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No Hair 5 Months Post Chemo
I finished chemo on March 30th, and my hair is still really, really thin. I don't see any signs that my missing follicles are waking up. Did anybody else have really slow hair regrowth? I need a glimmer of hope here! Thanks! Mary
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Waiting on skull biopsy results
I was diagnosed with IDC (er+/pr+/her2+) and ILC 13 years ago next month. About 6 months ago I began having daily headaches which became increasingly unbearable. My primary care doctor referred me to neurology and my oncologist recommended I see neurosurgeon- they subsequently did a brain and head MRI and found a 1CM T2…
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"Fat Necrosis" six months ago, but its grown?
Hey everyone, <3 I'm TN IDC Stage 2 diagnosed back in 8/2017 at the age of 28, Chemo, Lumpectomy, Radiation. Can ya'll talk to me about your experience of Fat necrosis? I want it all. Good bad ugly, info, experience etc. I am 4 years out from finishing treatment and i just now 6 months ago was told a lump i found in my…
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Question for those post Arimidex therapy.
I'm curious of those that stopped Anastrozole after 5 years that had significant side effects while on drug. How long did it take for symptoms to dissipate/ or did some remain?
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A few concerning symptoms… worried!
Hi all, About two months ago I started getting this strange sensation in my right breast. It kept feeling like it was leaking or “letting down” but no fluid would come out (haven’t breast fed in almost two years). The sensation also feels tingly at times. Once this continued I started to notice that my right nipple is…
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Vaccine booster
Hi everyone, I saw my MO yesterday for a normal, check-in visit and to get results of a recent scan (all stable! 😁). I asked him if I was offered a booster vaccine (received the Pfizer vaccine many months ago and had no ill effects) should I take it. He said yes, even though I’m not considered immunocompromised, he said it…
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Mets to portahepatic (near liver) lymph node
Hello…In 2013 I was diagnosed with breast cancer ILC stage 2B with 3 lymph nodes involved. I did ATC 8 rounds and 5 years of AI. No radiation Yesterday I received the biopsy news that a lymph node in the portahepatic area (near the liver) is malignant. I had no symptoms but this was found from a CT scan back in April from…
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How many times do I have to try and decline hormone therapy.
Hi, My BC started in 2008. I don't want to add a pill that increases my anger., plus I get terrible migraines. I've seen several therapists and have used multiple drugs for depression, anxiety, and mood disorders. The AI's increase my irritability. There must be something other than AI's. Thank you for listening. Take care.
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New diagnosis 2 years after first diagnosis
in early 2018, I had a bilateral mastectomy for high grade DCIS in my right breast and had 3 lymph nodes removed (all negative). I had DIEP flap reconstruction at the same time as the BXM. Both the surgical oncologist and the general oncologist said I didn’t need radiation or adjunctive therapies. I was monitored for…
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Cording
It’s been almost 3 weeks since my lumpectomy and SNB. I started having pain in my arm a few days ago and then noticed the cording. Does this ever go away on its own? I’m doing exercises at home but can’t get into physical therapy for another 3 weeks. In the grand scheme of things, I’m sure this is nothing compared to what…
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Invasive micropapillary carcinoma
I haven't checked in for a while just wondering if there are any others with a similar diagnosis or if there are any resources or information you could share with me.
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Anyone have experience with cupping massage?
I had my BMX in November and my exchange in April. I recently started going in for myofascial release to relieve some of the tightness in my pecs and now my therapist has started using cupping too. Cupping is where they place small glass cups on your skin and then use a suction device to suction the skin under the cups.…
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Scans after Treatment
I finished my chemo and radiation in August 2019. I had one CT scan in January 2020 to check on a lung nodule that turned out to be fine but that is it. I just wanted to know if everyone else gets scans every year. I know having a CT would expose me to more radiation, but I don't know why they wouldn't do an MRI once a…
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Letrozole dry mouth, lips , and palpitations
I am only two months into taking letrozole. Struggling. Hot flashes night sweats with palpitations extremely dry vagina and now dry lips and mouth! I wake up with the tip of my tongue sore and have a rancid taste in my mouth . I’ve been drinking extra fluids and using biotine gel, which is a very temporary fix. I’m not…
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Who else has been diagnosed with BC multiple times?
I am not sure how many of us there are, but for anyone who reads this, to me it feels like HAVING IT AGAIN, FOR THE FIRST TIME! What I mean is, that I had IDC in 2003 treated with two lumpectomies, removal of 24 lymph nodes, chemo and radiation. In December of 2018 I had ILC, in the same breast, treated with mastectomy…
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Sleeve for Flying
It's been so long since I've been on a plane that I forgot how long to wear the sleeve after getting off the plane. I have a 5 hour flight coming up soon. Can someone remind me about how long to wear the sleeve once off the plane? Thanks.
