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Androgen Receptor Positive TNBC
Has anyone had their tumor tested for AR? I had a very poor response to neoadjuvent chemotherapy, which was a surprise because I had a complete clinical response, and am pretty young- which are both usually indicative of a good response to chemotherapy. I have been making rounds on second opinions since getting my surgical…
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Implant failure after radiation
I had a double mastectomy with immediate implant reconstruction. I will need to have radiation, since there was cancer in one of my lymph nodes. Has anyone out here been through this? I'd like to know what the percentage of implant failure exists out here with radiation - not from research reports. I would also like to…
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Aquaintance celebrates 25 years since advanced cancer diagnosis!
Hi everyone. I just have to shout it out because it gives me such hope. She is such a gracious, generous and caring person.
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Side sleeper with tense back muscles - Help!
I can't remember ever being anything but a side sleeper. I have a lot of tension in my upper back, which can obviously affect my lower back. Sleeping on my side with a thin pillow between my legs is most comfortable for me. Sleeping on my back tends to exacerbate any pain I have in my lower back. I also have problems…
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Radiation Dermatitis severe
Hello Everyone, I was diagnosed with a reoccurrence after 7 years. I had a lymph node dissection on July 8th. I finished 16 rounds of radiation on September 23. I started to develop burns by end of week 2. It has gotten progressively worse. I have seen my radiologist twice since because all the "treatments" aren't working.…
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BRCA Positive
Hi Everyone, I am new here and trying to make a decision on prophylactic Mastectomy. I am 66 with a positive BRCA2 diagnosis. I had a total hysterectomy at age 34 and from what I have been reading having the hysterectomy may have reduced my chances of acquiring Breast Cancer. Making the decision to have a prophylactic…
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Podcast: Verzenio Improves Overall Survival in HR+ HER2- Adv BC
Verzenio Improves Overall Survival in Hormone Receptor-Positive, HER2-Negative, Advanced Stage Breast Cancer Sep 28, 2022 Dr. Matthew Goetz explains the latest results from the MONARCH 3 study on Verzenio. At the European Society for Medical Oncology Congress 2022, Dr. Matthew Goetz presented interim overall survival…
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Podcast: Trodelvy Offers Benefits for HR+ Breast Cancer
Trodelvy Offers Benefits for Hormone Receptor-Positive Breast Cancer Sep 22, 2022 Dr. Hope Rugo discusses the latest results from the TROPiCS-02 trial showing Trodelvy improves overall survival compared to chemotherapy in metastatic, hormone receptor-positive, HER2-negative breast cancer. At the European Society for…
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Radiation Dermatitis severe
Hello Everyone, I was diagnosed with a reoccurrence after 7 years. I had a lymph node dissection on July 8th. I finished 16 rounds of radiation on September 23. I started to develop burns by end of week 2. It has gotten progressively worse. I have seen my radiologist twice since because all the "treatments" aren't working.…
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Evusheld
Hello, Is anyone on Evusheld particularly if you are being treated with Enhertu? Evusheld is a pre-exposure prophylaxis medication for covid-19. It's composed of two mono-clonal antibodies tixagevimab and cilgavimab. Thanks, Nguyen
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Can't believe I'm back here again
Hello all! It's been a long time since I've been active on here, but after nearly a full five years since I started this ride, I find myself back in limbo once again. So, brief catch-up - you can see from my signature what happened with me previously, and I'm happy to say that, since finishing treatment in the summer of…
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BI-RADS 3 result today - still have anxiety
Had a diagostic mammogram and ultrasound today. Got a BI-RADS3 score and need to follow up in 6 months. I know this means like a 2% chance of malignancy, but I'm still worried. LEFT DIAGNOSTIC MAMMOGRAM WITH CAD AND TOMOSYNTHESIS AND LEFT BREAST ULTRASOUND CLINICAL INDICATION: Follow-up left breast calcifications.…
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Metastasized?
I had a lumpectomy a few weeks ago and start chemo in a few weeks. My oncologist ordered a few scans in between. I had a CT scan today and I saw my results online before the nurse called. It showed a few lesions (2-3 mm) on my lung and kidney. I was freaking out a bit and assumed I was going to have to have more scans…
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Lymphoma from implants
Has anyone had one of the recalled breast implants and not been notified by dr. that they have one of those implants?
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Biopsy pathology report has me confused & scared
Hi, everyone! I have read through the stickied posts and I have a call into my radiologist’s office but I’m feeling mighty panicked right now and was hoping someone else has been in my shoes and can share their experience while I am waiting for an answer. I had a biopsy to my left breast and left armpit last week. The…
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Anyone in Denver Want to Walk With Me 10/16?
