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Am I doing this right
I just got the call that I have cancer, but I don't think full pathology results from the biopsy (Wednesday) are in. Nothing is on MyChart yet. My primary care doctor gave me the number for an oncologist and a surgical practice. She said to take the first available for both. I have an appointment for an oncologist on…
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Issues with a top-ranked NCI hospital, Huge Anxiety/Frustration
I had my first surgery consult and MO consult this week, and after waiting 2 weeks when the new patient coordinator at the top-ranked NCI I transferred care to, set those up, I find out my imaging is NOT at the NCI. The coordinator claimed to have sent the request form for all imaging, but the imaging center I went to…
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Dimple that led to biopsy
I had the smallest dimple barely noticeable so I went to the walk-in ( I have no gp). I ended up seeing a physicians assistant who i don't think had ever done a breast exam as it was not at all a thorough exam. I requested a mammogram and followed up after hearing nothing. Turns out the referral was sent to the wrong…
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Medicare questions
This is pertaining to Medicare in the U.S.---- I will be eligible to start Medicare in January 2021--- 2 years after being approved for Social Security Disability. I do not know anything about Medicare as I am not close to regular Medicare age (I am 50 years old). I want to do some research now in preparation for applying…
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Nipple Discharge
from the American College of Radiology "Nipple discharge is a common complaint that leads patients to breast imaging evaluation. At least 80% of women will experience at least 1 episode of nipple discharge during their reproductive years. Nipple discharge is the third most common breast complaint after breast pain and…
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Found a lump in breast, had an appt. this morning. Freaking out.
Hi all, I would be grateful for some advice and encouragement if you're willing and able to offer it to me. I am 37 years old with no family history of breast cancer. Last night I was running my fingers across the top of my left breast and noticed a firm, tiny lump; probably about the size of a pea. Fortunately, my doctor…
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Signatera testing for residual disease
Hi everyone! I'm new here. I was diagnosed with Hormone + IDC last year. I was eventually deemed grade 2, stage 1b, with 1 positive lymph node plus a second with micromets. I had DCIS on the other side. Lymph nodes were taken from both sides with no additional ones being positive. I did nipple sparing BMx with tissue…
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No treatment and no progression
wanted to let everybody know- I stopped conventional treatment( was on enhertu at the time) in February. Still had lymph nodes that were lighting up on PET , original lesions in lungs seemed to be inactive and fibrotic. Scan at the end of May shown no change. Obviously everybody's situation is different- mine was an…
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More results
so yesterday was my diagnosis day via stereotactic biopsy lab results. Idc grade 2 Dcis grade 3 with comedonecrosis, calcifications and extension into lobules I have had 2 ultra sounds and 2 mammograms no palpable or Detected lumps or masses just hardened tissue today I received the following: er positive 100% pr positive…
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Partial response to chemotherapy
Hi all, I had my first ECO few days ago half through the chemo(almost done first cycle, 10 infusions out of 12). In spite of a rather aggressive approach: 12weeks of Paclitaxel & Carbo, with Keytruda every 3 weeks (will be followed of Adriamicin & ...I keep on forgetting the second and Keytruda) I have only 60% shrinkage…
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Breast indent/dimple/pucker
hello. First and foremost, I am 31 years old and have 3 kids. I am still breastfeeding my 2 year old. Yesterday I noticed an indention type area on my breast. It is on my right breast under the armpit near the armpit fat. I do not feel a lump or have any other signs. My husband can’t see it. It also disappears when I lift…
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Bi-Rads 4 2cm Spiculated - Scared
Hello! I had to return to get more testing from my routine mammogram (3D this time). Results in my ultrasound report: 1.8 x 2.0 x 1.7 cm irregularly shaped, spiculated, hypoechoic, shadowing nodule in the 9:00 right breast 8 cm from the nipple. No suspicious lymph nodes are seen in the right axilla. I was happy about the…
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Anyone doing Zometa to reduce risk?
MO wants to do Zometa twice yearly to reduce risk of bone Mets. Second MO, when I asked, says it's controversial. Says he will do it if I want, but that he would not suggest it himself because nothing is “free." That he would not want to make me do it, and then I turn out to be the 1 in 100 with osteonecrosis for what Is…
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Switching from Ibrance to Verzenio - Tips?
