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Need biopsies again
My MRI showed two new areas of concern, so I have to get a MRI guided biopsy. Last spring I had a biopsy at the scar site come back with fat necrosis, giant cell reaction, and fibrosis, and it seems reasonably likely that the first spot is related to that, but the second spot seems to be a slightly different area, although…
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Nowhere to go on Thanksgiving or Christmas. Suggestions?
Hello friends. I spent the holidays with a close friend for many years, but he is not well, very reclusive this year, so we aren't spending the holidays together. I really don't have a family per se. Life has been emotionally challenging from the very day of my diagnosis, and circumstances like this don't help. Does anyone…
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Beginning?
Hi all....I never thought I would try to conenct in with a community like this... but I am finding I could use some back up as far as my thoughts/reactions/scaredness. Is it normal? Mammorgram caused some discharge...and it has continued randomly since then. sometimes months without anything then YUCK. Grosses me out…
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Say NO to hormonal therapy!!!
The ATLAS Study out of Oxford was massive. it resulted in the recommendation to go from five years to ten years for hormonal therapy after BC treatment. The figurehead Harvard researcher is quoted " if it is being tolerated well, why not ?"He was referring to AIs in the article I sent him a picture of my face, two years…
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Assymetry Birads 0
I am new here, and am struggling to contain my anxiety over being called back for more testing. For the first time in 20 years of mammograms (I’m 61), I received a Birads rating of 0, with the description of an Assymetry seen in the right breast that is “indeterminate.” I had 3D imaging for the last few years, and my…
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Anyone try acupuncture for neuropathy?
I’m about at my wits end with this neuropathy. It is throughout my leg; hip to toes. I’ve had scrambler therapy, that worked, just didn’t last. I could do it again but it a bit of a hassle as it is everyday and is not exactly close by where I live. I’ve read acupuncture helps, but wanted to see what your experience was. I…
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Xeloda Group - Jan/Feb 2018 (Early Stage)
Hi, gals, I'm starting Xeloda today as adjuvant treatment due to unsatisfactory response to neo adjuvant chemo. Although I was told the pill is tolerable,I'm anxious about the side effect. Hope we can use this place for information sharing, encouragement, spiritual support! Dosage: Weight 94 lbs, 1500 mg/day, 7 on /7 off,…
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Is a chest wall recurrence inevitably stage 4?
My MO threw me for a loop yesterday. In May I had a 0.8cm recurrence 10 years after DCIS. Imaging showed no spread and my surgeon got wide excision in the lumpectomy. I finished whole-breast rads a couple of weeks ago, started Lupron in July, and will start letrazole shortly. In yesterday's appointment, I asked what I…
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August 2010...anyone starting chemo besides me?!
HELLOOOOO CHEMOSABES!!!!!! If you want audio for the above line remember Robin Williams saying "Good Morning Vietnam!" WELCOME TO CHEMOLAND TO OUR AUGUST CREW MEMBERS!I just had a bmx, by choice as only left was involved, with immediate recon on June 22. Two nodes were affected so off to the oncologist I go. I would love…
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New lump, dent and anxiety
Hello all, I am 28 y/o female with a 2 year old. In the winter of 2019/2020, I was sent to get a breast ultrasound as I had lumps in my left breast. After the ultrasound, I had to get a biopsy of the largest one to rule out a phyllodes tumor. Results came back benign fibroadenoma, yay! They explained that they are benign…
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Starting Chemo September 2015; join us!
Hello all: There is a great and very helpful group in the August 2015 chemo thread, and I hope they will pop in to give advice to all of us 'younger' chemo sisters, but I figured it was time to start the September group for those just starting down this road. My biggest worry is the impact of losing my hair, and am…
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HER2+ MBC. Anyone 5 years out?
My name is Peoy. Singapore Chinese. Dx Oct 2022 with 8 sclerotic bone mets from T8 to pelvis and lymph nodes. My cancer cells have morphed: ER80%+ to 5%+. PR+ to -. Her2+ remained 3+. Just started Taxol+Herceptin+Perjeta. Xgeva mthly. My MO said median prognosis is 57mths. I also hope to discuss HER2+ MBC treatment lines.…
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Covering your scars with tattoo work
Hi everyone, After some discussion with the mods and a few others, I am happy to start this thread! This is a safe space to discuss covering your scars and such with tattoos, or other body modification techniques. (Flat or recon- all are welcome!) Those of us with a love for beautiful ink, that want something besides…
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NYU vs MSK for surgery, treatment
recently diagnosed and was surprised at how quickly I was able to see a surgeon at NYU. We scheduled surgery for December and I was feeling pretty optimistic until they said I have to do more tests coming up. My SIL insisted I get a second opinion at MSK because her father in law went there. I reluctantly reached out and…
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Olaparib (Lynparza) as adjuvant treatment
Hi I was diagnosed with Stage2b TNBC earlier this year in February. I completed my chemo, surgery (no PCR) and radiation. I am now recommended to take Olaparib for a year to prevent recurrence. Looking for experience from people here on this treatment. Thank you
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Looking for Paxman reviews
I am starting chemotherapy (Taxotere + Cyclophosphamide) next week. I will have 4 cycles at three weeks interval. Infusion center I will go to, they have Paxman scalp cooling system. So I don't need to keep changing cold caps every 20 minutes. I am looking for reviews, anyone used it before? Any pros/cons, tips greatly…
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Positive experience with implants?
