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Not sure what to think
Hi, new member here. About 3 weeks ago I noticed I was extremely sensitive in my left breast. I didn't think much of it until 3 days later, I was in the shower and felt a huge hard mass in my left breast. When I looked in the mirror, my breast was huge and I had a redish, purplish coloring that was quite large. I right…
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Prior to surgery results vs. after surgery results
Good Morning. After a routine Mammogram, ultrasound and biopsy, it was confirmed I have stage1 Type 2 invasive Carcinoma non aggressive. The spot that was found was 5mm buried deep in the tissue of my right breast. It was in a place I would never have found it on my own. There is no lump. The ultrasound did not see any…
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MRI results
I have yearly MRIs for screening after mastectomy in 2015. Recently "lesion" found on rib. No trauma, but sudden onset of pain. Oncologist will now order bone scan to look for other "lesions" to determine spontaneous non-cancer related fracture vs. metastatic breast cancer. Looking for other that may have had this happen.…
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NED Follow-up care
If you are NED. How often do you see your oncologis? How often do you have scans? What meds are you on?
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Worried about upcoming biopsy and next steps
Initially diagnosed in 12/2018 with triple positive IDC. Had full treatment and have been on AI’s ever since. Recent mammogram shows fine pleomorphic calcifications in the lumpectomy bed (BI-RADS 4). I have a biopsy scheduled for Thursday, and I am trying to figure out next steps if it is a recurrence. I had bad cording…
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October 2023 Surgery Support
A place for those scheduled this month for lumpectomy, mastectomy, reconstruction, or other surgeries to gather and support one another through treatment and recovery. To get inspiration and advice from others who have been there recently, see our September 2023 Surgery Support thread. Good luck to all with your upcoming…
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When To End Relationship with your Oncologist?
Hello friends. I was diagnosed in 2014 with early stage BC. I had a lumpectomy followed by 6 weeks radiation. I then received tamoxifen for a few years followed by letrozole, for a combined total of 8 years, completing therapy in 2021. I was wondering if I should continue to see my oncologist for annual visits even if I…
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Embracing the bald
I'd like to talk about being bald. I am on my second round of hair loss due to chemo (AC+T in 2018 and Halaven currently), and I'm really, really close to tossing my fears and my headcovers in favor of comfort and acceptance. Between episodes, I kept a pixie that suited me, so the second bout wasn't nearly as dramatic. So…
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Biopsy (HER2 3+) vs Surgical specimen (HER2 0)? What this means?
Hi all, I'm new on this forum. I have this dilemma about my HER2 status. Pathology report from biopsy gives HER2 3+, while pathology report from surgical specimen is HER2 0. This is very strange as these two results for HER2 are completely the opposite. Is this theoretically possible and what that means, especially in…
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PALB2 mutation
Anyone else get tested for PALB2 gene mutation?
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Horrible time on Taxol
Note - most people find Taxol much easier than AC. I seem to be an exception so if you're hoping Taxol will be better it most likely will be - stop reading now! But I'm struggling. Feeling awful. Sinuses, mouth constantly dry so that I can't sleep. Everything tastes terrible. I have a constant bad taste in my mouth which…
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Lymphadenectomy - Right Breast Cancer
Hi, I am presently undergoing chemotherapy for a Triple-negative Right Breast Cancer. Very soon, I will have to decide if I undergo a "Lymphadenectomy"! I have been reading a lot about the side effects would worries me a lot - but I understand that it's a lose-lose situation. Because, if I don't undergo a "Lymphadenectomy"…
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Radiation December 2018
I don’t think anyone has started this group yet, so here goes. Anyone else doing this over Christmas?
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Interpreting Mammograms: Architectural Distortion
from the American College of Radiology Breast Imaging Boot Camp (ligaments referred to are Cooper's Ligaments part of the support structure of normal breast tissue)
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Hi I’m new to the group and would like to hear others stories
Hi recently had lumpectomy and resection. Now have clear margins. would like to connect w others in similar situation…..
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Imaging Tests for Lobular Breast Cancer
Imaging Tests for Lobular Breast Cancer Nov 9, 2023 Maxine Jochelson, MD, explains the imaging tests for lobular breast cancer, as well as why lobular disease is harder to see on mammograms. Lobular breast cancer is cancer that starts in the lobules, the glands in the breast that produce milk. Lobular breast cancer is the…
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I'm thinking about discontinuing all doctor visits.