Daughter/caregiver here to a mom (70yo) with MBC. I'd love to know if anyone has experience switching from Ibrance directly to Verzenio. Context: My mom has been on Ibrance for 14 months, with an excellent response. She quickly had to reduce her dose to 75mg due to immediate neutropenia, but was able to get a handle on…
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Metastatic Breast Cancer (Liver met)
Hi, My sister-in-law is currently suffering from metastatic breast cancer with metastasis to her liver. She was first diagnosed in 2019 and the cancer returned in April 2022. Her cancer type is ER+, Her 2- She is currently on palbo however we were told that drugs can develop resistance over time. We need help on how to…
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Paid survey by phone/computer
Hi! For those who don't know me, my name is Kris or KBL on the forum. I've posted before about surveys I've done with RC Horowitz. They are a research company who performs surveys. Aside from the other post I placed, they're also looking for up to 30 participants to have a phone/computer survey. This one will pay $175. It…
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Breast lump, precancerous colon polyp...my DNA cant be trusted
Hi everyone, I really appreciate this supportive community that has formed, especially the thoughtfulness that has gone into creating a space where those of us who are undiagnosed can express concerns without taking away from the much-needed support offered in the other forums. I'm 31, and a few months ago my husband…
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Podcast: Hope After a Triple-Negative Diagnosis
Thought you all might be interested in this podcast from Breastcancer.org: Hope After a Triple-Negative Breast Cancer Diagnosis Hope you find this helpful! -- The Mods
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talk to Physician who has cancer
Don't really know if this post belong here, whoever moderating this group please move to appropriate section. How does one talk to primary care physician about one's fear of cancer when the Physician herself is in remission? One doesn't want to trigger any worry for her. Thanks, Nguyen (Wife Linda, stage IV)
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Crazy metastisis with lobular
Hello… I was originally diagnosed with ILC in 2013, stage 2B with three lymph nodes positive. I was ER positive and her2 negative. Had double mastectomy, 8 rounds of ACT and 5 years of AI. Now I have been diagnosed with malignancy in a lymph node in porta hepatic which is where blood vessels feed into the liver and other…
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Eating alot and losing hair
Omg, I've been eating like a wrestler lately. Craving salt and meat since my 1st chemo. I'm also starting to see strands, not clumps, of my hair starting to fall off. Eek!
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Bisphosonates - strange side effects
hello Has anyone suffered strange side effects? I've been on Actonel/ Riseondrate for a couple if months. Suddenly I have irregular heart rate and strange back and hip pains (all to be investigated of course). Angie
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ILC MRI results, answers please
Hello all, Yep, the sneaky ILC. Mine is 1.9 cm mass, lumpectomy scheduled. Sent to get MRI for a "better look". No lymph node involvement but some "subcentimeter" nodes and linear enhancement throughout breast. The rad doc recommended follow up ultrasound of full breast and if no correlates a MR guided biopsy of 1 of 2…
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Has anyone here developed Pre-Diabetes during Hormone Therapy
I see BCO has an article about this https://www.breastcancer.org/research-news/link-between-hormonal-tx-and-diabetes My story so far - after always having fasting blood sugar in the 80s or even the 70s, my last two readings at the oncologists office, three weeks apart, were over 100. The first time, I had a smoothie not…
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Bump over TE
Hi everyone. I had a DMX about two months ago and had my final fill last week. Day after the fill I noticed two pimple like bumps (sort of looked like in grown hairs) next to each other and when you touch it it feels hard (almost like plastic). Saw the nurse today and she thinks it's likely the expander but wants an…
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IBC Anxiety
Hi, I'm new here. This post will be pretty long and I want to thank anyone who takes the time out of their day to read and reply. I'm extremely anxious about my health. Just a few months ago I was 1000% sure I had a blood clot and just days to live. I didn't have a blood clot. I know because I went to the E.R. and then to…
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Nipple sparing double mastectomy
I had my surgery in 2019. I was very lucky. No chemo or radiation. I was on Tamoxifen until October. Then my Oncologist switched me to another estrogen blocker. Most recently my nipples have become very sore and sensitive? Is this typical? Usually they are numb and uncomfortable. I thought maybe it is a side effect of the…
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New Pathology Results - Does It Matter?
I had a BMX on 10/8/21 with immediate reconstruction. At the time, my primary tumor was 2.5cm, grade 2, ER+ PR- HER2-. They found a 4mm macromets in a sentinel node, no additional nodes taken. Oncotype was 25 and I was only 42 years old, so I did 4 rounds of AC, 12 rounds of Taxol, and 25 sessions of radiation. I'm now on…
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Zest trial
Is anybody participating in Zest trial? Thank you
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ZEST trial
Is anybody participating in ZEST trial? Thank you