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Genetic Testing Decision Making & Barriers Youve Faced?
Hi all, We're looking for members to share their experiences with making decisions regarding getting genetic testing and any barriers you have faced in doing so. If you'd be willing to share your story, could you please post here or send us a PM? Thanks in advance!
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Heavy Legs/No Energy!!
I just completed my 4th round of chemo on May 6th. I am HER2 positive and am receiving Herceptin, Perjeta and Taxotere every 3 weeks. Nausea has been the absolute worst from the beginning, but I'm now experiencing a real heaviness in my legs which makes it difficult to walk any considerable distance. I get super tired and…
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Verzenio
H was your experience taking Verzenio???
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CBD and Tamoxifen
Hi There Fellow Survivors, I will have been taking Tamoxifen for 4 years this coming September. I have been very fortunate in that my side effects are within my tolerance level. However, the main SE I have are 24 hour twitching of my legs. I can tolerate this until I get painful contractions which can make my entire leg…
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Is expanders a good choice before flap or implant decision.
HI EVERYONE, anyone in my position before? I am awaiting genetic test results and biopsy results on right breast and my left is diagnosed with DCIS in which mastectomy + DIEP FLAP or silicon is possible. [updates: genetic test pending, Right breast biopsy is benign, not doing preventive mastectomy]. Sorry, I have amended…
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Subtle enhancement on good side -- any similar stories?
Hello. I tried posting this before but it did not work, so I apologize if this is a repeat. My wife just finished up chemotherapy and radiation about six months ago for recurrent localized breast cancer. She recently had her six month mammogram for the good side. Initial radiology report said that everything looked clear.…
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Hard, immovable lump against chest wall that wasnt cancer?
Hi, I'm new to this board, and hoping to find some relief from my anxiety.. A little bit of history... 3 years ago I found a lump in the upper right area of my breast (2 o'clock)... near the outer edge, against my chest/breast bone... I was 25 at the time, so not overly concerned, but I mentioned it to my OBGYN at my…
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Which BC patients will benefit from metformin?
Primarily people with metabolic syndrome can benefit from including metformin in their BC treatment regimen, according to this article.…
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March 2022 Surgery
I am having unilateral mastectomy and reconstruction on my left side on March 3rd. I had lumpectomy and radiation on right side in 2015 and thought I am done with cancer. But somehow my DNA loves my breast to mutate this way! Lucky me!! Surgery is at 10, so will go to hospital at 7 for pre surgery checklist. Will stay for…
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Is delaying mammogram for a few weeks a bad idea?
Hello all, I am planning a dream trip with my family in July. I have a mammogram appointment May 24. I feel like I want to delay the mammogram until after the trip. My reasoning is : I am a 10 year survivor. If something is found and suspicious on May 24th, I know myself, and I won't be able to let it go or forget about…
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Keto? Mediterranean? No sugar? No fat? No processed foods?
I have been reading studies about how diet affects breast cancer growth and have been bouncing between them in my head and daily life. Some studies, such as keto diet, seem to contradict each other, with fierce advocates on all sides.I thought it might be helpful for us to share the type of diet (not for weight loss, but…
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CTdna positive results anyone?
Hi all, I'm just over 5 years out from a diagnosis of ER/PR+ Her2- stage III breast cancer . I did alllllll the treatment options back in the day and have been on hormone therapy (OS+letrozole) ever since. Recently I decided to do the fairly new circulating tumor DNA test to potentially take part in a clinical trial and it…
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Pain and sensations months after lumpectomy
I had a lumpectomy of my 1 cm lump and 5 lymph nodes. There’s been some new pain and all kinds of sensations recently. It’s disconcerting. Could it be nerve endings healing? Anyone else had this
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22 Year DCIS Survivor-Just diagnosed with IDC
***Uodate*** I saw breast surgeon and oncologist Tuesday. Clinical stage is 1A which is great although I realize this could change. I'm going for genetic testing next week, waiting for MRI on both breasts, then surgery in mid June. Right now, I have to have mastectomy on left breast as I cannot have radiation again. I may…
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Clinical Trial for Metastatic TNBC Now Recruiting
CF33-hNIS-antiPDL1 for the Treatment of Metastatic Triple Negative Breast Cancer Description This phase I trial tests the safety, side effects, and best dose of CF33-hNIS-antiPDL1 in treating patients with triple negative breast cancer that has spread to other places in the body (metastatic). CF33-hNIS-antiPDL1 is an…
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33 with lump and pain. Dismissive consultant.