I am leading a team to help support flat visibility at the Making Strides ACS walk on 10/16. I got to do an interview with Renee Ridgeley about the walk and about how being openly flat or uni can be such a reassurance to other people facing a mastectomy. I hope to see y'all in October! Instagram - Interview with Stand Tall…
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leptomeningeal carcinomatosis
Hello, I found out last night at 10pm that I have leptomeningeal carcinomatosis. I have been in the hospital since Friday (it's Tuesday). I may go home today or tomorrow or who knows. I have to start WBR today. And I will be switching chemos from Gemzar to Abraxane and Carboplatin. My MO said that if the WBR doesn't work,…
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Walking barefoot and neuropathy?
I am just starting chemo and notice that some people have written that one should not walk barefoot. I'm not sure this is because walking barefoot hurts if you develop a neuropathy in your feet or because walking barefoot can contribute to or exacerbate existing neuropathies. I'm grateful for an insights. Thanks.
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Daughter BC Mets Ovaries- Help
Help My step daughters BC has now been found in her ovaries. She meets with her MO this Friday. What should we be asking! She had a lumpectomy, 3 years later a bilateral mastectomy, ovary removed last week and Monday they called to say BC metastasized. Ugh. Thank you Yall have helped me over the years
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Tampa area BCO sisters II
The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you…
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Denovo Her2 +++
Denova ladies, 1. How long were you on Herceptin and perjeta before ( if) you had progression? 2. If no progression, how long have you been Ned or stable? 3. Who all has gone off treatment? This has probable been asked before but I couldn't find it. Thank you sisters. I am grateful for the support.
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BI-RADS 0: Incomplete- Should I be worried?
Just got my mammogram results today and it's BI-RADS Final Assessment Category 0: Incomplete-Need Additional Imaging Evaluation. Kind of worried now! They have me scheduled for a follow-up mammogram for Thursday. BREAST DENSITY: B-The breasts demonstrate scattered fibroglandular densities. Left breast: There are…
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New liver progression - looking for advice/suggestions
Hi all -- I am looking for some current advice / suggestions regarding options because I have some new progression. (Note: tried searching the different threads but new format continues to make that difficult, and lots of posts are pretty old.) I'm HR+ / HER2- (+1) based on initial MBC liver biopsy 3 years ago. I've been…
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Chest wall metastasis?
About a week ago I started having tenderness in one area of my right breast. The tenderness is deep so I have to push on it to feel it. At first I attributed it to upper body light weights but it’s not getting better. I have extensive scar tissue from surgery but that’s not what is tender. I also notice when I bend forward…
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Lump and indentation- negative mammogram
Hi all, I really hope I can get some answers. I’m 40 yrs old with no history of any breast conditions. About two months ago I noticed a dark spot on my left breast as I was getting in the shower. I was running late so I put it out of my mind until another couple weeks had passed and I noticed it again. Once I looked again…
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Do metastatic patients never fully get rid of the cancer?
Hi all, I am a metastatic breast cancer patient, after 12 years remission from ER+, PR+, HER2+ my cancer came back as ER-, PR-, HER2+. It is a mass in my chest, in the lymph nodes of my right armpit and a tumour on my pancreas. However both my breasts are clear. I've been receiving Paclitaxel, Pertuzumab and Trastuzumab on…
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Annoying health ads online
Does anyone else find those clickbait health-scare 'ads' on the internet upsetting? I just bumped into one on my Fac*bo*k feed -- 'Nine things not to say to Metastatic Breast Cancer patients'. It raised my stress level and annoyed me; last thing I felt like experiencing on a Sunday. I know the human brain is wired to look…
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HER2 FISH Results timeline
I was diagnosed with IDC Grade3 HR/PR+ on Monday. I have been followed by a high risk clinic for four years due to a previous wide excision for PASH. My last mammogram in October of 2021 was BIRADS 0. Tomorrow, I will go for an MRI and bloods for staging. I have been told that the HER2 FISH could take weeks due to staff…
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Chemo before or after surgery?
Hello everyone! Can't believe I'm actually here. I was diagnosed with Stage 1 invasive ductal carcinoma in my right breast on 8/26. Then they wanted me to get an MRI done at a real cancer center a month later. I live in a remote area. So, I did on 9/22. Got the results 9/23 and they found MORE masses now in my left breast.…
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INFLAMMED BREASTS, WENT INTO SHOCK AT HOSPITAL
A rash started around my breasts and where my bra lies. And then it spread to the rest of my stomach, shoulders and arms, as well as my panty line and thighs. I went to the hospital, threw up and passed out. Was shivering. But my entire body felt like it was on fire. Especially my breasts. There were spots all over my…