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Breast Imaging Information / Resources
In addition to the wonderful information available here at BreastCancer.Org, the following sites are recommended by the American College of Radiology for patient information on breast imaging and breast related procedures: http://www.mammographysaveslives.org http://www.breastdensity.info/…
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How to Read a Mammogram Part 2
Since I issued Part 1 of this topic I have seen member's posts where they have drawn conclusions regarding their reports based on only one or two of an abnormality's features listed in the report. There are a finite number of features we look for in mammography and US to evaluate a mass. These include but are not limited…
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Benign and Malignant Causes of Nipple Changes
For those of you who enjoy reading the more lengthy technical articles. This covers many topics related to nipple changes and includes embryology and normal anatomy. It is from the RSNA so it has some emphasis on imaging. It may touch on terms you find in your reports. It is fairly comprehensive. Click Here. Edited by Mods…
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What type of imaging is most accurate?
In my experience, the problems with sensitivity and specificity in breast imaging is that on the spectrum from definitely benign to definitely malignant, there is a broad area of overlap of these findings in the center that could go either way. This is where the value of combining several imaging modalities becomes clear.…
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Common Benign Causes of Breast Pain
Articles dealing with breast pain in patients that have already had a complete workup and breast cancer has been definitively excluded as a cause of the breast pain. 1) A fairly complete non-medical article on the subject: 7 Annoying Causes of Breast Pain and Soreness 2) From ClinicalAdvisor.Com: Managing Breast Pain…
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collagen for bone health?
Has anyone taken or done research on collagen peptides for bone health? I found a few studies on PubMed, like this one, which suggest that collagen may stabilize or improve bone density in post-meno women. Specific Collagen Peptides Improve Bone Mineral Density and Bone Markers in Postmenopausal Women—A Randomized…
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'Ironbra' syndrome 15 years after surgery
Hi all, I'm experiencing what I have discovered is called 'Ironbra' syndrome. Didn't know it was a thing until I started researching these past few months. I had my mastectomy in 2006 and reconstruction 12 months later. I had lymph nodes removed which showed no spread so no other treatment necessary other than 5 years of…
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Resources for Caregivers
We hope you find the following links helpful! Learn: Caring for Someone With Breast Cancer Podcast: Support Services for Caregivers Podcast: Caring for Men Who Are Cancer Caregivers Podcast: Supporting a Partner With Breast Cancer Podcast: How Therapy Can Help People Affected By Breast Cancer Personal Stories: Caregivers…
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Newly Diagnosed liver/bones LOOKING FOR LONG TERM SURVIVORS/HOPE!
Hello there, After 10 years of stage 2 breast cancer, 3 months ago I discovered it has returned stage4 to my bones/liver. I thought it was all behind me… I am finding it so hard to cope & terrified of my future, especially being a mother of a young child. I am hormone positive, Her2- I would love to hear from others with…
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…7 Years later
question: it’s been seven years since my mastectomy; is it normal, to have feelings of “aching” or soreness on the cancer side every now & then? It’s not a debilitating feeling but, just uncomfortable and, if I may, kind of “scary…”
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Seeking input-pathologist sent sample out for second opinion
New to this. I‘ve conditioned myself to be ready for a dx at some point in my life due to family history, but hoping it’s not this year. Any input appreciated… I have extremely dense breasts and previous biopsies dx’d as fibroadenomas and benign cysts. Last biopsy was a radial scar that they did a lumpectomy for last week…
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HER2 negative but actually a low positive and neratinib
I'm making a list of questions for my oncologist appointment coming up and in looking at posts relative to metformin I came across neratinib. I realize the metformin trial ended up demonstrating that it was not beneficial in lessening recurrence rates. But apparently neratinib trials were because it was approved by the FDA…
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Any one triple neg with weakly positive HER2 (FISH)
Hi, I have very weakly positive HER2, so MO says I have both triple neg and HER2 positive ( weak)clones. I’m finishing neoadjuvent with TC and Herceptin tomorrow. Any one has similar path report and like to know how you are treated. Thanks
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Creepy feelings on my numb chest
It's time for my 6th month check up, again. It's been 3 yrs since my BMX. The chest wall used to be very numb. Didn't feel much when touched. 3 yrs past, and some sensory is coming back. I have some feelings now, creepy feelings when touched by someone else. My last check up in January was traumatizing. I left my check up…
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Tyrer--Cuzick Risk calculator