Hey everyone, I was just diagnosed for the second time and am really struggling with my limited reconstruction options. The first time around I only had a lumpectomy but this time I am doing a mastectomy (unilateral). I am not a great candidate for DIEP Flap surgery due to limited abdominal tissue (I could do TUG, from the…
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Haiku for Fun
Hi everyone. I've seen some poetry and Haiku on individual threads, but thought we could use a separate thread. I am in no way an expert, and this is simply for fun, so we won't go nuts if you don't have a "cut" or nature theme or other rule. The only rule on this thread is a measured syllable poem. Most common is 5-7-5.…
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Philadelphia plastic surgery
I’m researching plastic surgeons in the Philadelphia area that are trained in the exchange of older implants and also are skilled with fat grafting. Would appreciate any recommendations. Thank you.
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Should I have asked for more testing besides ultrasound?
Hey all, A couple years ago I noticed an area of "thickening" in one of my breasts. On both of my breasts there appears to be a network of tissue/glands (I guess, it's definitely not fat) in the upper outer part, sorta kinda mirrored on both sides. However on the right side it is noticeably thicker, larger and firmer. It's…
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February 2012 Chemo
I start my chemo in February and I'm scared. Tuesday I go in for pre chemo testing, and January 31 I get the port put in. I'm needle phobic so that's adding to my anxiety. I know the chemo will help me, I'm just scared. Anyone else out there waiting and scared?
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Appointed as a Dr Susan Love Foundation Ambassador
Well, pretty chuffed to be chosen as an Ambassador. Raising awareness that breast cancer is a genderless disease has been one of my missions here for eight years now. https://drsusanloveresearch.org/rod-ritchie/
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Implants and reconstruction I need advice
Ok so I had my exchange consultation with my plastic surgeon today. I'm small frame but a tad over weight at 5'4" 170 I currently have 500cc expanders UM. I am getting 595cc Implants. But the projection is likely smaller than my expanders. My plastic surgeon said he can’t put anything any larger in I just feel defeated I…
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Going flat after reconstruction
Hi all. I was diagnosed with breast cancer in 2020. Had a bilateral mastectomy and immediate reconstruction. Tissue expander removal and reconstruction in February 2021. I have had a revision already, feb 2022. Since the first surgery i have had pain so bad sometimes it takes my breathe away. I was an avid runner and…
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Gemzar
is there anyone here on Gemzar? Had my first treatment on minday
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Waiting for hormone therapy. Worried about side effects
Hi I had a lumpectomy, intraoperative radiotherapy and a sentinel lymph node biopsy 2 weeks ago. I was told the high level analysis of the biopsy at the time of the surgery was clear but this needs to be confirmed after an in-depth analysis has been undertaken. I get the results of that next week. I've been told I'll need…
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Waiting sucks
Hi all, I recently discovered a weird area of thickening in my right breast that feels totally different from my left. I had a fibroadenoma in my left breast 5 years ago. I'm 45. I don't do regular self exams but am pretty familiar with my breasts and my body in general so I know that what I am feeling is not right for me.…
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Needle Biopsy Results
I was recently diagnosed with Florid LCIS With Focal pleomorphic features Comedonecrosis Calcifications ER pos PR neg 37 mm area of concern I have an appointment with a surgical oncologist upon referral by my Gyn . Any thoughts on what the future choices might hold for me ?
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Fall 2022 New Covid Shot?
I was just curious if anyone had got it yet. My MO told me a couple of months ago to go ahead and get another booster but by that point, it made sense to wait until the new Covid shots came out and hopefully get better protection against the new strains. However, I am not sure from what I am reading if the Covid vaccines…
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DVT’s
I wasn’t sure which thread to post this on, and I didn’t see one specific to the topic. Have any of you had DVT’s? I’m freaking out somewhat. On Wednesday morning, I noticed my left leg was swollen when I put pants on and they were tight on my left calf. It was swollen and felt tight, but no pain, discoloration, etc. I did…