I'm three years out, had stage 1, grade 2, lymph node negative, Oncotype 7 IDC with DCIS. I had a mastectomy and proceeded to go through a year of hell on hormonal meds until I stopped those. The doctors told me that until I reach year 5, I need to see my breast surgeon ever 6 months, my oncologist every 6 months, and my…
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Phyllodes Tumor Diagnosis Advice
I had a lumpectomy of a benign phyllodes tumor with clear margins on 6/14/23 followed by a bilateral breast reduction on 6/22/23. On 10/19/23 I had an ultrasound of a new lump that I found in August of 2023. An irregular hypoechoic solid lesion was identified, but the findings were indeterminant so a needle biopsy is…
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Bra after reconstruction, 5 years out
Hello! I haven't posted on here in ages but wanted to reach out to ask if anyone else if having issues feeling comfortable with their foobs in a bra. I have over the muscle, direct to implant reconstruction and they are pretty small, measure out to a 32c. I have a very lean chest and almost zero body fat on my chest. So…
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Anyone NOT get nausea with Enhertu?
I am ready for my fifth treatment of Enhertu. My onc does a half hour anti nausea IV drip before Enhertu. My body's reaction is severe constipation. So for the 4th treatment I requested a different anti-nausea medicine. Guess what my side effect was? Severe diarrhea. Before I go back to the first anti nausea iv drip, is…
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My insurance company wants me to switch aromatase inhibitors! Why!
I've been on exemestane for almost 4 years, tolerating it remarkably well. Just got a letter from my insurance company. Starting in January, exemestane is "non-preferred" and will cost me more. The insurance company suggests I "switch to anastrozole." I'm angry! I don't want to switch medications, given that the one I'm on…
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Veozah
Has anyone started Veozah to manage AI induced hot flashes? Had my well woman visit today and my GYN recommended it. Thanks!
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Tamoxifen
Hello, I have been on Tamoxifen for 5 years and my oncologist indicated after testing that I should stop taking it and no further benefit would I receive to continue. For those of you who stopped taking Tamoxifen after 5 years, what side effects good or bad did you experience? Did you have a reoccurrence. thanks
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2nd cancer - melanoma
I can't believe I am back to the beginning again. After surviving the last year of IDC dx, surgery, chemo, rads + hormonal blockers...I just had a skin biopsy come back as melanoma. Not sure where to post, I thought maybe there was somewhere for secondary type cancers. I am wondering if there is a link somehow? I am always…
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Starting Tamoxifen: What are the Side Effects
Hello, I will be starting Tamoxifen in about a month's time. My doctor advised to take aspirin everyday as there is a risk of developing blood clots. Have you been taking aspirin with Tamoxifen? What are the usual side effects that you've experienced?
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BRCA2 mutation, IDC and lumpectomy and sentinel node
I found out that I had IDC and then through genetic testing, found out I have the BRCA2 mutation. After research and multiple discussions with surgeon and oncologist, I have decided to have lumpectomy and sentinel node biopsy at this time. Now waiting for pathology report and will do every 6 month surveillance. Have others…
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Can Chemotherapy Before Surgery Eliminate the Need for Surgery?
Can Chemotherapy Before Surgery Eliminate the Need for Surgery? Nov 2, 2023 Dr. Henry Kuerer shares the results of his study looking at whether some women can skip surgery after chemotherapy before surgery. At the European Society for Medical Oncology (ESMO) 2023 Congress in Madrid, Spain, Dr. Henry Kuerer presented…
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Promising New Treatment for Metastatic Breast Cancer
Promising New Treatment for Metastatic Breast Cancer Nov 2, 2023 Dr. Aditya Bardia discusses encouraging results from a study on a new medicine for hormone receptor-positive, HER2-negative breast cancer. At the European Society for Medical Oncology (ESMO) 2023 Congress Aditya Bardia, MD, MPH, presented results from the…
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Pregnancy After Breast Cancer: Is It Safe?
Pregnancy After Breast Cancer: Is It Safe? Nov 2, 2023 Dr. Ann Partridge discusses the research on pregnancy after breast cancer and the factors women need to consider. At the European Society for Medical Oncology (ESMO) 2023 Congress Ann Partridge, MD, MPH, chaired a session titled, “Pregnancy After Breast Cancer: Is It…
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Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers
Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers Nov 1, 2023 The experimental medicine Dato-DXd may be a new treatment option for certain metastatic, hormone receptor-positive breast cancers. Read more…