are part of GRASP talk about what they've learned from the program. GRASP – Guiding Researchers and Advocates to Scientific Partnership – connects patients, doctors, and researchers to…
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Podcast: 2022 SABCS Key Take-Aways
2022 SABCS Key Take-Aways Dec 13, 2022 Dr. Stephanie Graff explains the most interesting research presented at the 2022 San Antonio Breast Cancer Symposium. The 2022 San Antonio Breast Cancer Symposium featured five days of research presentations, educational sessions, and posters. The amount of research presented can be…
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Anyone interested in participating in a paid research study?
Hi All. I am participating in a paid study for breast cancer patients. Here is the info in case anyone is interested. Just send Devi an email if you are interested and she will get back to you to screen you for the study. **********Her email to me ******************** We have quite a range of different things. But we will…
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Raised CA 27.29 and Scared Out of my Mind
Hi All, I’m looking for some guidance in the interim. A little background first both my parents were diagnosed with cancer. My father suffered from pancreatic while my mother survived cervical cancer. My BRCA results came back with 2 mutations of insignificant significance. It’s because of that result and both parents…
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More info on lymph node testing recovery
I had a breast cancer journey exactly a year ago and navigated it thanks to help from this forum. The 50 yo cook at at the soup kitchen where I volunteer is sadly on the same journey. Friday she is having her breast biopsy and lymph node biopsy at the radiologists. She has asked about the recovery from lymph node biopsy…
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Podcast: What I Get From Breastcancer.org Meetups
What I Get From Breastcancer.org Meetups Dec 10, 2022 Breastcancer.org Community Member Vanessa Onsurez talks about her diagnosis, #ThisIsMBC, and Meetups. Vanessa Onsurez, who was diagnosed with metastatic breast cancer in 2021, explains the #ThisIsMBC project at the 2022 San Antonio Breast Cancer Symposium and the…
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Paid survey
Hi! As you know, I talk highly of RC Horowitz and have been taking surveys with them since 2020. I am not employed by them. They are looking for participants for another survey. The requirements for this one are as follows: HR positive / HER2 negative NOT currently taking Hormonal/Estrogen therapy but has taken in the…
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Homophone word game
I am starting a new word game where you come up with 2 or more words pronounced alike but having different spelling and meaning. Two, to, too
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Anyone had an RFID tag localization?
I am scheduled for a lumpectomy on Jan. 9 and my surgeon's assistant had talked to me about wire localization before the surgery. When I got a text from the diagnostic radiology facility today to confirm my appointment on Jan. 3 (they never called to schedule, just sent a text) I freaked out because I didn't want wires…
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Shrinking response in chemo
Hello all, After 5/12 taxol/carbo/keytruda rounds, tumor has yet to start shrinking. When did you guys have it start shrinking? Thank you
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concerned about local recurrence
This fall I noticed a lump on my scar. noticed it because I felt a tug at this spot when I was cleaning windows. I am in a quandry because my cancer did not show on MRI or mammogram. It did show up on ultrasound. I made an appt to talk to a surgeon who has researched lobular cancer. In the meantime, I had a yearly appt…
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Podcast: Elacestrant Seems Effective for HR-Resistant BC
Experimental Elacestrant Seems Effective for Breast Cancer Resistant to Other Types of Hormonal Therapy Dec 8, 2022 Dr. Virginia Kaklamani explains the latest results from the EMERALD trial comparing elacestrant to the standard of care. Doctors are looking for new treatment options for people diagnosed with metastatic…
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Needing Information from anyone other than Google
Good morning, I am in desperate need of information from someone other than google. I had a biopsy done a week ago and just received the final results which might as well be in sand script for all the sense it makes. The only thing I was told by my doctor was to meet with a surgeon. i am hoping someone here can better…
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Podcast: What Pts Want Drs & Resrchrs to Know Abt Living W/ MBC
What Patients Want Doctors and Researchers to Know About Living With Metastatic Breast Cancer Dec 7, 2022 Metastatic breast cancer patient advocates Christine Hodgdon and Stephanie Walker explain why the viewpoints of people living with metastatic breast cancer need to be incorporated into research. A number of issues…
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Podcast: Helping Patients Advocate for Themselves
Helping Patients Advocate for Themselves Dec 2, 2022 Dr. Jennifer Griggs explains her research into how "activated" patients can get more equitable care from their doctors. We know that disparities exist in healthcare, including in breast cancer outcomes and in general care before someone is diagnosed. Evidence suggests…
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Told to quite endocrine therapy for Diep
My surgeon told me that I needed to go off letrozole for two weeks before and two weeks after my DIEP. I had a hormone positive tumor though and am not very comfortable with that. I was told it was because letrozole increases your chances of blood clots. Is that the standard protocol?
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Newbie Questions
Hello All! I am new here....some background. Family has history of BC. Can be traced back to my great grandmother. No genetic mutations found. Had BC first time 2006 (bilateral mastectomy with implants, salpingo oopherectomy, 3 rounds of taxol), recurrence 2013 (mastectomy redone, ACT(taxotere not taxol) DIEP Flap,…
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Same surgeon for mastectomy and reconstruction?
Hi everyone, last week had been one of the hardest weeks after the week of the diagnosis so far. I have finished neoadjuvant chemo on the 7th of January (TCHP) and this week had surgery consultancy with different cancer centers. Needless to say I am so confused and hoping maybe your experience might help me make a…
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BCO Conference Coverage: SABCS 2022
Every December, the San Antonio Breast Cancer Symposium brings together clinicians, researchers, and advocates to discuss the latest breast cancer study results. We're proud to present our coverage below. ***Stay tuned to this thread as more coverage is added!***
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Mark Cuban’s Cost Plus Drugs prices Anastrozole& Letrozole
Not sure if it's been posted on the forums as of yet but Mark Cuban's on line pharmacy 'Cost Plus Drugs' has 90 days of Anastrozole and Letrozole for only $11.10 plus $5.00 shipping. If anyone pays more even with insurance, this is a good resource to perhaps save some money. Website is www.costplusdrugs.com.
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PCOS
Hi, I have polycystic ovarian syndrome (PCOS). I have not been officially diagnosed but I most likely have HR+ breast cancer. I also have a serious history of depression. Tamoxifen interacts with my medications. I understand that ovarian function needs to be suppressed in pre-menopausal women which is why aromatase…
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LE risk according to surgical team, my fear regardless
I'm about 6 weeks out of surgery (lumpectomy + SLNB where they took 2 nodes), have a BMI over 30 (which is higher risk of lymphedema): I have started doing my daily brisk walks/slow jogs again (35 mins every day). I'm freaking out a bit about the possibility of getting lymphedema because I keep getting mild swelling in my…
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Paid survey
Hi! As many know, I have done surveys for RC Horowitz. They are a great group. They are seeking participants for a 90-minute survey who are on their second line or more who are Her2 negative. They are also seeking triple negative as well. If you’re interested, please private message me. This is for those in the United…
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Hybrid diep/implants
Does anyone have experience with this surgery?