Hi there everyone, I'm just looking for a bit of advise and support after coming from the hospital feeling very dismissed. I'm 33 years old, estranged from my family so have no idea if there's any history of BC because I haven't seen any of them since I was 18. About 3/4 weeks ago I started to get a sharp stabbing pain in…
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Zoladex rebate
Hello! I started getting in-office Zoladex a few months ago. I have a commercial insurance plan. I see that there's a co-pay card online, but it says if you get your injections in a doctor's office you can apply for reimbursement with proof of payment and an EOB. I looked at my EOBs on my insurance website, and everything…
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A couple of informative articles on management of ER+ MBC
Some of the esoteric (brain fog at the moment) but useful information are in the detail which lead to chasing down references for more. Nguyen Standard of Care in Hormone Receptor–Positive Metastatic Breast Cancer: Can We Improve the Current Regimens or Develop Better Selection Tools?…
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Crying, scared, blind-sided 50 year old.
3 weeks ago I was healthy. I had recent blood work that showed all my numbers were excellent. And then one morning I woke up with pain in my left breast. I thought I slept on it wrong somehow and waited until the following day to check it. That's when I found a lump. It was going into the weekend but I managed to get an…
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Increased blood pressure....
Hi all I have been taking anastrozole for about 9 months and have had increasing blood pressure since then. I don't know if it's the anastrozole causing this, but I've never had blood pressure problems. Has anyone else had this?
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Hoping it's justscar tissue
I'm 3.5 years after treatment. This morning in the shower I noticed a half-dollar sized area near my scar, where I'd also received extra boosts of radiation, was a little bit pink. I thought it might be just a heat reaction, which happens sometimes, so checked on it a couple hours later. It hadn't faded, and I'm now…
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Unhappy with Reconstruction (pics) FEEDBACK NEEDED!
Hi I had my exchange in October and right away noticed massive rippling particularly on my cancer side. I got a second opinion from a Stanford surgeon who said my breasts look amazing and he wouldn't advise attempting to change anything as it likely won't improve or it would make things worse. He said my outcome is a…
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Breast MRI shows a chest wall enhancement
Hi everyone, So I’m almost 3 years from first being diagnosed and I got a follow up breast MRI and I have a non-mass like enhancement to the lateral chest wall (same side as my cancer). The radiologist said “could be from treatment but metastatic malignancy should be considered. I feel like the radiologist knows it’s…
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Implant VS Flap reconstructions experiences
Hi, i am newly diagnosed with high grade DCIS. I am going into surgery end of May. My plastic surgeon has given me 2 options: direct-to-implant VS flap (from abdomen). I never give birth and it will be a unilateral masectectomy. She has explain to me the pros and cons. Anyone was in my situation before? I understand…
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Recurrence within a few months?
I just finished my last Herceptin/Perjeta infusion 3 weeks ago, marking the end of my active treatment. I completed TCHP in September (just continued the HP part of it to carry out the full year for HER+), and completed radiation in February. I had a bad scan 2 weeks ago, which I thought couldn’t possibly be anything…
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needing support
Hi all, back after my MRI in Sept-they found fat necrosis in my left breast--everything else ok-- of course in September I was only a little worried-but now I go back on 3/29- and a little anxious-- I am trying to reassure myself with the report from then which was "unlikely to be malignant" but you know how it goes....…
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My ILC friends
I’m curious. I will have had chemo, DMX , and radiation and Tamoxifen when all is said and done. I was stage 3 because of the larger size and a few suspicious lymph nodes. But they were never tested before chemo and after surgery they were negative. I also got an over 2cm or more margin all around. I know this is a dr…
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One down, one to go
Hi everyone. Little background I went for my first mammogram and they found an asymmetry on the right breast that could not be seen well on u/s and one on the left that they classified as a mass that is non-circumscribed and hypoechoic and determined both needed a biopsy. I was given a Birads 4. I had the right side done…
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Help needed for Treatment options (if any)..
I am a recent member of the group and was diagnosed with De Novo stage IV, Triple negative with mets in liver and lungs. I was diagnosed in Oct 2020. i belong from Pakistan and my doctors are of the opinion that my cancer has spread too much for them to do anything (chemo,Radiation,Immunotherapy) about it. I am writing…
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Keytruda q3 wks and now elevated liver enzymes
I went through all the chemo for tnbc and finished in Nov 2021. Got the PCR and had a lumpectomy in Dec. Radiation for 20 sessions just to be safe. I started with Keytruda when I was on taxol/carbo and have continued Keytruda every three after surgery. My enzymes were slightly elevated last time but I still got the…