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Questions regarding status change and mutations
I’m so new to this and my mind is still in overdrive. Everyday I come up with a new concern and worry. Recently, it is how common is it for Her2 positive to switch to her2 negative? Also, how do we know when we should get tested for things like oik3 mutations? I don’t even know what these things mean 🤦♀️ Did I mention I’m…
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ILC (Lobular) “Unusual” Mets Sites
I have compiled a list of BCO threads, journal articles, and other resources that I hope may help those with "weird ILC mets" to find information. BCO members, please add any resources you have found about weird ILC mets. ILC sometimes spreads to "the gastrointestinal tract, genitourinary tract, peritoneum,…
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Footprintangel needs prayers
Footie is in a lot of pain, she has dr appointments all this month and is feeling weak and sick. She needs us prayer warriors to pray for her. Dear God, please watch over Debbie, please help her pain and be with her during her dr. appts. Please help all of her test come back normal and for the dr's to be able to help her.…
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Does radiation after lumpectomy usually include the chest wall?
Hi - I'm confused - I am in a situation where I need to choose whether to stick with a lumpectomy, or just go forward with a mastectomy. They want to give me radiation either way. I want to minimize the dose to lungs and heart (family history). So I'm trying to understand whether radiation is less intensive or more…
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Enlarged lymph node above clavicle
I don't normally worry but I know my body. I have an enlarged lymph node above my clavicle. Not huge but noticeable. It's not painful, moves a little bit and has been there for over a month. I just had a check up in June and it wasn't there. They did a CT and have a tiny spot in my lung that is new also and are doing a…
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Pregnant while metastatic?
Hello. This is probably not a common topic but I wasn't sure where else to vent/ask. Has anyone gotten pregnant while on MBC treatment? I recently took a home preg test not expecting anything, but it's showing an extremely faint positive so I'm panicking & going to see my ob-gyn to check it out. I've only met one lady with…
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What’s your Tamoxifen dosage?
I’m currently on 20mg tamoxifen daily for the past year. The main side effect is fatigue and it’s killing me. It’s something I’m having a really hard time getting past and I feel my quality of life is suffering. i see my MO end of this month and I was going to ask her if I can take a break from the Tamoxifen for a few…
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Anastrozole (again)
I have been on Anastrozole for nine months now and I am struggling terribly with the side effects. I barely sleep due to the drenching night sweats and the itch and burning on my skin. Nausea, vomiting and diarrhea are constant, plus advancing Osteopenia -- just one value away from Osteoporosis. My Oncologist asked if I…
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Dx’d 8/2022
Hi all, I'm newly diagnosed with left breast IDC at 48 y/o. Initially, DCIS from a biopsy but after lumpectomy, final pathology showed 6 mm IDC, Grade 1. ER/PR + HER -. My surgeon requested oncotype to find out if I will benefit with chemo. I had my first appointment with my MO yesterday and found out that the pathologist…
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Confusing radiological report - advice?
Hello, I'm wondering if anyone might have insight about my ultrasound report: "Targeted ultrasound of area of concern right upper outer quadrant showed poorly defined hypoechoic change up to 29mm diameter right breast 11-12 o'clock. The area contains individual locules with central echoes measuring up to 14mm. There is no…
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NSABP B-51 trial, for radiation after pCR in the lymph nodes?
Has anyone heard of this trial? It's for people who were initially node-positive, but ended up having a pCR after chemo, to see whether nodal radiation or post-mastectomy radiation is really necessary. The details are here: https://ascopubs.org/doi/abs/10.1200/JCO.2019.37.1... I know it's closed to newcomers now, but…
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Nivolumab - anyone tried this immunotherapy?
I was on keytruda during my chemo (AC-T) but had to stop after 2 doses due to a prolonged fever and elevated heart rate, which apparently is a rare side effect. Now I'm done with chemo and radiation, my Onc wants me to try another PD-1 immunotherapy drug called Nivolumab. I see it's not yet FDA approved for breast cancer,…
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Delaying surgery to "shrink" DCIS with letrazole?
Has anyone else ever heard of such a thing? My sister was diagnosed with DCIS several months ago and still has not gotten surgery. She has 4cm of grade 2 DCIS. She really, really, *really* does not want surgery and has had a mental breakdown over her diagnosis. She found a doctor willing to prescribe her letrazole for the…
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Can you have DCIS only & not be put on a hormone blocker?
or even referred to an oncologist? Hi guys. My fraternal twin sister just got diagnosed with what appears to be 6mm of DCIS. I was diagnosed with both IDC and DCIS in 2020, and we have no other family history. My sister said her doctor told her she may need just the breast surgeon, and the surgeon may not even refer her to…