Hello - on the Tyrer-cuzick risk calculator, does a 10 year risk of 7.3% for breast cancer. And a lifetime risk of 11.2% mean a high risk? Thank you
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Really Scared--Bilateral Pleural Effusions
I am coming on year 3 since my diagnosis, and I have been feeling pressure and discomfort (primarily at night) on the ribs under my breast--yes, cancer side. It has been a few weeks. I had an X-Ray done and it showed bilateral pleural effusions. Of course, I googled it and now I am freaked out. Is this a clear sign that…
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Emotionally and mentally accepting mastectomy
Hi. Looking for some support and suggestions on accepting getting a mastectomy. I was recently diagnosed with DCIS after a biopsy. The plan at that point was lumpectomy and radiation. I had an MRI and received the results today. The MRI indicated a much larger area of DCIS (mammogram indicated 5cm; MRI indicated 14.5 x 4.1…
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Arimidex and permanent damage
HI, all. Looking for some guidance as I am struggling with the decision to take it or not. I am 58 post-menopausal I do not have the BRCA gene mutations. My risk of recurrence with AI is 4% and 8% without. All in all, I've got it pretty good. My lumpectomy was easy. Radiation not too bad. I don't have to do chemo. I feel…
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Surgery after “horse is out of the barn
This may be addressed somewhere else but I can't find it. Original bc 2013 with lumpectomy in left followed by 30 radiation. 8 years later shocked to learn MBC in liver. Been treated 19 months and lesions have shrunk and now CT shows some increased activity in that breast and I have been referred now to a breast surgeon…
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Paget's Disease and Punch/Wedge Biopsy
As attempting to do some research online, there are not too many resources that discuss paget's. Thus, if anyone is willing to share, I was wondering about experiences regarding it, and particularly how the punch/wedge biopsy is. I am kind of scared of doing the biopsy and I was just wondering how it works, since I…
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Cognition issues
Hello First post, from UK. Stage IV with bone mets, diagnosed 2022, after first multifocal diagnosis in 2018, mastectomy and DIEP. Stable so far with abemaciclib, denosumab and letrozole. Just started on Serena6 trial. I've been so impressed by the ballsiness of this forum and the amount of knowledge and critical thinking.…
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Time From TE Surgery to First Fill?
I had my TE's placed again on Tuesday, 7/18. I go back on 7/25 for a post-op and the plastic surgeon mentioned wanting to start filling that day, so only one week post surgery. He was unable to add any saline when he implanted the TE's as this is the second time we've attempted reconstruction. My question is, does this…
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Ohio
anyone on here from NE Ohio. I would love to find a live support group tho I do appreciate the zoom groups.
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Stage changed to stage 2 A
Now after meeting with radiation oncology (they couldn't do anything but talk to me due to I still need to meet with Hematology oncology and discuss chemotherapy options first) I was reading over my notes from the doctor and noticed that my stage is now Stage 2a, grade 2 ER & PR positive, HER2 negative, oncotype 23. Not…
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Just diagnosed, 45 years old, had lumpectomy Stage 1b grade 2 oncotype score of 23
I received my results from my lumpectomy and received the score of 23. The surgeon is talking chemotherapy. I haven't met with radiation oncology or hematology oncology yet have those appointments coming up. I am just wondering is there any one out there who has the same score and what they had to go through?
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12 years new recurrence/ILC
I was diagnosed and treated for ILC Stage 2b 12 years ago. Had BMX and took Tamox and AI for about 6 years. I was told 1-2% chance of recurrence in chest wall, etc. Low and behold, a lump under my arm on original BC side. Biopsy confirmed not a lymph node but ILC tumor. Surgeon planning to remove tumor and potentially do…
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Lymphangitic Carcinomatosis - Can anyone relate?
I was just diagnosed on Friday (7/7/23) with suspected lymphangitic spread (lymphangitic carcinomatosis?) to the lungs after being stable with bone only mets for 3.5 years. I'm a little devastated after meeting with my MO. I'm just wondering if there is anyone else out there living with this? At this point I have more…
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Need some comforting...
Hi all, I've been experiencing a slow but steady increase in Staging since April 19. Started out as small, easily treated etc., but since then tests, surgery, waiting and more tests, each coming back with worse and worse news (many of you are probably familiar with this story). Tomorrow is the end of the road and I go for…
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Lump in mastectomy scar
Hi! I had a lumpectomy, at the age of 40, for Lcis in the right breast in 2017. In the same year, I had a bilateral mastectomy with reconstruction because I could not control my anxiety. In 2019, I did lipofilling, after which oily cysts formed in both breasts. Few days ago I had an ultrasound scan because a lump appeared…
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Scientists make promising discovery in fight against breast cancer
https://www.sciencedaily.com/releases/2023/07/230721113230.htm